Rena Kliot
“The fact that we focus on the families as well goes to show how personal this organization is. It’s thinking about the details that so many other foundations don’t even touch on. I’m so proud of it.”
Category: CRF News
Beyond the Tumor: Elyse vs. DIPG
DIPG is a wretched illness that takes children away from their families too quickly. Unlike many other cancers, chemotherapy and radiation often merely prolong life rather than save it. However, one little girl and her family in New Zealand took a different approach. Elyse Johnson is a sweet, loving little girl who was brought into […]
How to Celebrate Valentine’s Day as a Family
Valentine’s Day is a day when people celebrate their loved ones and is celebrated annually on February 14th. This holiday falls on a Sunday this year, which means that there is a whole day of celebrating with your kids. Here are some ideas on how to make memories with your children while staying safe during […]
Aldo Marin
“Success is, to me, being healthy, having your family all around you and being able to sustain yourself in this society. With much love and happiness for all.”
5 Ways to Move Full Steam Ahead in the New Year
“New Year, New Me!” We hear it everywhere this time of year, but how do you really make the best of the new year? Here are 5 ways to move Full Steam Ahead through 2021! Take Care of Yourself In the hustle and bustle of life we often forget to take care of ourselves mentally […]
We Love You 10! February 2021 Newsletter
February, the month of love, is here. Through any adversity, love and compassion have always been the forces to get us through. This month we’re sharing stories of how caring for others is the fuel behind changing the lives of those affected by DIPG. We introduce you to our two new Board Members who joined […]
Marc Jr Foundation and Children’s Brain Tumor Foundation Host Monthly DIPG Parent Talk
Two important organizations that are currently making a difference in the DIPG community are The Marc Jr Foundation and the Children’s Brain Tumor Foundation. Both of these organizations have teamed up to provide support for parents who have lost a child to DIPG. This bereavement group gets together over a monthly group call and offers […]
Working Towards a Cure: Exploring 2 Potential DIPG Treatments
Diffuse intrinsic pontine glioma is a brain tumor found in a part of the brainstem called the pons. The pons controls vital functions such as breathing, sleeping, swallowing and regulating the heart rate. It is also where many important signals pass from the brain to the rest of the body. DIPG brain tumors are usually […]
Beyond the Tumor: Fighting DIPG as an Adult
In June 2020, Maria Kuenster was diagnosed with Diffuse Intrinsic Pontine Glioma at the age of 22. She had recently graduated from the University of Minnesota with a Bachelors of Science in Health Science and was looking forward to a job opportunity in Chicago. Unfortunately, her life was turned upside down when she went in […]
Remembering Cristian Alexander Rivera
Today marks twelve years since the passing of my son Cristian Alexander Rivera. Cristian is remembered for all of the love and joy that he brought to me and everyone he met. I reflect on some of these cherished memories today. Cristian’s legacy continues to live on through the Cristian Rivera Foundation as we work […]
