Category: Daddy

Cristian has been taken off Steriods. This decision came from the team at Memorial Sloan Kettering. We didn’t think the steroids were effective anymore anyway.

Even though we know Cristian got great results on this first MRI on 4/14/08, while on the new treatment, we are concerned with Cristian’s weakness on his right side.

Cristian Had his first MRI since being on the new treatment (The combination of Bevacizumab and Irinotecan). We were very pleased with the results. Cristian’s Tumor decreased in size approximately 15 percent!

Our dear friend Ralph Mercado Sr. Had fellow Christian Ismael Miranda (also the salsa signer from Fania Records) visit him at home. Ismael Miranda along with a fellow Pastor prayed for Ralph Sr. after the prayer was over he declared Ralph Sr.

Today was Cristian’s MRI, and it read that his tumor has not grown and is currently stable. We believe that the new treatment is helping. Like I mentioned before this treatment is not a cure. My hope is that this medicine will help Cristian until we do find a cure.

First and foremost I would like to thank you for taking the time to stop by our page. This is my first time writing a journal entry. It has been 9 months since our son was diagnosed.

On Aug. 2nd, 2007 Cristian received an MRI which showed that his tumor was beginning to grow again. Because he had already finished his maximum amount of radiation in the previous months, it wasn’t an option to do it again. Honestly we had little options left. After speaking with Dr. Stephen Gilheeney one his doctor’s from the Neuro-oncology team at Memorial Sloan Kettering.

Cristian has gained so much weight because of the Steroids… He doesn’t want to play with his trains. He just eats and watches some TV and wants to stay in the room with the Curtains drawn.

Cristian was operated today. He had the Medi- Port put in. Cristian was gasping for Air. He didn’t react well to the Anastasia. I couldn’t help my Son. I watched him gasping for air as if he was going to Die…. I couldn’t stop Crying…. This is Hell…….

I went to NYU filled with hope. I meet with Dr’s that were referred to me by close Friends… The Dr’s Say exactly what I was told at MSK….. I feel defeated… I must keep pushing forward…