On Tuesday, June 21st, I was reminded all too well that just when you think a child with DIPG is doing good, the disease gives you an unpleasant surprise. Jordan Malave, who has now had DIPG for almost three years, is starting to decline.
his weekend was rough for me since Sunday was Father’s Day—my third without Cristian. I started the day at Sunday mass at Mary Queen of All Saints Parish in Pennsauken, New Jersey, which is near Philadelphia. I met with DIPG families who had attended the Third Annual Childhood Cancer Symposium put on by Alex’s Lemonade Stand the day before.
his past Sunday, May 29, was the Prestige Productions Reunion at Latin Quarter. The event was a big success. We had such a strong turnout and the club got crowded really early into the night. It was great to see so many of my old staff members and customers come out to support the Cristian Rivera Foundation.