The Cristian Rivera Foundation remembers DIPG Angel, Hope Fuller who earned her wings on March 10th, 2010 after being diagnosed on July 29th 2009. Hope had a true humanitarian spirit and tried to help everyone in any way she could. From lemonade stands for a homeless woman in her neighborhood and for her school, […]
The Cristian Rivera Foundation would like to wish all of our loved ones and supporters a Happy Valentine’s Day. DIPG has taught us how important it is to appreciate those we love, so let us all spend today with the ones we hold dearest to our hearts. Together we will work tirelessly so that […]
On Friday, January 6, Dr. Mark Souweidane performed a DIPG biopsy on Olivia Boccuzzi, who was only 22 months old when she was diagnosed with the disease on September 21 of last year. Olivia’s parents, Enza and Frank, noticed their daughter had a hard time walking and her face was starting to droop. They decided […]
Dr. Mark Souweidane, Director of Pediatric Neurological Surgery, has received FDA approval for a clinical trial for young patients diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). Dr. Souweidane is the Principal Investigator on the clinical trial, which will use a novel surgical technique (convection-enhanced delivery, or CED) to deliver a tumor-fighting agent directly to the […]
Monday January, 9 2012 was a sad day for the entire DIPG community as Heaven gained another DIPG Angel. Eleven-year-old Samuel Tyler Kidd lost his battle with DIPG at 9:30 that morning. His parents, Mark and Mindy, will always remember him as vibrant, fun-loving, caring little boy. He had a huge heart of pure gold […]
Wednesday, January 4, 2012 marked two years since DIPG took the life of an amazing young boy named Javier “Buji” Villamil. During his short life, Buji was a great athlete who loved sports, George Lopez, iCarly and Scooby Snacks fruit snacks. He earned his wings a few months shy of his 12th birthday and will […]
A group of paintballers came together in Queens on Saturday with a mission to remember a little boy who lost his life to a rare illness. Cristian Rivera died in 2009 from pontine glioma, a brain stem tumor which strikes up to 300 children per year in North America and has no cure. The […]
With great sadness, the Cristian Rivera Foundation announced that Heaven gained another DIPG Angel on Thursday November 17. Jordan Malave passed away at 6:30 on Thursday morning, bringing to an end his three-year battle with DIPG. He fought for an exceptionally long time and showed incredible bravery and strength in the face of this terrible […]
John “Gungie” Rivera’s interviewed on Ch 7 News regarding DIPG awareness, the Cristian Rivera Foundation and the upcoming walk-a-thon to benefit the Cristian Rivera Foundation, this Sunday 4/17/11 at Roberto Clemente State Park in the Bronx.