Cristian Rivera Foundation June 2025 Newsletter/Happy Father’s Day

Drawing by Cristian Alexander Rivera

“When I saw everything that The Cristian Rivera Foundation is doing, when I see that there are now young women who were diagnosed as children but are still alive, that brings me so much hope. And I want other parents to see that, I want them to see there is hope and I’m not alone, and people are fighting for me.”

– Francheska Santos

Happy Father’s Day from the
Cristian Rivera Foundation!

To all the incredible dads, thank you for your strength, support, and unwavering love. To the fathers who’ve lost a child to D.I.P.G., we hold you close in our hearts. To all of our CRF dads, especially John Rivera, Cristian’s devoted father, your courage and relentless fight for your children inspires us all.

Angels

Warriors

Our 8th Annual Full Steam Ahead 5K will be held on Sat June 21st at 9am.

 

This is an amazing event where participants of all ages can run, walk, or jog in person or virtually to help support our mission while enjoying a day of fun, fitness, and community! Register NOW by visiting cristianriverafoundation.org/crf5k/register, or donate by visiting cristianriverafoundation.org/crf5k/donate/

On Sat July 19th, we will be hosting our 9th Annual Flashback Boat Ride!

 

Tickets are $75, so be sure to purchase those soon as this event sells out every year. Purchase your Tickets Here!

 

Funds from ticket sales will fund critical research for DIPG patients and family support.

Join us for our 16th Annual Celebrity Gala on Wed Nov 12th at Cipriani 55 Wall St, NYC!

 

This is our most popular event of the year, and discounted seats are $1,000 through Sun, August 3rd. After that, they will be $1,250.

 

Be sure to take advantage of the discounted price and grab your seats early here!

Watch highlights from the
7th Annual Full Steam Ahead 5k here!

Kenan Thompson is coming to Fanatics Fest.

From sketch comedy legend to baseball talk with the best.

Catch Kenan on the SNY Baseball Night Hall of Fame panel,
Saturday, June 21.

NYC, get ready to laugh

We are so proud to announce that the pre-orders for Kenan’s very first children’s book, “Unfunny Bunny” were phenomenal. Kenan said, “Thank yall so much for all the preorder love surrounding my very first children’s book, UNFUNNY BUNNY!!!
Can’t wait for all the kiddos to check it out!!!”

Follow this link to pre-order

Emiliano Bermejo

We are thrilled to share that Emiliano Bermejo’s most recent MRI shows no tumor growth! Emiliano continues to defy the odds and inspire us all with his resilience. As one of the few long-term D.I.P.G. survivors, he reminds us why we fight every day, for hope, for progress, and for warriors like him.

Darlene Rodriguez
Board Member

June 8th

Carlos Colon
Board Member

June 23rd

From all of us at CRF, we wish you a happy birthday. Without your support and gratitude, we wouldn’t be able to accomplish what we do here. Your dedication means the world to us.
We Love You 10!

Our angels are the brave children who fought D.I.P.G. with unimaginable strength and grace. Though they are no longer physically with us, their spirits remain deeply woven into the heart of the Cristian Rivera Foundation.

This June, we remember and honor the birthdays and Angelversaries of our beloved angels. To the families who carry their loss every day, we hold you close. Your children will never be forgotten.

We share their stories not only to honor their lives, but to remind the world of the urgent need for a cure. Every step we take is in their memory, and for a future where no family has to face this pain.

Before and after Cristian was diagnosed with D.I.P.G., he loved to draw and color, it was one of his favorite ways to express himself. Amazingly, even before anyone knew he had a tumor, Cristian was drawing images that resembled what was later discovered in his brain.

This section is a tribute to Cristian’s creative spirit. We invite you to download and enjoy these coloring pages in his honor, a reminder that even in the face of the unknown, art can speak what words cannot.

Download, color, and create with love, just as Cristian did.

Please Take A Few Minutes To Watch The 4 Videos Below

8th Annual CRF Flashback
Boat Ride Highlights

CRF’s Work/Mission
2024/25

15th Annual CRF Celebrity Gala Highlights

7th Annual CRF 5K
Highlights

Sincerely,
Cristian Rivera Foundation

Founder:
John “Gungie” Rivera

Chairman of the Board:
Melinda Colon Cox

Board Members:
AJ Calloway, Aldo Marin, Berto Colon,
Carlos Colon, Danny Cortes, Darlene Rodriguez,
Edgar Berlanga, Fernando Ferrer, Gio Urshela,
Jarrad Seuferling, John Jellybean Benitez,
Kenan Thompson, Luis Guzman,
Meiling Macias Toro, Malik Yoba, Paul Pristavec,
Rafael Toro, Rena Kliot and Sean Ringgold

Board Friends:
Maggie Meehan, Mark Rosner,
and Michael V. Narvaez

Supporters:
David Rodriguez, Edward Caban,
and Steve Cox

Honorary Board Members:
The Late Anthony Mason
and The Late Miriam Colon

Guidestar

2018, 19, 20,
21, 22,23, 24
Awarded 7 Consecutive Years

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Guidestar

2018, 19, 20,
21, 22,23, 24, 25
Awarded 8 Consecutive Years

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