On February 8th, 2019 a bill was brought before the house of representatives to make the day of May 17th “DIPG Awareness Day.” The bill quite plainly laid out the plan for the federal government to designate one day a year to awareness for the aggressive form of brain cancer known as DIPG, as well […]
“I’m a part of this organization because I would never want to deal with this as a parent. Success to me is when we have consistency come out of a trial that’s able to affect a high percentage of kids.”
David and Melissa Landau bid on having dinner with CRF Board Member and actor Luis Guzman during our 11th Annual Celebrity Gala. Last night, they were able to enjoy an amazing dinner together at Il Mulino. As always, Luis was his gracious self, and they had an incredible time. We’re so grateful for their support!
Some patients with DIPG may have issues with moving around and getting where they need to. According to the Weill Cornell Brain and Spine Center, this is likely due to ataxia, which are balance issues that often accompany a DIPG diagnosis, difficulty controlling eye movements resulting in lack of proper perception, or even muscle weakness […]
“If we extend a child’s life at all, whether it’s one day, a few months, or a few years, that is a success. Celebrating milestones is important because it helps us keep our eyes on the progress that is continuing to be made”.
The world was a bluish-white, submerged under cascading waves of fluid light. It shimmered like a curtain fluttering in the wind, twisting and turning the fabric of space. Sights went in and out of view, barely even registering as separate objects. Lights sparkled into view, brief supernovas of energy that blinked out of existence within […]
Having a child diagnosed with DIPG is hard. There are many doctor’s appointments, treatments to get started, possible clinical trials to search for, and so much more. This is a lot for anyone, especially while striving to be a full-time parent while balancing your job and other responsibilities. As your child is receiving treatments for […]
On April 16th, 2018 David Jr. came home from school saying that he had hit his head and he had a headache. Liz recalls that he was acting silly and holding his head to one side, which she thought may have been related to David Jr having torticollis as an infant. She took him to […]
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Spring has finally arrived and that means it’s time for fun, fresh spring recipes! Is your family tired of the same meals during quarantine? Looking for fresh recipes that’ll get your family excited for Spring? Here are some suggestions that’ll get everyone’s taste buds excited after a long, dreary winter. Some of these are great […]
