Jenelle and I opened Cristian’s gifts for him and read him his Christmas cards. Cristian hasn’t been the same. Cristian looks tired and sad. We try everything to make him happy but I guess Cristian is very bored because he has seen all his almost 100 DVDs over and over again and we have read all his books to him. You can just imagine how such a lively and active 6 year old feels having a trach, not being able to move or speak and experiencing constant pain in his stomach from his feeding and meds and constantly having headaches. It breaks my heart to see Cristian this way. Cristian has lost almost all his hair at this point and his face and body are very swollen.
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