Tuesday 5th of November 2019

Dear Cristian,

I know I haven’t written in the Journal in quite a while but there isn’t a day that goes by that I don’t think about you.  I’ve been working so hard to make your foundation amazing.  I work everyday, with passion, to end the disease that took you from us.  Everyday, we make a little progress. Like the trains that you loved so much, we keep moving forward. 

Your sister is 5 now and she reminds me so much of you.  She has your spirit, your intelligence, and your love. 

You will be glad to hear that the trial we fund now has 3 children in remission.  That’s right!  There are 3 children who look at you as their inspiration.

I miss you very much. I miss all the fun things we did together. I miss massaging your feet and playing with you and your trains. Sometimes when I am up working late at night, I look at pictures of you and smile, but sometimes cry.  It’s been hard living in a world without you, but I know you are looking over all of us.

I will never stop working as hard as I do until a cure for DIPG is found.  The foundation in your namesake will contribute a pebble to the mountain of a cure. Cristian,  I Love You 10!

Forever Your Daddy.