Today Cristian had his weekly occupational and physical therapy then Jenelle and I met with the Surgeon who would do the procedure on Cristian, Dr.Souweidane. He gave us two options, option A – A shunt would be inserted in Cristian’s brain the size of a spaghetti, which will drain the fluids that have built up in his brain and relieve the pressure which are affecting his vision, walking and causing weakness on the right side of his body.

Today Cristian had an appointment with the Optician. The Optician said his vision was good but his right eye muscle was weak and Cristian cannot move it side to side or up and down due to the pressure the tumor was putting on the nerve that controls Cristian’s right eye.

Today I received a phone call from doctor Gershon he informed me that after taking a closer look at Cristian’s MRI, from Thursday August 21st, he noticed fluids building up in the center of his brain.

Today I received a phone call from doctor Gershon he informed me that after taking a closer look at Cristian’s MRI, from Thursday August 21st, he noticed fluids building up in the center of his brain. This is a very serious problem.

We noticed Cristian’s right side has been weaker, he has also been tired. He has been sleeping alot. Cristian’s right eye looks more crossed than ever. Jenelle and I were worried about this, so we set up an appointment for Tuesday August, 19th, upon his doctors examing him they agreed with the symptoms that brought us to make the appointment.

Cristian went to Puerto Rico for 9 days and had a blast, he put on weight because Jennelle’s family spoiled him with the best foods. I took a trip to Puerto Rico, to spend a few days with Cristian and when I got there I noticed he looked great!. Better than ever!.

Today Cristian had his routine bi-weekly treatment of Bevacizumab and Irinotecan. Everything went well. Cristian and Jenelle are going to Puerto Rico this Sunday for 9 days and 9 nights, they are very excited.

Today was Cristian’s MRI and the results came back. The tumor was stable (no growth but there was no decrease), after speaking with doctors we came to a conclusion to leave Cristian on the current treatment, Bevacizumab and Irinotecan.

Today Cristian had his treatment (Bevacizumab and Irinotecan). Jenelle spoke to Dr.Khakoo and voiced our concerns about Cristian’s increased weakness on his right side. Dr.Khahoo has put Cristian back on his steroids (Dexamethasone), plus (Lansoprazole) which is to coat his stomach.

Today Jenelle and I met with Dr.Dunkel of Memorial Sloan Kettering. After speaking we all agreed that we should keep Cristian on his current regiment of Bevacizumab and Irinotecan.