Former “SNL” comic Vanessa Bayer says you’ve got to laugh off cancer . . . and use it as an excuse to get out of things you hate.
Bayer, who was diagnosed with acute lymphoblastic leukemia at 15, gave advice on how to handle a diagnosis while being honored at the Gilda’s Club gala Thursday, saying “This is just a chapter, this is just one piece of your life,” and that “you should use cancer to get out of anything you don’t want to do. I mean, thank you, gym class, phone calls, I used to go to school late.” She said a young man she met with cancer “whispered in my ear, ‘I used it to get out of French class.’ And I had never been prouder.”
Bayer’s “SNL” pal Kenan Thompson presented her with the award. We hear he will also help raise money for pediatric brain cancer research at the Cristian Rivera Foundation fund-raiser Wednesday.
Miss America 2019 Nia Franklin to walk the Runway alongside Life Size Robots from Advanced Robot Solutions when Circuit City joins Monster in presenting the “Sound of Fashion” Runway Show Season 5 Benefitting the Cristian Rivera Foundation featuring Taiwanese Designer Sami Chen of HappyFish Fashion
Thursday February 7, 2019 @ 7pm
122 W 27th Street, NY, NY 10010
Monster Products: For the past 40 years, Monster® has been a catalyst for innovation and big ideas. Discovering that cables in hi-fi systems influenced the sound, Head Monster Noel Lee developed Monster Cable – an immediate hit. Monster® engineered the sound of Beats® headphones, and has since become a leading manufacturer of high-performance headphones, all featuring Pure Monster Sound™ technology. Today, the company offers advanced connectivity solutions for professional musicians, home entertainment and consumers alike and sponsors the Sound of Fashion each season at New York Fashion Week to bring together music and fashion like never before.
Circuit City comes with a long history of tech innovation, dating back to the late 1940’s, and intertwine s this deep rooted knowledge and know-how into the modern shopping experience. We believe in making the first move, encouraging gusto, and disrupting t he way that technology and commerce connect. Their personalized shopping platform is designed to give you the one -on-one customized experience you would get as if you had a personal shopping assistant by your side. Circuit City is extremely proud to have such a reputable brand name to work under and we don’t take this responsibility lightly. And while they are outrageously loyal to the prestige of this strong brand name, they also acknowledge that fun and exploration are essentially to maintaining any long-lasting, modern, and forward-thinking brand identity.
Advanced Robot Solutions is the official master distributor for Future Robot, a South Korean service robotics company. The FURo-D model is currently the most popular robot on the market, with robots located in airports, hospitals, doctor’s offices worldwide.
Cristian Rivera Foundation: Cristian Rivera’s journey and determination inspired his father, John “Gungie” Rivera, to start the Cristian Rivera Foundation, a New York City -based 501(c)(3) not-for-profit organization, that is committed to finding a cure for Diffuse Intrinsic Pontine Glioma (DIPG) (a form of pediatric brain cancer) through education, program funding and family support. The foundation strives to increase public awareness and understanding of Pontine Glioma, as well as raise funds that will support medical facilities and scientific trials whose primary focus is to find a cure for the disease.
Miss America 2019 Nia Franklin: Nia was crowned Miss Five Boroughs at the age of 23, and then went on to win Miss New York 2018. And was awarded the job of Miss America 2019 on September 9, 2018. Nia has been a teacher and music mentor, and has written over 100 songs, including one she began performing at age five. For the Miss America 2019 competition, Franklin sang “ Quando m’en Vo’” from Puccini’s La Boheme and wowed audiences and judges alike. Nia is a native New Yorker and this will be her first time walking at NYFW.
HAPPYFISH FASHION by Sami Chen will show in her 4th season at New York Fashion Week, following her successful two season premiere with Rolls Royce and Monster. Sami’s gowns and dresses have wowed audiences to live music and even dressed two celebrity show dogs and one talented rabbit on a sk ateboard who made their way down the runway. The dresses drew the full attention of the audience as the press could not get enough of her creations staying after the show to catch more. The show came from the creative inspiration of lead designer Sami Chen. Sami who learned her trade at Shih Chien School of Fashion in Taiwan and has been designing womenswear since childhood. In addition to being an internationally recogniz ed fashion designer, Sami is also an accomplished concert pianist and has won many competitions since the age of 5. “Happy Fish by Sami” was inspired by and symbolizes the joy and freedom associated with her designs along with her state of mind. As a bright star of the ne w fashion world, Sami’s smile and uplifting demeanor is not only evident in her creations, but also her personality. See www.HappyFishSami.com.
The Cristian Rivera Foundation will have a reason to celebrate when it holds its 10th annual fundraising gala to fight a rare childhood cancer on Wednesday, Nov. 14.
The foundation has been on a mission over the past decade to find a cure for diffuse intrinsic pontine glioma, or DIPG, a rare form of deadly brain cancer mainly affecting small children. Each year, roughly 200 children are diagnosed with DIPG, and nearly all usually succumb to the aggressive cancer within 18 months.
But the celebrity-studded gala, at Manhattan venue Capitale, will commemorate a rare success story: 13-year-old Lisha Ayalais, who was diagnosed with DIPG six years ago, has defied the odds and continues to show no growth in her tumor.
”Lisha is doing phenomenal. We are going on 6 years and she is still DIPG-free,” said CRF founder John (Gungie) Rivera. “This is evidence that the work that we are doing — the trials that our doctors are working on — are effective.”
Rivera, a local music producer and promoter, started the foundation in honor of his son Cristian, who passed away from the disease at only 4 years old and is the driving force behind the event.
Though Cristian did not win his battle with DIPG, Rivera continues it on his son’s behalf, raising funds annually to help underwrite clinical trials aimed at treating and hopefully one day curing the condition.
Lisha is currently in one of those trials at Weill-Cornell Brain and Spine Center in Manhattan, working with Dr. Mark Souweidane, a pediatric neurosurgeon specializing in DIPG.
This year’s event, hosted by foundation co-chair Darlene Rodriguez of NBC News, will feature such celebrity guests as Kenan Thompson of “Saturday Night Live.”
Honorees include actor Ramon Rodriguez, who will receive a humanitarian award for his recent work in Puerto Rico with the 100Roofs Project that aims to help those on the island still struggling after last year’s devastating storms by providing carpenters and training locals to become professional roofers.
“It was inspiring to see his commitment to Puerto Rico,” Rivera said. “It reminds me that I am not alone in my efforts to make a difference, even when facing major challenges.”
For more info on the Cristian Rivera Foundation, buy tickets to the gala or donate to the fight against DIPG, go to cristianriverafoundation.org.
One of New York City’s best-known music promoters of the ‘90s is having a throwback dance party — that doubles as a fundraiser for a cause near and dear to his heart.
Revelers who hop aboard the Circle Line on Saturday, July 15, at 7 p.m. for the second annual Cristian Rivera Foundation Freestyle Flashback Benefit Boatride will be treated to several hours of freestyle dance music courtesy of a live performance by singer Noel, along with DJ Tedsmooth, Big Paul and Rob Lo, with Alizay and Speedy of the Luis Jimenez Show serving as hosts.
But the real purpose of the evening is to raise money for the Cristian Rivera Foundation, a nonprofit that donates all monies raised to hospitals and foundations researching cures for DIPG, a deadly childhood cancer.
The foundation is named for Rivera’s son Cristian, who was diagnosed with DIPG in 2007 and died two years later at age 6. DIPG — diffuse intrinsic pontine glioma — is a rare form of brain cancer that affects less than 300 kids each year but has an extremely high mortality rate. Less than 1% of those diagnosed with the disease live five years after being diagnosed.
“Creating awareness and fundraising is very difficult,” says Rivera, who founded the Cristian Rivera Foundation in 2009 and has dedicated his life to the cause in memory of his son.
The concept of a fun-filled boat ride around Manhattan with live music was “a way to get 600 people to come to an event because of the entertainment,” Rivera adds.
“Once they are at the event I am able to educate them about DIPG while raising funds. By the end of the event a fair percentage of our attendees become supporters of the foundation, so it’s a win-win. Most of the attendees are people who used to attend my events or follow me when I was a DJ.”
Rivera, who every fall also throws a massive fundraiser for the foundation in Manhattan that features celebrity guests from the entertainment and sports worlds, plans to use his connections and experience as a promoter to expand his fundraising efforts beyond the annual boat ride.
“In the spring of 2018 we are going do the first annual walk,” Rivera says. “We also have three concerts in the works as well as various small cocktail receptions that are being produced by our board of directors, committee members, committee friends and our supporters.”
Rivera says the foundation’s efforts to raise money for research are beginning to pay off. “One of the patients in our trials, an 11-year old girl from Connecticut named Lisha Ayala, has had DIPG for almost five years. In the past four years there has been no activity in her tumor,” he says.
“I may be speaking prematurely, but my feeling is that she will be our first survivor. To my knowledge, there has been no one with DIPG that has lived this long.”
The Cristian Rivera Foundation Freestyle Flashback Benefit Boatride on Saturday, July 15, starts at 7 p.m. sharp on the Circle Line at Pier 83, W.42nd St. and Westside Highway. The event is from 8 p.m. to 12 a.m.
Nearly a decade ago, John Rivera turned the worst crisis a parent can face — the terminal cancer diagnosis of his young son — into a lifelong quest to help save other children’s lives.
In 2007, Rivera’s 4-year-old son, Cristian, was diagnosed with a very rare form of brain cancer, diffuse intrinsic pontine glioma, or DIPG.
An extremely rare but devastating disease, DIPG affects less than 300 kids each year but has an extremely high mortality rate — less than 1% live five years after being diagnosed.
Cristian died in 2009 at 6, but his brave, two-year battle with the disease spurred Rivera to dedicate his own life to raising money and awareness to fight DIPG.
“It’s still very difficult,” Rivera said about losing his son. “But I have to be one of the people — one of the tools — that helps find a cure.”
Rivera, 52, a music producer and promoter known in the industry as “Gungie,” in 2009 created the Cristian Rivera Foundation, a nonprofit that donates all monies raised to hospitals and foundations researching cures for DIPG.
On Wednesday, the foundation will host its eighth annual celebrity fund-raising gala at the Broad Street Ballroom in Manhattan.
The event, hosted by NBC’s Darlene Rodriguez, will honor Dr. Mark Souweidane, director of the Weill Cornell Pediatric Brain and Spine Center and the physician behind a new treatment trial partly funded by the foundation and its supporters.
“When my son was diagnosed, there was no hope for a cure and very little information,” Rivera said. “Now almost 10 years later, there has been so much progress.”
DIPG tumors are found in the brainstem, making the cancer incredibly difficult to treat with chemotherapy. Dr. Soudweidane’s new trial uses a technique known as convection-enhanced delivery, or CED.
This method treats the tumor by inserting hairline fibers laced with a chemo agent through the difficult-to-penetrate blood-brain barrier and directly into the tumor on the brainstem.
There are still no confirmed survivors of the disease, but Rivera is hopeful that this new trial is a major step towards a cure.
“We’ve been able to treat approximately 31 children,” Rivera said. “Unfortunately, most of them have passed. But there is one little girl that has tolerated the treatment very well. She’s 11, the oldest child I know with the disease.
“It’s wonderful to see the foundation grow every year,” Rivera adds. “Even if I can’t get everyone to donate, I know that I’ve planted a seed of information and spread awareness about a disease that so few people know about.”
We love great non-for-profit work, for the eighth year in a row, New York City-based not-for-profit 501(c)(3) The Cristian Rivera Foundation is gathering celebrities, supporters and donors to raise money toward a groundbreaking clinical trial aimed at curing Diffuse Intrinsic Pontine Glioma (DIPG).
The eighth annual Cristian Rivera Foundation Celebrity Gala will be held at Broad Street Ballroom in Manhattan on Wednesday, November 30. The foundation namesake Cristian Rivera was only 4 years old when he was diagnosed with the rare pediatric brain stem tumor, which generally affects children between the ages of 1 and 9. Approximately 200 children are diagnosed with DIPG each year in the United States and most only survive for 3 to 18 months after diagnosis.
Through auction items, ticket sales and more, the eighth annual Cristian Rivera Foundation Celebrity Gala will raise money in support of a clinical trial at Memorial Sloan Kettering Cancer Center and Weill Cornell Medical College that officially got underway on May 1, 2012, thanks to the more than $700,000 in donations from the
Cristian Rivera Foundation to date. Spearheaded by Dr. Mark Souweidane, the Director of the Weill Cornell Pediatric Brain and Spine Center, this trial is the first of its kind to use convection-enhanced delivery to administer radio immunotherapy to children with an otherwise incurable tumor.Dr. Souweidane has found a way to operate on a tumor that had, until now, been deemed inoperable. Dr. Souweidane has developed a safe method for drug delivery to these tumors by a highly innovative surgical procedure. Up until this time surgery has played no role in the treatment plan for these children with DIPG. This procedure involves implanting a small hair-like device into the center of the tumor and then using a slow constant flow of drug directly into the involved brain stem. The Cristian Rivera Foundation is proud to support Dr. Souweidane’s important research.
The eighth annual Cristian Rivera Foundation Celebrity Gala will be hosted by Cristian Rivera Foundation Board of Director and Anchor of the award winning NBC’s “Today in New York”, Darlene Rodriguez. The event kicks off at 6pm with red carpet arrivals from esteemed guests and foundation committee members. Tickets are sold out and include passed hors d’oeuvres, five hours of open bar, and dinner provided by Celebrity Chefs Alex Garcia, a committee member of the Cristian Rivera Foundation. There will also be live and silent auctions offering one-of-a-kind items and experiences.
The eighth annual Cristian Rivera Foundation Celebrity Gala will begin at 6 PM and end at 11 PM on Wednesday, November 30th. The Broad Street Ballroom is located at 41 Broad Street in the Financial District. Sponsorship packages and ads to be displayed in the program are still available for purchase. The Cristian Rivera Foundation is accepting donations in the fight against DIPG. All contributions are tax-deductible and critical to finding a cure for this disease and assisting children and families in their ongoing fight against DIPG.