Cristian was operated today. He had the Medi- Port put in. Cristian was gasping for Air. He didn’t react well to the Anastasia. I couldn’t help my Son. I watched him gasping for air as if he was going to Die…. I couldn’t stop Crying…. This is Hell…….
I went to NYU filled with hope. I meet with Dr’s that were referred to me by close Friends… The Dr’s Say exactly what I was told at MSK….. I feel defeated… I must keep pushing forward…
I woke up today hoping I had a nightmare the past 2 days, and I didn’t. I spent hours and hours calling all the people I know in the Medical Field. I am seeking 2nd opinions. I then saw Cristian. Oh my God… I can NOT imagine losing my Son. This is insane. I can NOT allow this to happen. I must do something.
I am starting a Journal Today- I went to MSK to meet with the Pediatric Neuro-Oncology Team. They confirmed what we were told yesterday. Cristian has Pontine Glioma (DIPG). It is a Brain Stem Tumor. Inoperable… Very little Treatment Options.