On Tuesday, June 21st, I was reminded all too well that just when you think a child with DIPG is doing good, the disease gives you an unpleasant surprise. Jordan Malave, who has now had DIPG for almost three years, is starting to decline. I have been in touch with Steve Czech and I’ve asked him to contact Dr. Mark Kieran who is the doctor the Mikey Czech Foundation works with. I’ve also reached out to Dr. Mark Souweidane, who is the doctor the Cristian Rivera Foundation works with. I am determined to do everything I can to save Jordan. Each time I go through a child regressing from DIPG I live the nightmare I experienced with Cristian all over again.
Yesterday, Thursday June 23rd, I had the pleasure of seeing Jordan after he graduated from Kindergarten. Jordan is such a wonderful boy with loving parents. I will do everything to get through this temporary bump in the road. I can’t wait until the day that the only things I write in this journal are the sweet messages to Cristian and updates on how great it is that yet another child is still doing well after ten years.
John “Gungie” Rivera
Forever Cristian’s Daddy
Cristian Rivera Foundation © 2020. All Rights Reserved. Designed by Rivera Marketing and Media Group
No Refunds. Payments referred to herein shall not be refundable under any circumstances, including but not limited to the termination of this Agreement for whatever reason.
Shipping: Business days are Monday through Friday, excluding holidays determined by common and other freight carriers. For each individual order, we select a shipping method that will provide both value and speedy delivery. Standard shipping methods include the United States Postal Service. Please note that customers outside Canada shall be responsible for the payment of any import taxes, duties, tariffs or similar charges which may be imposed over and above ordinary shipping charges.