Monday 3rd of October 2011
This weekend I received devastating news from Puerto Rico. My 17-year-old godson, and JC and Cristian’s godbrother, Joshua Melendez had his life taken much too soon. He was such a great kid with so much talent. He was very special and my heart goes out to him.
Thursday 22nd of September 2011
The past week has had a lot of ups and downs, but one thing has remained constant—my quest to cure DIPG. Everything that has happened this week has reminded me of what I’m fighting for and how important it is that I never waiver in my quest.
Monday 19th of September 2011
The morning of Saturday September 17th, I drove for three hours to Scranton, Pennsylvania for Aimee Dickey Childhood Cancer Walk/Fun Day put on by Aimee’s Army.
Tuesday 13th of September 2011
Last night was the Third Annual Cristian Rivera Foundation Gala, where so many family members, close friends, committee members, supporters and DIPG families came together to remember and honor Cristian on the day before what would have been his 9th birthday.
Wednesday 7th of September 2011
The Third Annual Gala is less than a week away. I have been working so hard to make it a success. Each year so far has been an improvement on the last and I want this year to be the best one yet.
Tuesday 23rd of August 2011
Please take a moment today to say a prayer for young Jordan Malave. Jordan will undergo a shunt surgery, performed by the doctor supported by the Cristian Rivera Foundation, Dr. Mark Souweidane.
Tuesday 16th of August 2011
On Broken Wings to Soaring High
I may be a stranger to some of you, or some of you may have wondered where I have been? My name is Jenelle, I am Cristian’s Mommy. I never left, I have always been in “my space” mourning the loss of my son and continuing his legacy in the way I deemed best.
Thursday 28th of July 2011
Today Cristian has blessed me once again. A dream that I’ve had for a long time has come to fruition. It’s been a long time coming and when it finally launches, I will use this venture as an instrument to help our cause of curing DIPG for good.
Monday 25th of July 2011
Monday, July 25 marked two and a half years since Cristian earned his wings and left this world for Heaven. He has been an amazing presence in my life, more so in the last few months than ever before.
Friday 24th of June 2011
On Tuesday, June 21st, I was reminded all too well that just when you think a child with DIPG is doing good, the disease gives you an unpleasant surprise. Jordan Malave, who has now had DIPG for almost three years, is starting to decline.