Cristian Rivera Foundation 2018 March Newsletter

 

Cristian Rivera Foundation
March 2018 Newsletter

March 2018 Newsletter


Cristian Rivera Foundation 2018
March Newsletter

 

With the days getting longer and springtime just around the corner, The Cristian Rivera Foundation is leaping into March with a renewed sense of excitement!  As we forge ahead into a season that celebrates life and regrowth, we ask you to join us in working to save the lives of DIPG children around the world.

Our foundation has a variety of events coming up, including our first ever Cristian Rivera Foundation 5K Walk and Run. The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 08:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand with us by taking a walk or run and help give our children an opportunity to fulfill their dreams.  Let’s cure DIPG together.

Another event you should also be excited about is our 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride on Sat. July 21st.  Join us as the New York skyline serves as a backdrop and music is provided by New York’s top DJ’s.  We also have a live performances by Freestyle Diva Lisette Melendez scheduled and surprise celebrity guests.  Party for a cause with us.

We are also preparing for the release of The Children’s Book, “Cristian’s Journey”, a story inspired by Cristian Rivera.  The book will honor Cristian’s legacy and will educate the public about DIPG and our commitment to curing the disease.  As always, 100% of the proceeds of the book will be donated to Weill-Cornell Medical Center and their clinical trials.

We are also pleased to announce that the 10th Annual Cristian Foundation Celebrity Gala which will take place on Wednesday, November 14th.  Join us as we come together to celebrate a decade of work in the DIPG community and honor some very special people.  This event promises to be our biggest gala yet.

Since the year started, our foundation has been working tirelessly to continue giving DIPG the voice it deserves. As a result of our hard work, The Cristian Rivera Foundation was awarded a Platinum Seal on GuideStar.org. GuideStar.org is the non-profit industry leader in analysis and public information and issues their rating based on transparency and the positive activity conducted in the non-profit community. Not only does our foundation have a Platinum Seal on GuideStar.org, The Cristian Rivera is also the recipient of the 2018 Top-Rated Great Nonprofits Award from Great Nonprofits. As you can see, our foundation takes pride in the work we do and we’re honored to have received such prestigious awards for our hard work, commitment and dedication.

A lot going on at the Cristian Rivera Foundation so mark your calendars for the following special events:

Saturday June 9th, 2018 – 1st Annual Cristian Rivera 5K Walk/Run
Saturday July 21st – 3rd Annual Cristian Rivera Foundation Freestyle Boat ride
November 14th – 10th Annual Cristian Rivera Foundation Celebrity Gala
Summer 2018- Release of “Cristian’s Journey” children’s book

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”
Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Friend Modesto Lacen.

Who is Modesto Lacén.
I’m an actor and producer with 25 years of experience in Theater, TV, Film and Radio in Puerto Rico, United States and Colombia. Besides my artistic career I believe in contributing to society through the work I can do as a responsible citizen, I firmly believe that a better world is possible. Is it for that reason that I’m a proud member of the Board of Directors of Taller Salud in my hometown Loiza, PR and the Cristian Rivera Foundation. 

What does it mean to you to be a part of the Cristian Rivera Foundation?
As the son of a successful owner of various Clinical Laboratories in Puerto Rico, I know the importance of living a healthy and productive life. Been a part of the Cristian Rivera Foundation is rewarding for me because in the effort we do as a Foundation, we are making a real difference in children’s life. The support we give to doctors and the families with children with DIPG is invaluable. 

What is your proudest moment as a Cristian Rivera Foundation Committee Friend?
My proudest moment as a Committee Member was when I had the honor of participating in one of our Galas with the son of one of my heroes, Roberto Clemente Walker. Sharing that special moment with Roberto Clemente, Jr was a pivotal moment that reaffirms my mission as part of the Cristian Rivera Foundation. To be of service for the well being of our society.

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
spaceCommittee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.


Director:

Vicky Estrella

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez, Teddy “Tedsmooth” Mendez and William Pla.
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

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