Cristian went to Puerto Rico for 9 days and had a blast, he put on weight because Jennelle’s family spoiled him with the best foods. I took a trip to Puerto Rico, to spend a few days with Cristian and when I got there I noticed he looked great!. Better than ever!.
Today Cristian had his routine bi-weekly treatment of Bevacizumab and Irinotecan. Everything went well. Cristian and Jenelle are going to Puerto Rico this Sunday for 9 days and 9 nights, they are very excited.
Today was Cristian’s MRI and the results came back. The tumor was stable (no growth but there was no decrease), after speaking with doctors we came to a conclusion to leave Cristian on the current treatment, Bevacizumab and Irinotecan.
Today Cristian had his treatment (Bevacizumab and Irinotecan). Jenelle spoke to Dr.Khakoo and voiced our concerns about Cristian’s increased weakness on his right side. Dr.Khahoo has put Cristian back on his steroids (Dexamethasone), plus (Lansoprazole) which is to coat his stomach.
Today Jenelle and I met with Dr.Dunkel of Memorial Sloan Kettering. After speaking we all agreed that we should keep Cristian on his current regiment of Bevacizumab and Irinotecan.
Today Cristian had another MRI. It was the second MRI since he began the new treatment on Thursday 2/28/08, consisting of the Combination of Bevacizumab and Irinotecan. When Cristian had his first MRI on 4/14/08 while on this combination of Bevacizumab and Irinotecan, there was a decrease in the tumor’s size by almost 15 percent. We were so happy.
Cristian seems to have no desire to eat. It is a struggle to get him to eat. In my opinion, his right side is also getting worse in my opinion. Besides that Cristian is living a normal life. Cristian isn’t going to school because of his inability to go consistently but he reads and writes and is very smart.
(This week Jenelle’s friend Maryanne set up a healing mass for Cristian. It was incredible, the Pastor seemed to be able to look at people and tell them what was wrong with them and then through the power of God and Faith Heal them.
Cristian enjoys his physical therapy. He calls it exercise.
Cristian is not eating at all. If he eats two meals a day it is a lot. It is a struggle to get him to eat right. We tried a Gluton Free diet and he wouldn’t eat anything and now a sugar free diet and the same.