Winners Are: 1st Prize:2 Premium Tickets to a NY Yankees Game (2025 Season) Avigail (#0887) 2nd Prize:Apple iPad Jarrad Seauferling (#2747) 3rd Prize:$200 Dinner Gift Card to Diner 24 NYC Mark Rosner (#1466) Thank you to all who Participated. It is because of people like you that we are a step closer to D.I.P.G.
Diagnosis In 2020, Emiliano Bermejo’s parents sought medical care after he exhibited several troubling symptoms. Initially, doctors dismissed his issues with walking and swallowing as minor concerns, but it later became clear there was a more serious diagnosis at hand. After seeing Emiliano’s hands shake uncontrollably, his parents took him to a neurologist who was […]
When Nicole Puglisi was first diagnosed with DIPG in January 2016, it came as a part of a shocking chain of events. After being involved in a car accident, Nicole received an MRI to examine her injuries. Along with it, doctors also discovered a tumor in her brainstem. Although she had no symptoms at the time, Nicole would later feel its effects almost exactly 2 years later. In the meantime, Nicole pushed to continue her college […]
We are also excited to announce that actor and comedian Kenan Thompson represented CRF as he starred on ABC’s “Who Wants to Be a Millionaire?” this July. As a board member, Kenan competed in our honor against his former co-star Kel Mitchell, as they both aimed to raise the most money. We are thrilled to announce that Kenan won thousands in funding for CRF, which will be directed toward research, clinical trials, and family support for our warriors.
A recent MRI scan revealed there has been no activity which is amazing news. This marks nearly 12 years of Lisha living DIPG free. Lisha is the first survivor of those treated by our medical partner, Dr. Mark Souweidane’s, C.E.D. clinical trial, which we fund. She lives as an inspiration to others who are battling […]
Our recent discussion with Maria Kuenster, a DIPG warrior of 4 years, has provided us with a new understanding of her inspiring battle with the condition. Maria, now 26, was first diagnosed with DIPG shortly after her college graduation in June 2020. After experiencing recurring headaches, an MRI revealed the culprit: a brain tumor. Since […]
In a recent interview, we had the chance to catch up with 30-year old Alexa Huber, who was diagnosed with DIPG in Spring 2020. As a stay-at-home mom, Alexa values spending time with family, staying active, and making the most out of every moment. Though there have been many challenges throughout her journey, she has […]
Winners Are: 1st Prize:2 Premium Tickets to a NY Yankees Game (2024 Season) Hilda A. Castillo (#3048) 2nd Prize:Apple iPad Steve (#2183) 3rd Prize:$200.00 Dinner Gift Card to Giacomo & Gennaro’s Patricia’s of Tremont Restaurant Arianna Zollo (#2503) Thank you to all who Participated. It is because of people like you that we are a […]
What an amazing dinner at Rao's with amazing people who are all-in on our mission to find a cure for DIPG. Special thanks to legendary actor Bo Dietl of Goodfellas, Wolf of Wall Street, and The Irishman for donating his table.
