November 1st-4th 2008

Cristian is Alert and isn’t sleeping at all. I don’t think Cristian is getting more than 2-3 hours of sleep combined in a 24 hour period. The Doctors think Cristian might be suffering from Post Traumatic Stress.

October 31st 2008

Today Cristian had a pretty good day. He seemed to be more alert. The doctors have him off the sedation. His chest x-rays seem ok. We bought decorations and had a super hero come visit Cristian plus take pictures with him.

October 29th 2008

Cristian had a Tracheotomy today. This will enable him to breath without the ventilator. The procedure went fine and Cristian has been pretty much out of it. Cristian is not alert. Cristian is sedated. Cristian’s chest X-rays are still fine.

October 27th 2008

Cristian has done so well with the C-Pap test. Normally they are conducted for 30 minutes every 4 hours but Cristian has even gotten some for 45 minutes and even an hour. The doctors felt that he did so well on the C-Pap test that it was time to extabate him.

October 26th 2008

Cristian was very alert today. I read books to him, massaged him and we watched his favorite dvds. Cristian seems to be doing very well with the C-Pap test. I was with Cristian 8am to 2pm and again 8pm to 8am Sunday night.

October 24th 2008

Cristian is still pretty unalert. He is still doing well with his C-Pap test. They do a chest X-ray daily and its seems to be ok. Cristian has alot of secretion. Cristian is constantly being suctioned.

October 22nd 2008 (Noon)

Dr.Soweidane said that the Catscan is showing a loop on the tubing coming from the shunt. Cristian will have to go into surgery in a few to rule that out, as the cause of the problem, Cristian is having. There doesn’t appear to be excess fluids building.