Category: Journal

Wednesday 25th of July 2012

Today marks three and a half years since my son Cristian left me for heaven, and today I’ve had to say goodbye to another person I love. This morning, Wednesday, July 25, 2012, my grandmother, a woman who raised me as a child, passed away after five years battling with cancer and dementia.

Thursday 14th of June 2012

It’s been a long time since I last had the chance to write in this journal and so many amazing things have happened since then. I am the associate producer of a play called DC-7: The Roberto Clemente Story, which played at Cristian Rivera Foundation Committee Member Miriam Colon’s Puerto Rican Traveling Theatre.

Wednesday 18th of January 2012

January has always been a difficult month for me. Cristian was diagnosed in January, on the 21st or 22nd of 2007, and Cristian passed away on January 25th, 2009. Plus there have been other personal traumatic events that occurred in January over the years, but already January 2012 is looking to be different.

Friday 30th of December 2011

Today Dr. Souweidane let me know that his DIPG clinical trial has finally gotten approval from the FDA. I was so happy to hear this. We’d been waiting so long for this final approval and now Dr. Souweidane and his team can start preparing for the trial. By the last week of January, he expects to operate on his first patient.

Friday 16th of December 2011

The holidays are a very difficult time of year for me because Cristian isn’t here to celebrate them. It’s hard to believe sometimes that he’s really gone. This week I received an email from DIPG parents who is going through their first holiday season without their son.

Sunday 4th of December 2011

Yesterday, Saturday December 3, was the first ever Cristian Rivera Foundation Paintball Tournament at NYC Paintball in Long Island City . Committee Member Robert Vazquez organized the event, which was not only a big success but also a lot of fun. Team AVS

Thursday 10th of November 2011

My heart is heavy with news that two DIPG angels earned their wings, not only in the same week but on the exact same day. Octavio and Madi lost their brave battles with DIPG, leaving their parents with indescribable pain and anguish. It’s so frustrating for me to read those emails.

Tuesday 25th of October 2011

Whispers to Heaven

Call me crazy, but I truly believe my son is my Guardian Angel. I speak to Cristian often. I speak to him when I need courage, when I feel sad, when I miss him. I ask Cris to help others all the time too. Like for my best friend, Jackie.