Seeing your child in the hospital is a horrible thing to witness. For Dylan’s parents, this was a reality. Dylan first experienced symptoms of DIPG when she was in daycare and her eye started moving inwards. Her parents went to visit the ophthalmologist, who told them that nothing was wrong. Later on, she began experiencing […]
It’s finally springtime! The snow is melting, the flowers are blooming, and the sun is shining. Oftentimes with Spring right around the corner, spring cleaning starts to pop up in everyone’s mind. Whether it is a deep clean, redecorating, or just a fresh start, spring cleaning can be extremely beneficial for your physical and mental […]
This Sunday marks Daylight Saving Time where we “Spring Forward” an hour. Adjusting to the time change can be challenging mentally and physically. Here are some ideas on how to take advantage of daylight savings this year. Get to Bed Earlier the day before Daylight Saving: Help your body adjust by going to bed a […]
“We live for our children and would do anything in our power to protect them and make sure they have a chance to live out their dreams”
Having a family is awesome! Kids are hilarious, smart, kind and lots of fun to spend time with. They are so creative and there are usually so many things to do together. Now, with most kids being at home all day and unable to see their friends, finding fun things to do as a family […]
March, the month of St. Patrick’s Day and thoughts of Spring has arrived! No matter if you are Irish or not, this month is full of festivities and unusual weather. If you live near our headquarters of New Jersey, you know that the possibilities for snow storms or sunny days are equally high. We are […]
Last week we were able to catch up with Lisa Ward, the mother of our dear friend and DIPG warrior Jace. For those of you who may remember, Jace attended our 11th Annual CRF Celebrity Gala in November of 2019 and blew the crowd away with his motivation and charm. He was diagnosed with DIPG […]
Diffuse Intrinsic Pontine Glioma is a type of cancer that involves highly aggressive tumors located in the brainstem. It impacts many of the body’s functions such as breathing, eating, and movement. Around 300 children are diagnosed with DIPG in the United States every year. When diagnosed, most are given 9 to 12 months to live. […]
DIPG is a horrific brain tumor that is a death sentence for a child who has barely lived their life. The average survival time after diagnosis is 9 months. These 9 months are crucial for loved ones to make lasting memories with their child. Fundraising and searching for clinical trials or forms of treatment can […]
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