We are also excited to announce that actor and comedian Kenan Thompson represented CRF as he starred on ABC’s “Who Wants to Be a Millionaire?” this July. As a board member, Kenan competed in our honor against his former co-star Kel Mitchell, as they both aimed to raise the most money. We are thrilled to announce that Kenan won thousands in funding for CRF, which will be directed toward research, clinical trials, and family support for our warriors.

view the trailer of the episode!

A recent MRI scan revealed there has been no activity which is amazing news. This marks nearly 12 years of Lisha living DIPG free. Lisha is the first survivor of those treated by our medical partner, Dr. Mark Souweidane’s, C.E.D. clinical trial, which we fund. She lives as an inspiration to others who are battling […]

Our recent discussion with Maria Kuenster, a DIPG warrior of 4 years, has provided us with a new understanding of her inspiring battle with the condition. Maria, now 26, was first diagnosed with DIPG shortly after her college graduation in June 2020. After experiencing recurring headaches, an MRI revealed the culprit: a brain tumor. Since […]

In a recent interview, we had the chance to catch up with 30-year old Alexa Huber, who was diagnosed with DIPG in Spring 2020. As a stay-at-home mom, Alexa values spending time with family, staying active, and making the most out of every moment. Though there have been many challenges throughout her journey, she has […]