I am starting a Journal Today- I went to MSK to meet with the Pediatric Neuro-Oncology Team. They confirmed what we were told yesterday. Cristian has Pontine Glioma (DIPG). It is a Brain Stem Tumor. Inoperable… Very little Treatment Options. I was told my Son has 9-18 months to live… How could that be? I can NOT except this! I will not allow my Son to DIE. As the Dr’s told me the news I watching my Beautiful Boy riding a scooter in the other room… This is surreal. I Broke Down… We have an appointment this Fri to have a Me di-Port put on Cristian so they can infuse meds. After the Hospital, I went to my office to tell my Staff the news and to figure out how the they can continue working on the existing projects with out me. We just started so many projects. They will have to make it happen with my limited involvement. I then went to pick up Cristian and I took him to Toys r Us in Times Square and just watched him play with Trains. This CAN’T be possible….
John “Gungie” Rivera
Forever Cristian’s Daddy