I woke up today hoping I had a nightmare the past 2 days, and I didn’t. I spent hours and hours calling all the people I know in the Medical Field. I am seeking 2nd opinions. I then saw Cristian. Oh my God… I can NOT imagine losing my Son. This is insane. I can NOT allow this to happen. I must do something.
I am starting a Journal Today- I went to MSK to meet with the Pediatric Neuro-Oncology Team. They confirmed what we were told yesterday. Cristian has Pontine Glioma (DIPG). It is a Brain Stem Tumor. Inoperable… Very little Treatment Options.
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