Saturday 7th of November 2015

My Dear Son Cristian, it’s been over a year since I last updated this journal. There is not a day that goes by that I don’t think about you. I think about all the amazing memories we built. I think of our times at the Victorian Gardens in Central Park. I think about us playing with your trains, watching you ride your Jeep and Fire Engine. There are countless great memories. But then I cant help visioning you sick and suffering. I have never experienced a helpless fear like the one I experienced while you were sick. I cannot stop thinking about the look in your eyes and how I watched you suffer and gasping for air before being intubated. I am so sorry that I couldnt save you from the pain and suffering.

Cristian, I meet DIPG kids often and I unfortunately cant help but to see you when I look at them. I continue this fight in your honor. It is easier to walk away but I know I am doing the right thing and that I am making you proud. This years gala, (Gala 7), is just 11 days away and its theme is Heroes. I can’t think of a better theme. Cristian my son, you are my TRUE HERO. Thank you for watching over us. Thank you for visiting me often. Thank you for entering my dreams. Thank you for giving me hope, hope that one day this world will be free of DIPG. Thank you for loving me, and most important of all, THANK YOU FOR SHOWING ME WHAT MATTERS MOST!!, and that is to keep fighting no matter what obstacles are put in front or around you!

I Love you 10! “Forever Your Daddy”
“Full Steam Ahead”