Gloria Garcia Castellvi, a friend of Juan Manuel who lost her little girl Alicia to DIPG, came all the way from Spain to see me on Tuesday, December 6. Gloria is very involved in the DIPG community in Spain and hosts a DIPG symposium there every February.

Yesterday, Saturday December 3, was the first ever Cristian Rivera Foundation Paintball Tournament at NYC Paintball in Long Island City . Committee Member Robert Vazquez organized the event, which was not only a big success but also a lot of fun. Team AVS

With great sadness, I announce that Heaven gained another DIPG Angel on Thursday November 17. Jordan Malave passed away at 6:30 on Thursday morning, bringing to an end his three-year battle with DIPG.

My heart is heavy with news that two DIPG angels earned their wings, not only in the same week but on the exact same day. Octavio and Madi lost their brave battles with DIPG, leaving their parents with indescribable pain and anguish. It’s so frustrating for me to read those emails.

This weekend I received devastating news from Puerto Rico. My 17-year-old godson, and JC and Cristian’s godbrother, Joshua Melendez had his life taken much too soon. He was such a great kid with so much talent. He was very special and my heart goes out to him.