January 22rd 2009-Afternoon

Cristian’s vent went from reading 10-12-14-16-18, etc… At around 4:30pm Cristian was put on C-Pap trial. Dr. Bob and Walker spoke about what is going on and both feel that the MRI, which is now definitely scheduled for 8pm tonight, is a very important one.

January 21st 2009

Doctors Walker, Pyne, Velaquez, and Bob spoke with me today on conference to discuss a Move Forward Game Plan. Dr. Bob, as you might know from our past Journal Entries, was the Doctor that is credited for helping Dylan (www.saveourdylan.net) combat Pontine Glioma.

January 20th 2009

Cristian was moved to Memorial Sloane Kettering’s POU-(Pediatrics Observation Unit) where they hope to soon start doing C-Pap trials, perhaps on Wednesday. C-Pap is when the vent is solely assisting Cristian’s respiration, but Cristian would be pretty much breathing on his own.

January 19th 2009-Night

Cristian was in and out. His heart rate went up and down but for the most part he showed improvement. Doctors think his Trach might have caused Sundays episode.

January 19th 2009-Morning

Cristian was pretty out of it all night and at around 4am this Morning Cristian’s Beautiful Brown eyes were wide open and he seemed to have a lot of his color back, Cristian didn’t seem as pale as he did at St. Mary’s or when he was first brought into Sloane.

January 18th 2009

Cristian’s heart rate was high all day and his oxygen level was very low. Cristian looked pale and wasn’t the same alert boy he was the last few days. We had him taken to Sloane Urgent Care and he desatted really low, both in the Ambulance and at Sloane.

January 16th 2009

I went to St. Mary’s and Cristian was in school. When I asked Cristian if he liked being in school Cristian blinked yes. Dr. Walker came by my office and brought me water blessed from John of God, the healer from Brazil.

January 15th 2009

Cristian’s heart rate was very high this morning. It usually is high in the mornings, I will ask what they attribute this to. Cristian’s energy seems better.

January 14th 2009

I stayed overnight with Cristian. Cristian no longer nods his head. Cristian still smiles from the right side of his face. Cristian’s energy is a bit better. As of today, Cristian is getting 2 dosages of stem cells daily.

January 12th 2009

Dr. Walker came with someone that does Reiki, Diego Urrea. Diego did some Reiki on Cristian while Dr. Walker did a check up on Cristian. Afterwards Dr. Walker, Myself, Jenelle, Deacon Michael and Marianne (who is in charge of medical services/GI and Nutrition) met and discussed the stem cell option.