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Cristian had therapy at the hospital today and afterwards Dr Khakoo saw him and called me and expressed her concerns. We will meet Thursday to further discuss the options available for Cristian.

I picked up Cristian today to take him to a Reiki appointment. I have been in touch with a Master Reiki woman in Long Island and we decided to start Monday. If anyone knows about Dylan a 6 year old boy with Pontine Glioma just like Cristian. Dylan was diagnosed January 22nd,2004, when he was 18 months old. Dylan was diagnosed with 9 to 15 months to live.

Today Dr.Khakoo Saw Cristian. They did a cat scan. The scan showed that the ventricles are smaller which means the shunt is working. Cristian’s eyes and his walking are really bad and the doctors need to figure out why is Cristian getting worst neurologically yet the shunt is working.

Today Cristian had his 6th Birthday party. He was so happy to get the Nintendo Wii that i got him. Cristian’s eyes didn’t seem to improve nor did his walking. I am worried. I emailed the team at Memorial Sloane Kettering about my concerns.

Today is Cristian’s 6th Birthday. The doctors feel he is well enough to be released.

Today Cristian had an MRI in order to further determine why the liquids aren’t draining. At this point Cristian’s eyes are crossed and can’t even keep balanced.

September 11th,2001 the World Trade Center’s Twin Towers were hit by planes in a terrorist act. September 11th 2008 I was hit by something as well, “Bad News”. Dr Khakoo informed me that after examing Cristian she said his right side and eyes are getting worst.They did a scan and the fluids are not draining.

Cherly Fischer responded to my e-mail stating that they will exam Cristian on Thursday 9/11/08 and the move foward game plan was to put Cristian back on the Avastin and Irotecan starting this Thursday 9/11/08.

Cristian spent the night with me on Saturday and Sunday and I am very concerned because the weakness on his right side and also his eyes seem to be getting worst. The surgery was suppose to improve this.

Cristian was released today. He is walking around a bit, but with difficulty. I visited Cristian at home and although he was still unable to get around he was still his bossy self and demanded me to take him home with me.