The past week has had a lot of ups and downs, but one thing has remained constant—my quest to cure DIPG. Everything that has happened this week has reminded me of what I’m fighting for and how important it is that I never waiver in my quest.

The morning of Saturday September 17th, I drove for three hours to Scranton, Pennsylvania for Aimee Dickey Childhood Cancer Walk/Fun Day put on by Aimee’s Army.

Last night was the Third Annual Cristian Rivera Foundation Gala, where so many family members, close friends, committee members, supporters and DIPG families came together to remember and honor Cristian on the day before what would have been his 9th birthday.

The Third Annual Gala is less than a week away. I have been working so hard to make it a success. Each year so far has been an improvement on the last and I want this year to be the best one yet.

Please take a moment today to say a prayer for young Jordan Malave. Jordan will undergo a shunt surgery, performed by the doctor supported by the Cristian Rivera Foundation, Dr. Mark Souweidane.