Category: Journal

Cristian got his foot braces today. This will keep his feet straight. Cristian will also soon get a hand brace for his right hand.

Cristian is Alert and isn’t sleeping at all. I don’t think Cristian is getting more than 2-3 hours of sleep combined in a 24 hour period. The Doctors think Cristian might be suffering from Post Traumatic Stress.

Today Cristian had a pretty good day. He seemed to be more alert. The doctors have him off the sedation. His chest x-rays seem ok. We bought decorations and had a super hero come visit Cristian plus take pictures with him.

Cristian has done so well with the C-Pap test. Normally they are conducted for 30 minutes every 4 hours but Cristian has even gotten some for 45 minutes and even an hour. The doctors felt that he did so well on the C-Pap test that it was time to extabate him.

Cristian was very alert today. I read books to him, massaged him and we watched his favorite dvds. Cristian seems to be doing very well with the C-Pap test. I was with Cristian 8am to 2pm and again 8pm to 8am Sunday night.

Cristian had many visitors today. One in particular which made him very happy was my brother Jonathan. Cristian isn’t very responsive. They are still running C-Pap test. Today I read Cristian a few books and put a few of his favorite dvd’s on.

Cristian is still pretty unalert. He is still doing well with his C-Pap test. They do a chest X-ray daily and its seems to be ok. Cristian has alot of secretion. Cristian is constantly being suctioned.

I saw Cristian for 3 hours today. Cristian is pretty much the same. They are running C-Pap test every 4 hours for 30 minutes Cristian seems to be tolerating the test.

Cristian’s surgery appeared to go well. Dr Soweidane straightened out the loop in the tubing from the shunt. The doctor did not have to do an incision into Cristian’s head, just another incision in his belly area to pull the tube down.

Dr.Soweidane said that the Catscan is showing a loop on the tubing coming from the shunt. Cristian will have to go into surgery in a few to rule that out, as the cause of the problem, Cristian is having. There doesn’t appear to be excess fluids building.