Dr.Khakoo called us and told us that the Panitumumab trial will no longer be open due to a child having a seizure. The other two options Etoposide,Valproic Acid and Derivatives are available. Since Last week I have talked to Jenelle about the possibility of not having Cristian go on these harmful trial drugs for the same reasons that caused that child to have a seizure. I have asked Jenelle to consider it. I strongly feel between the alternative stuff we are doing, we can save our son. I asked for three weeks. There is no rush to put him on Etoposide,Valproic Acid and Derivatives because those trials are open. Jenelle disagrees.

John “Gungie” Rivera
Forever Cristian’s Daddy