The week of Oct 1, I had been limping slightly on my left foot/leg (though nothing hurt me.) The same week, I had vomited twice, I had sensitivity to light and sun when I woke up and I seemed to be a bit emotional (crying) for no apparent reason. On the morning of Sunday, Oct. 7th, my parents new something wasn’t right, so they took me to Joe DiMaggio Children’s Hospital to have me checked out. After series of questions and a neurological examination, a cat scan of the brain was immediately done and a mass was detected. A 3 hour MRI of the brain and spine was done later that evening. The tumor was on the stem of my brain and thank God the spine was clear. To no one’s understanding, except for God above, I was diagnosed with an inoperable brain stem tumor called diffused intrinsic pontine glioma.It is malignant, aggressive and it is attached to a major artery in my brain. Thanks to my parents, aunts, uncles, family and friends they have found the very best team of physicians to try and help me. I know they will leave no stone uncovered. We are off to NYUMC and my medical care will be led by Dr Jeffrey Allen (Director of Pediatric Neuro-Oncology), Dr Sharon Gardner(Assistant Director of Pediatric Neuro-Oncology), and Dr. Ashwatha Narayana (Associate Professor of Radiation Oncology). I will be at the Stephen D. Hassenfeld Children’s Cancer Center daily for the next 6 weeks undergoing treatment which includes 30 rounds of focal radiation to the stem of my brain to try to disolve this monster.
My cure, my miracle, and my healing will be from GOD THE FATHER.
I ask everyone to please keep me in your prayers. Please ask GOD to give myself, my family, and everyone who knows me, the strength and resilience to endure and win this battle. My Mom, Dad, and Aunt Michelle will be keeping you up to date through this website.
God bless and thank you for caring and loving me enough to help me beat this.