August 2021 CRF Newsletter – End of Summer Updates

AUgust 2021 Newsletter

August 2021 Newsletter

It’s August already! Time has flown by these past summer months. As kids go back to school and we begin to settle into the groove of things, here at the Cristian Rivera Foundation, we still strive in our effort to fund and find a cure for DIPG.

We hope that this newsletter finds you well and that we see you at our upcoming events later this year.

August 2021 Newsletter

August 2021 Newsletter

August 2021 Newsletter

After a difficult 28 days in the hospital, Emiliano was able to return home feeling stronger than ever! Emiliano’s walking has been improving day by day thanks to his new friend Frida, a service dog who will be supporting him during his DIPG journey. Frida is a six-year-old black labrador. They say that when Emi met her it was like love as first sight.

Emiliano’s speech has improved drastically and due to physical therapy three times a day, he is able to walk short distances with help.

We only hope that Emiliano’s happy disposition remains and he improves more and more each day. Remember that your support has directly helped Emiliano and his family along the way. Full Steam Ahead!

August 2021 Newsletter

August 2021 Newsletter

August 2021 Newsletter

Are you ready to get out and enjoy the open air?

Our 5th Annual CRF Boat Ride is only a FEW WEEKS AWAY on Saturday, August 28th!

The Boat Ride will be hosted by radio personality Speedy and we are so excited to announce that George Lamond and Samy P El Conde will be performing live. George Lamond is a Freestyle and Salsa singer famous for chart-topping hits like "Bad of the Heart" and "Que Te Vas". We’ll also be featuring live music from DJs Big Paul, Rob Lo, Michael Narvaez, and Steelo. You won’t want to miss this amazing night!

Tickets are $50 each and will go towards helping DIPG research and families affected by the disease. Purchase your tickets today at

August 2021 Newsletter

August 2021 Newsletter

Our celebrity gala is back and better than ever. After a season of waiting, we’re ready to celebrate and raise money once again toward DIPG research and helping families in need.

Love is what we need to win the fight against DIPG. The evening of our 12th Annual CRF Celebrity Gala will be a night to share in positivity as we celebrate this year’s theme of LOVE.

August 2021 Newsletter

You can now purchase tickets, sponsorships, ads in our gala’s program, and make donations at
Taking action in any of these ways help support much needed DIPG research and families affected by the disease.

August 2021 Newsletter

Attending our gala means experiencing a night you’ll never forget. We will be having incredible performances, celebrity guests, exciting live and silent auctions featuring one-of-a-kind items and experiences, and inspiring stories from many families and individuals facing DIPG. We hope to see you there!

August 2021 Newsletter

August 24th is
John "Gungie" Rivera’s birthday

On behalf of everyone at CRF we’d like to wish our founder a happy birthday. 12 years ago John’s life was changed forever when his son Cristian was given a terminal diagnosis. John channeled his pain into desiring to help other children and families making our foundation what it is today.

August 2021 Newsletter

Happy birthday, John!
Thank you for everything you do.

John will forever be one of the most passionate, determined, and caring individuals to exist. Don’t forget to wish him a happy birthday!

August 2021 Newsletter

August 2021 Newsletter

Meet our board member, Paul Pristavec! Paul is a wealth management advisor at Merrill Lynch and has been for 25 years. In his free time he enjoys coaching basketball for his children’s teams, eating at great restaurants, and taking his family on trips.

Paul knew Cristian since he was born and was devastated to hear about his illness. We’ve had Paul’s support ever since. Paul believes that our successes as a foundation are shown because we are keeping kids alive a little bit longer and through that effort, we are bound to find a cure someday. We’re so grateful to have such a goodhearted board member working with the CRF Team. Learn more about Paul by reading his full spotlight at

August 2021 Newsletter

August 2021 Newsletter

August 2021 Newsletter

We hope that August remains a healthy and happy month for you ad your loved ones. We are so grateful to our DIPG warriors and supporters for their strength and generosity. We know that DIPG is an immensely difficult sickness to deal with, both first and second-hand, so we applaud the tenacity of those who stick by our foundation and who have the heart to fight DIPG.

Thank you from everyone at CRF.
Full Steam Ahead!

August 2021 Newsletter

Our Mission

The mission of the Cristian Rivera Foundation is to help find the cure for
Diffuse Intrinsic Pontine Glioma (DIPG),
an inoperable and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),


Cristian Rivera Foundation

John “Gungie” Rivera
"Forever Cristian’s Daddy"

Board of Directors:
Carlos Yepez and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Arizmendi, Alex Garcia,
Carlos Colon, Fernando Ferrer,
Francesco Quattrone, Jarrad Seuferling,
Kenan Thompson, Luis Guzman,
Meiling Macias Toro, Paul Pristavec, Rafael Toro,
Rena Kliot, and Steve Cox.

Ben Velazquez, David Rodriguez,
Dr. Manuel A. Moran, Ed Martin, Karla De Epstein,
Michael V. Narvaez, and William Pla.

Chairman of the Board:
Andy Epstein

Sarde Laurente

Committee Friends:
Alberto Torres, Edward Caban, Elis Pacheco,
Maggie Meehan, Mark Rosner, Melinda Colon Cox,
and Vanessa Rodriguez, and Vito Bruno.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.


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Copyright © 2021 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
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