On Tuesday May 17th, I attended the Children’s Brain Tumor Foundation’s Ninth Annual Dreams and Promises Gala at the Marriott Marquis in Times Square. It was a beautiful event and it was great to be there with so many other families and doctors dealing with brain tumors. Joe Fay of the Children’s Brain Tumor Foundation was nice enough to introduce me around.

Another Easter has gone by; this is my 3rd Easter with out Cristian. I wish I could say it gets easier. Although he is not with me physically I know he is with me in Spirit. I look forward to the day when I can hold him in my arms again.

This past Sunday, April 17 was the 4th Annual Walk for Health Walk-a-Thon PONTE-EN-FORMA at Roberto Clemente State Park in the Bronx. The organizers of the event, the Diversity Foundation and the National Puerto Rican Parade, chose the Cristian Rivera Foundation and DIPG as the cause that would benefit from the walk.

Today I got a phone call from Jayson Malave, Jordan Malave’s father, telling me Jordan has been losing his balance and one of his eyes has started going inward, just like when Jordan was first diagnosed. Jordan had an emergency MRI today. I went to NYU and saw Jordan and Jordan’s mother.

Organizers of the 4th Annual Walk for Health Walk-a-Thon PONTE-EN-FORMA have chosen the Cristian Rivera Foundation to benefit from the event. All of the proceeds raised will go to us so that we can then give more money to Dr. Mark Souweidane to fund his research trials.