Cristian has done so well with the C-Pap test. Normally they are conducted for 30 minutes every 4 hours but Cristian has even gotten some for 45 minutes and even an hour. The doctors felt that he did so well on the C-Pap test that it was time to extabate him. Cristian was extabated and lasted 30 minutes without support of any kind, so he had to get the mask and went 90 minutes while on the mask. We had to make a decision whether to intabate him or not. We intabated him. Today was such a major set back. My baby cannot breathe on his own. The doctors feel that the disease Pontine Glioma has disabled his ability to breathe like it has disabled him to walk, affected his eyes and right arm. This is so hard for all of us. Cristian is now intabated and sedated. Jenelle and I have decided to allow Cristian to get a trach. Doctor Howell feels strongly that Cristian will be able to breathe with the trach. We will not give up our faith.
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