October 8th 2008
Dr.Khakoo called us and told us that the Panitumumab trial will no longer be open due to a child having a seizure. The other two options Etoposide,Valproic Acid and Derivatives are available.
October 7th 2008
Jenelle took Cristian to Physical Therapy today. Jenelle said Cristian walked two times with the Physical Therapist. Today we were supposed to hear whether or not the Panitumumab trial drug would be open for Cristian but we didnt hear anything.
October 6th 2008
Today I took Cristian to both his Chiropractor and Reiki appointment . Both went well. Cristian was in good spirits.
October 4th-5th 2008
Cristian stood with Jenelle this weekend because his sister was going to be with them. Cristian was in good spirits.
October 3rd 2008
Today Cristian went to Dr.Bob, Dr Bob is the Chiropractor that treats Dylan. Cristian took x-rays. Dr Bob showed me how he can release pressure around the stem of Cristian’s Brain. Cristian will see Dr Bob every Monday, Wednesday and Friday.
October 2nd 2008
Cristian was in good spirits today. He usually hates taking his Protocel, but today he did. Cristian and I had prayed before we left the house in the afternoon. I am happy to report that his spirits are great.
October 1st 2008
Cristian stayed with me tonight. We have been giving him Protocel. Protocel is one of the primary things Dylan’s father attributes to Dylan’s success, along with Reiki, Ray and a good chiropractor. Cristian’s spirits were “great”.
September 30th 2008
We met with Dr.Khakoo and she went over the same options as given to Jenelle on Monday by Dr. Dunkle. We decided to hold off on giving Cristian anything until Tuesday October 7th, which is when we find out if Panitumumab will become available, if Panitumumab doesn’t become available on Tuesday October 7th we will go with Etoposide or Valproic Acid and Derivatives.
September 29th 2008
Jenelle took Cristian to see Dr.Dunkle and discuss the options that are available. The options are Etoposide or Valproic Acid and Derivatives. Etoposide is a chemotherapy drug and Valproic Acid and Dervatives is a medicine that is used to prevent or treat seizures.
September 28th 2008
Cristian slept a lot. He has been sleeping more than usual. His friend KC came to visit him. They played with Cristian’s Thomas battery operated trains and watched tv. I took Cristian home in the evening. Cristian is still not himself.
