Today Dr. Souweidane let me know that his DIPG clinical trial has finally gotten approval from the FDA. I was so happy to hear this. We’d been waiting so long for this final approval and now Dr. Souweidane and his team can start preparing for the trial. By the last week of January, he expects to operate on his first patient.
The holidays are a very difficult time of year for me because Cristian isn’t here to celebrate them. It’s hard to believe sometimes that he’s really gone. This week I received an email from DIPG parents who is going through their first holiday season without their son.
Gloria Garcia Castellvi, a friend of Juan Manuel who lost her little girl Alicia to DIPG, came all the way from Spain to see me on Tuesday, December 6. Gloria is very involved in the DIPG community in Spain and hosts a DIPG symposium there every February.
Yesterday, Saturday December 3, was the first ever Cristian Rivera Foundation Paintball Tournament at NYC Paintball in Long Island City . Committee Member Robert Vazquez organized the event, which was not only a big success but also a lot of fun. Team AVS