Meet Alexa Huber, a 29 year old stay-at-home mom who was diagnosed with D.I.P.G. in the Spring of 2020. Alexa described her initial reaction when diagnosed as feeling “very lost. There was nothing out there about adults who had brainstem gliomas.”
Since her diagnosis, D.I.P.G. has affected her in many different ways including emotionally and physically. Her physical symptoms have come in the form of double vision, loss of peripheral vision, and weakness in her left side that resulted in the need for a foot brace and the inability to type with her left hand. Through it all, Alexa has remained positive and is always looking towards the future.
Around the time of her diagnosis, she said she would take every day one hour at a time, thinking about her next hours rather than her next weeks. To those who are currently battling D.I.P.G., her advice is, “Keep going…Take every single little win that you can.”
It was right before her son’s second birthday when Alexa was first diagnosed. She had to deal with the terrible thought of not being there for her son. Thankfully, she survived past the 18 months she was given and now he is 5 years old, starting kindergarten, leaving Alexa at home to enjoy one of her favorite hobbies, crafting. During her free time she enjoys sewing, crocheting, and gardening but most of all running, which she does not really need her foot brace for anymore. Her family loves visiting Disney World where she also partakes in running half marathons at.