I called Dr. Yadoo today and he was concerned about Cristian’s belly being distended. Cristian has been having severe stomach pains. Cristian has been gassy and retaining stool. Dr. Yadoo has increased the amount of myrilax so that his bowl movement can increase. Cristian is also on a new formula which is more elemental and easier for him to digest. Overall, Cristian had a good day and nothing out of the ordinary to report.
Cristian is getting physical and occupational therapy mon thru fridays. We are hoping Cristian can regain use of his body. He sometimes goes to his rehab on a special wheelchair/ carriage/ stroller that is designed for kids like him.
Jenelle asked me if I have been hearing the noises coming out of Cristian’s Trach. I said that I have and Jenelle says that the noises are Cristian using his vocal chords , trying to control them and perhaps trying to speak. I sure hope and pray that he can speak to us again.
We meet with the entire team at St. Mary’s to go over Cristian’s game plan / expectations, and basically just to get acquainted with each other. Cristian was then moved to a private room, he seems to be comfortable in the private room.
I went to see Cristian today and we watched Madagascar part 2. I massaged him and took a nap with him. Cristian says he isn’t feeling well. The staff keeps giving Cristian morphine for the pain.
Cristian was transferred from Memorial Sloan-Kettering to St. Mary’s rehab today. The game plan is to get Cristian strong enough so that he can go home. Cristian is still on a partial vent. Cristian is on C-Pap. Cristian is on 25%, which means Cristian is basically doing most of the work.
Cristian was supposed to be transferred to St. Mary’s rehab today but wasn’t. The 1st Ambulance they sent over didn’t have the proper respiratory equipment and by the time the 2nd ambulance came it as too late to admit him to St. Mary’s.
Cristian is doing better. Cristian is on 35% C-Pap. Cristian is only on partial vent. If Cristian continues to do well, Cristian can be transferred to St. Mary’s as early as Wednesday 12/03/08. I have never stopped doing research and continue to do so.
Cristian didn’t respond well during the attempt to wean him off the ventilator. Cristian seemed to be out of it and slept a lot today. He complained of headaches and was given morphine for the pain.
Cristian had surgery today to put the G-tube in. During surgery Cristian was on the ventilator to help him breath. The surgery took approximately 3 hours. The G-tube procedure is a Beach Ball like valve that is installed into the stomach in order to feed him and give him his meds.