September 13th 2008
Today is Cristian’s 6th Birthday. The doctors feel he is well enough to be released.
September 12th 2008
Today Cristian had an MRI in order to further determine why the liquids aren’t draining. At this point Cristian’s eyes are crossed and can’t even keep balanced.
September 11th 2008
September 11th,2001 the World Trade Center’s Twin Towers were hit by planes in a terrorist act. September 11th 2008 I was hit by something as well, “Bad News”. Dr Khakoo informed me that after examing Cristian she said his right side and eyes are getting worst.They did a scan and the fluids are not draining.
September 9th 2008
Cherly Fischer responded to my e-mail stating that they will exam Cristian on Thursday 9/11/08 and the move foward game plan was to put Cristian back on the Avastin and Irotecan starting this Thursday 9/11/08.
September 8th 2008
Cristian spent the night with me on Saturday and Sunday and I am very concerned because the weakness on his right side and also his eyes seem to be getting worst. The surgery was suppose to improve this.
September 1st 2008
Cristian was released today. He is walking around a bit, but with difficulty. I visited Cristian at home and although he was still unable to get around he was still his bossy self and demanded me to take him home with me.
August 31st 2008
Cristian had many visitors today. They moved him out of a private room into a room with another patient.Cristian had a few episodes where he had severe pain. The nurses had to keep giving him Morphine. I didn’t want him released today.
August 30th 2008
Jenelle spent most of the day with the baby. After going home at 12 noon to sleep and shower I got to the hospital at 7pm. Just moving Cristian hurts. His grandmother spent the night and said the morphine made Cristian very talkative (LoL). I told Jenelle that i wasn’t uncomfortable with Cristian being released Sunday.
August 29th 2008 (Evening)
I stayed in the hospital overnight. It was so hard for me because you cold hear his pain in his breathing. Many people visited and showed support
August 29th 2008
Today Cristian had the surgery. They Implanted the Shunt. When Cristian came out of surgery and was in recovery he was very talkative. Cristian was very drugged up. Cristian complained about pain in his head and stomach which is the two places he was operated on. He also said he was hungry and he was mad at his mommy for not feeding him (LoL).
