Weston Wiens is 5 ½ years old and was diagnosed with the horrible disease that is DIPG (Diffuse Intrinsic Pontine Glioma) on October 3, 2017. The average survival time after diagnosis is 9 months, yet Wes is still fighting 3 years later. Katie, Wes’s mother, says that it felt like her entire world was turned […]
DIPG is a horrific brain tumor that is a death sentence for a child who has barely lived their life. The average survival time after diagnosis is 9 months. These 9 months are crucial for loved ones to make lasting memories with their child. Fundraising and searching for clinical trials or forms of treatment can […]
“The fact that we focus on the families as well goes to show how personal this organization is. It’s thinking about the details that so many other foundations don’t even touch on. I’m so proud of it.”
DIPG is a wretched illness that takes children away from their families too quickly. Unlike many other cancers, chemotherapy and radiation often merely prolong life rather than save it. However, one little girl and her family in New Zealand took a different approach. Elyse Johnson is a sweet, loving little girl who was brought into […]
Valentine’s Day is a day when people celebrate their loved ones and is celebrated annually on February 14th. This holiday falls on a Sunday this year, which means that there is a whole day of celebrating with your kids. Here are some ideas on how to make memories with your children while staying safe during […]
“Success is, to me, being healthy, having your family all around you and being able to sustain yourself in this society. With much love and happiness for all.”
Emily Hood was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in February of 2019. As a junior in high school and being only 17 years old at the time, this was a shocking diagnosis. Where most people would have reacted with anger or bitterness, Emily described feeling calm. She said she was ready and didn’t […]
“New Year, New Me!” We hear it everywhere this time of year, but how do you really make the best of the new year? Here are 5 ways to move Full Steam Ahead through 2021! Take Care of Yourself In the hustle and bustle of life we often forget to take care of ourselves mentally […]
Two important organizations that are currently making a difference in the DIPG community are The Marc Jr Foundation and the Children’s Brain Tumor Foundation. Both of these organizations have teamed up to provide support for parents who have lost a child to DIPG. This bereavement group gets together over a monthly group call and offers […]
Diffuse intrinsic pontine glioma is a brain tumor found in a part of the brainstem called the pons. The pons controls vital functions such as breathing, sleeping, swallowing and regulating the heart rate. It is also where many important signals pass from the brain to the rest of the body. DIPG brain tumors are usually […]
