Cristian Rivera born 9/13/02 and passed away in the loving arms of Mommy and Daddy at around 6am today. Cristian’s blood pressure dropped so much, his fever was so high and his heart gave up.
Cristian’s heart rate is very high at 195-217. Normal is 90. Cristian’s fever is 103-104. We are putting ice packs on him. Cristian is on the full Vent. Cristian has gotten a lot of visitors.
I slept in the bed with Cristian last night and noticed that he was breathing on top of the vent. Cristian is fighting, he truly is. I believe Cristian knows I am here so I spoke with Cristian and Prayed with him.
The Vent is pretty much doing all the breathing for Cristian. Cristian had to get a blood transfusion. Many friends and relatives came from all over to show support.
Joe, Dylan’s father (www.saveourdylan.net), came to visit Cristian at Memorial Sloane Kettering today. Joe is an amazing person and has been blessed by God. As you know from the past journal entries Dylan is a boy that was diagnosed on 01/22/04 with Pontine Glioma and has been healed.
Cristian just got his MRI. We will have results on Friday Morning. Cristian is back on the full vent and no longer on C-Pap. I appreciate all the prayers. Let’s Pray for positive MRI results.
Cristian’s vent went from reading 10-12-14-16-18, etc… At around 4:30pm Cristian was put on C-Pap trial. Dr. Bob and Walker spoke about what is going on and both feel that the MRI, which is now definitely scheduled for 8pm tonight, is a very important one.
Doctors Walker, Pyne, Velaquez, and Bob spoke with me today on conference to discuss a Move Forward Game Plan. Dr. Bob, as you might know from our past Journal Entries, was the Doctor that is credited for helping Dylan (www.saveourdylan.net) combat Pontine Glioma.
Cristian was moved to Memorial Sloane Kettering’s POU-(Pediatrics Observation Unit) where they hope to soon start doing C-Pap trials, perhaps on Wednesday. C-Pap is when the vent is solely assisting Cristian’s respiration, but Cristian would be pretty much breathing on his own.
Cristian was in and out. His heart rate went up and down but for the most part he showed improvement. Doctors think his Trach might have caused Sundays episode.