A recent MRI scan revealed there has been no activity which is amazing news. This marks nearly 12 years of Lisha living DIPG free. Lisha is the first survivor of those treated by our medical partner, Dr. Mark Souweidane’s, C.E.D. clinical trial, which we fund. She lives as an inspiration to others who are battling […]
Our recent discussion with Maria Kuenster, a DIPG warrior of 4 years, has provided us with a new understanding of her inspiring battle with the condition. Maria, now 26, was first diagnosed with DIPG shortly after her college graduation in June 2020. After experiencing recurring headaches, an MRI revealed the culprit: a brain tumor. Since […]
In a recent interview, we had the chance to catch up with 30-year old Alexa Huber, who was diagnosed with DIPG in Spring 2020. As a stay-at-home mom, Alexa values spending time with family, staying active, and making the most out of every moment. Though there have been many challenges throughout her journey, she has […]
CRF board member Kenan Thompson is teaming up with fellow comedian Kevin Hart on a new series for the 2024 Paris Olympics! The series will be streaming on Peacock and they will be providing commentary and comedic insights into the best and most unexpected moments.
Gio Urshela’s time with the New York Yankees might be best remembered for being part of one of John Sterling’s infamous home run calls.
A Conversation with Maria Kuenster Our recent discussion with Maria Kuenster, a DIPG warrior of 4 years, has provided us with a new understanding of her inspiring battle with the condition. Maria, now 26, was first diagnosed with DIPG shortly after her college graduation in June 2020. After experiencing recurring headaches, an MRI revealed the […]
Catching up with Alexa Huber In a recent interview, we had the chance to catch up with 30-year old Alexa Huber, who was diagnosed with DIPG in Spring 2020. As a stay-at-home mom, Alexa values spending time with family, staying active, and making the most out of every moment. Though there have been many challenges […]
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