Everyone at the Cristian Rivera Foundation would like to express our condolences to the family of Caitlin Downing, who earned her wings on Sunday November 11 surrounded by family and embraced in the loving arms of her parents. Caitlin not only fought bravely in her battle against DIPG but she was a pioneer in the DIPG community as she became the first patient in Dr. Mark Souweidane’s clinical trial in May of this year. Caitlin was a beautiful girl who loved to smile, go to school and put bows in her hair, her mother Denise wrote on her website. Caitlin and Denise were guests of honor at this year’s Fourth Annual Cristian Rivera Foundation Celebrity Gala, where they shared their story about Caitlin’s surgery and subsequent struggle. Caitlin was an inspiration to us all and our thoughts and prayers go out to her entire family.
Today, Cristian Rivera Foundation founder John “Gungie” Rivera received great news from Denise Downing, whose daughter Caitlin was the first patient in Dr. Mark Souweidane’s clinical trial. At the Fourth Annual Cristian Rivera Foundation Celebrity Gala, where Denise and Caitlin were guests of honor, Denise tearfully shared her story with the crowd and expressed her hope that her daughter would be readmitted into the trial while there was still time to help her. She called today to share the amazing news that her daughter has received the approval she needed and Denise thanked the Cristian Rivera Foundation for their help in making it happen