Foundations Love4Lucas Foundation: A Legacy of Hope and Advocacy The Love4Lucas Foundation, inspired by the life and spirit of Lucas Harashima, is on a mission to raise awareness about D.I.P.G. (Diffuse Intrinsic Pontine Glioma) and support families affected by this devastating pediatric brain tumor. Founded by Lucas’s parents, Hide and his wife Sansan, the foundation […]
Diagnosis In 2020, Emiliano Bermejo’s parents sought medical care after he exhibited several troubling symptoms. Initially, doctors dismissed his issues with walking and swallowing as minor concerns, but it later became clear there was a more serious diagnosis at hand. After seeing Emiliano’s hands shake uncontrollably, his parents took him to a neurologist who was […]
"Optimism is the faith that leads to achievement; nothing can be done without hope and confidence"– Helen Keller A Message From our Founder, John "Gungie" Rivera So heartbroken because of the passing of a Warrior whose smile brightened up even the London Sky. Jesselyn Silva, gained her angel wings this morning. Gained? Does any child […]
Date of Birth: March 14, 2006
Date of Diagnosis: July 2021
Earned Her Wings: August 13, 2024
When Nicole Puglisi was first diagnosed with DIPG in January 2016, it came as a part of a shocking chain of events. After being involved in a car accident, Nicole received an MRI to examine her injuries. Along with it, doctors also discovered a tumor in her brainstem. Although she had no symptoms at the time, Nicole would later feel its effects almost exactly 2 years later. In the meantime, Nicole pushed to continue her college […]
We are also excited to announce that actor and comedian Kenan Thompson represented CRF as he starred on ABC’s “Who Wants to Be a Millionaire?” this July. As a board member, Kenan competed in our honor against his former co-star Kel Mitchell, as they both aimed to raise the most money. We are thrilled to announce that Kenan won thousands in funding for CRF, which will be directed toward research, clinical trials, and family support for our warriors.
"Our memories of the ocean will linger on, long after our footprints in the sand are gone." Summer is finally here! Whether you’re looking to relax on the beach, explore the great outdoors, or simply enjoy the warmth of the sun, summer provides endless opportunities to make lasting memories. But that’s not all—summer is also […]
A recent MRI scan revealed there has been no activity which is amazing news. This marks nearly 12 years of Lisha living DIPG free. Lisha is the first survivor of those treated by our medical partner, Dr. Mark Souweidane’s, C.E.D. clinical trial, which we fund. She lives as an inspiration to others who are battling […]
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