DIPG News

Category: DIPG News

Charlotte Christian freshman crowned Miss Mecklenburg

Charlotte Christian freshman Payton Walker was named the 2012 Miss Mecklenburg Outstanding Teen Jan. 21. The program is part of the Miss America scholarship pageant. Payton will spend the next year participating in community service in the area and will represent Mecklenburg County in the Miss North Carolina Outstanding Teen Pageant, to be held in […]

Showing ‘Love for Lexi’

CASS CITY — The Cass City community and surrounding area are gathering Saturday (today) to show their ‘Love for Lexi.” A benefit dinner and auction is planned, beginning at 2 p.m. at the Cass City High School to benefit the family of Lexi Smith, a six-year-old diagnosed with an inoperable brain tumor. “We’re just very […]

CONGRESSIONAL TESTIMONY

This Testimony is Embargoed Until Thursday, February 2nd at 9:00 AM Please visit: http://waysandmeans.house.gov/committeesubmissions/ and submit your comment for the record. There are many of us out there who have suffered as the result of losing our child and then having a thief take our kids’ social security numbers. Please consider submitting a comment. FROM: Jonathan […]

Cancer sequencing initiative discovers mutations tied to aggressive childhood brain tumors

Researchers studying a rare, lethal childhood tumor of the brainstem discovered that nearly 80 percent of the tumors have mutations in genes not previously tied to cancer. Early evidence suggests the alterations play a unique role in other aggressive pediatric brain tumors as well. The findings from the St. Jude Children’s Research Hospital – Washington […]

A soo-weet collaboration between entrepreneurship, philanthropy, and BBQ

This post is dedicated to the memory of Ben Sarrat Jr. for the movement he inspired. The formula for the first annual pig roast was simple: a few friends, a pig, and a keg. However, when Hogs for the Causefounders Becker Hall and Rene Louapre met Ben Sarrat, Jr., they were inspired to use their […]

PATIENT GROUPS AND RESEARCHERS JOIN FORCES TO SPEED TREATMENTS FOR RARE PEDIATRIC BRAIN TUMOR

Four Organizations Fund International Research Consortium to Improve Lives of Children Suffering From Diffuse Intrinsic Pontine Glioma (DIPG) Accelerate Brain Cancer Cure (ABC2), CureSearch for Children’s Cancer, The Cure Starts Now Foundation and The Lyla Nsouli Foundation for Children’s Brain Cancer Research today announced their collaborative funding to support groundbreaking research aimed at dramatically improving […]

Milestone Clinical Trial for DIPG Approved

Dr. Mark Souweidane, Director of Pediatric Neurological Surgery, has received FDA approval for a clinical trial for young patients diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). Dr. Souweidane is the Principal Investigator on the clinical trial, which will use a novel surgical technique (convection-enhanced delivery, or CED) to deliver a tumor-fighting agent directly to the […]

The fight of her life Five-year-old battles brain tumor

When a person is diagnosed with a serious medical condition at any age it is devastating news for his or her friends and family. But when the parents of a four-year-old receive word that their child has an inoperable brain tumor, it’s earth shattering. Unfortunately, that’s exactly what Farmingdale residents Erik and Cristina Bravin were […]