Once again Cristian’s surgery was postponed. The Doctor conducting the surgery doesn’t feel Cristian is strong enough to have the surgery. It is a catch 22, because Cristian isn’t getting enough nutrients from the NG-tube and is getting weaker and the G-tube will get the nutrients to him to make him stronger yet he needs to be stronger before having the surgery to make him stronger.
We met with the surgeon that will be conducting the G-tube surgery today in order for us to fully understand the procedure. The procedure will consist on cutting close to Cristian’s belly button, but on the left side of it in order to have no complication with the shunt.
Cristian is better and isn’t showing any signs of exasperating. I bought Cristian many new DVD’s and we watched them, I also slept with Cristian. I read Cristian a few books and did my normal massage therapy.
We were watching Cristian really carefully because it would be really bad if Cristian exasperates and his vomit goes into his lungs.
Cristian exasperated today. This isn’t good. We have to get his G-tube in as soon as possible to prevent this. When someone with a trach tube exasperates, they can choke on their own vomit.
Cristian Temperature was low today and cultures had to be taken. Cristian had to have his Mediport reaccessed. It took 3 tries to get his Mediport reaccessed. This was so hard for me to watch and even harder for Cristian.
Cristian was supposed to have surgery to have his G-tube put in. Due to Cristian’s Chest x-rays and possibly having pneumonia, the surgery has been postponed until further notice. This Journey has not been easy. We want to thank everyone for their support and prayers.
Cristian was moved late this evening back to Memorial Sloan-Kettering. Cristian is no longer considered an I.C.U. patient. This is a step in the right direction.
Cristian got his foot braces today. This will keep his feet straight. Cristian will also soon get a hand brace for his right hand.
Cristian is Alert and isn’t sleeping at all. I don’t think Cristian is getting more than 2-3 hours of sleep combined in a 24 hour period. The Doctors think Cristian might be suffering from Post Traumatic Stress.