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Cristian Rivera Foundation
March 2020 Newsletter

March 2020 Newsletter

Cristian Rivera Foundation 2020 March Newsletter

March has brought some serious challenges to our society as we navigate our world in the time of COVID-19 or the Coronavirus. As events, companies, social gatherings, weddings, funerals and more have been cancelled across the world, we have come to understand that separation means safety and staying apart is the best way for us to come together at this time. Like many of you, our smaller society as a foundation has been learning how to best function at a time like this. The one message that has rung true for us is to continue moving “Full Steam Ahead” as Cristian would, and as he did during his fight against DIPG.

In light of the times, the Cristian Rivera Foundation would like to give a heartfelt thank you to all of our board members, sponsors, donors and supporters who have generously contributed to our efforts for many years. We understand that many of you may be hurting mentally, emotionally, physically and financially at this time and we’d like to reiterate that our hearts are with you. As a foundation, we are consistently here to support you, as you have done for us several times before. Please contact us at info@cristianriverafoundation.org if there is anything we can do to help you at this time.

Our foundation would also like to thank our brave health care workers, especially our heroes like Dr. Mark Souweidane, Dr. Oren Becher, Dr. Jeffrey Greenfield, Dr. Caitlin Hoffman, Dr. Kathy Warren and many others who are defending us from the frontlines of this battle. Whether our medical partners are treating COVID-19 patients directly or not, we can understand the enormous complications that may be resulting from this pandemic and how difficult it may be to continue their important work in the hospitals and research labs at this time. More than ever, we thank you for your daily courage and resilience.

With all that may be going on in the world and with a more widespread enemy in town, it’s also a sobering reality to recognize that DIPG still exists and it may be a stronger threat to children and families now more than ever. DIPG patients are severely immunocompromised and therefore are extremely vulnerable to infection simply by being in the hospitals where they may need to receive treatment. If DIPG children do have the ability to stay home, parents and loved ones may have to isolate themselves even further to protect them from infection of the virus. Even at a time like this, DIPG does not stop and it does not wait. Neither will we.

We would like to assure you that the foundation has continued to press forward and make the changes necessary to ensure that we are still giving everything we can to DIPG doctors and families who need support. We are hopeful and optimistic that our world will return to normalcy and look forward to seeing all of our supporters at our upcoming events.

One of our brightest supporters has become a Board Member! Meet new Board Member Dr. Jacquie Smiles. Dr. Smiles was born to be an orthodontist, educator and entrepreneur. She became the first female Director of the Pre-Doctoral Orthodontic Department at her alma mater, Boston University and has given lectures and presentations throughout the world. She was named Invisalign’s National Spokesperson, became the Dental Spokesperson for Invisalign Teen and launched it on the Tyra Bank’s show in 2009. In 2014, Dr. Smiles added a new med spa venture called JustMelt MedSpa, helping everyone in the family look great from head to toe. Personally, Dr. Smiles enjoys skiing on the back bowls of Vail or scuba diving in remote areas around the world.

When asked how she felt about joining the CRF Board, Dr. Smiles said, “All diseases deserve research funding to help find a cure! There is typically less funding available to diseases that affect fewer people. However, these more uncommon diseases hit and devastate families as hard as any other! I joined CRF to help find a cure and develop support for families like the Rivera Family that have dealt with an unbelievable loss from Pontine Glioma, a lesser-known disease. I see the dedication John Rivera has put into this cause and you cannot help but be inspired to fight DIPG with him in the memory of his son, Cristian.”

Dr. Jacquie has shown nothing but determination to fight against DIPG and has shared some wonderful ideas with us. We’re so excited to have her aboard!

We are also excited to announce our Raffle Winners for this year’s raffle project. Wilda Diaz has won 2 Premium Tickets to a Yankee Game, Arleny Rodriguez has won a $200 gift card to Calle Ocho, and Terrence Winston has won a $150 gift card to Thalassa Restaurant. Congratulations again to all of our winners!

Once again, we believe that the current challenges we are facing are temporary and will only give us a stronger resolve to fight DIPG with bigger numbers, larger gatherings, and more motivation than ever before when we finally DO have the ability to be together again. Until then, you are all in our thoughts and prayers. We love you 10! Full steam ahead!

Our Mission

The mission of the Cristian Rivera Foundation is to help find the cure for
Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!


PLEASE DONATE

Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”

Cristian's Journey

Written by John “Gungie” Rivera


Available on our website
CristianRiveraFoundation.org

Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
Founder of The Cristian Rivera Foundation
“Forever Cristian’s Daddy”


Chairman of the Board:
Andy Epstein


Board of Directors:
Carlos Yepez and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Arizmendi, Alex Garcia,
Carlos Colon, Dr. Jacqueline Fulop-Goodling,
Ed Martin, Elis Pacheco, Fernando Ferrer,
Francesco Quattrone, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Rena Kliot, Steve Cox, and Vito Bruno.

Committee Friends:
Alberto Torres, Ben Velazquez,
Dr. Manuel A. Moran, Edward Caban,
Maggie Meehan, Mark Rosner, Modesto Lacen,
Pablo Diaz, Robert Dominguez, Vanessa Rodriguez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
David Rodriguez and Karla De Epstein

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The Cristian Rivera Foundation
February 2020 Newsletter is here!

 
February 2020 Newsletter
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February 2020 Newsletter
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February 2020 Newsletter
Cristian Rivera Foundation 2020 February Newslette

February is a month known for spreading love and appreciation to our family and friends. The Cristian Rivera Foundation wants to remind our board members, friends and supporters that we wholeheartedly appreciate the love and support that each and everyone one of you has given to our foundation. The support and recognition allow the foundation to flourish, resulting in continuous progress in our fight against DIPG.

As the winter begins to unwind, we are eager to kickstart Spring 2020 with the 3rd Annual Cristian Rivera 5K held on Saturday May 2nd at Van Cortlandt Park. We are thrilled to come together to host an amazing event that will support DIPG victims and raise funding for our clinical trials. In addition, we are continuing our Raffle Project with multiple opportunities to win amazing prizes. The 1st place raffle winner will receive 2 Premium Tickets to a NY Yankee Game (Valued at $500), 2nd place winner will get a $200 Dinner Gift Card to Calle Ocho, and the 3rd Place Winner will receive a $150 Dinner Gift Card to Thalassa Restaurant. Don’t miss out! You can purchase raffle tickets at cristianriverafoundation.org/Raffles.html.

The Cristian Rivera Foundation has also been extremely honored and humbled to receive the 2020 Top- Rated Great Nonprofits Award from Great Nonprofits for the 3rd consecutive year. We are extremely grateful to receive recognition for our hard work. It truly serves as a reminder as to why we do what we do. We will continue to spread awareness and fund the clinical trials that will ultimately result in the abolishment of this horrific disease. Thank you for supporting us and being a part of this incredible journey.

Lastly, we would like to introduce our newest board member Rena Kliot. Rena is a marketing expert, successful real estate professional and development consultant. She has won numerous awards in Miami for her outstanding work in her industry including the Floridian Award Best Realtor of Miami and The Beaches. After her many years of success, she opened her own boutique real estate brokerage, Pulse International Realty, over a decade ago. Rena lends her expertise within her field as a regular cast member of the Real Estate show “The American Dream” on CBS and as the co-host of “The Real Estate Forecast” show on The Beach Channel. In addition to her career, Rena is passionate about serving her community as a Mentor for Women of Tomorrow and a Co-Founder of Divas Philanthropic Business Leaders.

In response to her decision to become a CRF Committee Member, Rena said:

“In my quest for making a conscious effort of paying it forward throughout my entire adult life, I always felt it was important to focus on mothers and children. Perhaps being a single mom, I recognized how easily we can be challenged with the necessities we want to provide for our children…I had never heard of DIPG and when I came across Cristian’s story and CRF, I was touched and decided to attend an event and familiarize myself with the people, the focus, and the initiative…Every child is a shining star. A hope for the future, each one has a dream and they should have the chance to live out their dreams. We need to keep our future bright by giving every little star the chance to live and shine for as long as possible. They make our lives brighter. We owe them.”

We are thrilled to welcome Rena and the additional members to our board. We are excited to see the value and enthusiasm they will bring to our foundation.  Stay connected with us. Join us at our events, share our journey with your family and friends, and please make efforts to donate at the following link cristianriverafoundation.org/donation.html.

Happy Valentine’s Day!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera Founder of The Cristian Rivera Foundation “Forever Cristian’s Daddy”

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez.

Committee Members: Aldo Marin, Alex Arizmendi, Alex Garcia, Carlos Colon, Dr. Jacqueline Fulop-Goodling, Ed Martin, Elis Pacheco, Fernando Ferrer, Francesco Quattrone, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega,

Luis Guzman, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Rena Kliot, Steve Cox, and Vito Bruno.

Committee Friends: Alberto Torres, Ben Velazquez, Dr. Manuel A. Moran, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez and Karla De Epstein

 
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Copyright © 2020 Cristian Rivera Foundation, All rights reserved. Our mailing address is: Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020 cristianriverafoundation.org

Mark Souweidane and Team Discover New Findings from their Pediatric Neuro-oncology Research

Dr Mark Instagram Our medical partner, Dr. Mark Souweidane, and his talented team of researchers have just published three new academic articles on their current findings in pediatric neuro-oncology. Each article reveals progress and cautious optimism towards treating DIPG and other brain tumors. We’re incredibly proud and grateful for their hard work! You can find the articles below neurosurgery.weill.cornell.edu/about-us/news-updates/three-new-papers-souweidane-team-expand-pediatric-brain-tumor-canon?fbclid=IwAR228ChS6E6sr73kFSzrlA1dhmKk3UFEXJf5e-xShQjg0LaWhTt9I6HrSUI

The first CRF Newsletter of the new decade is here!!!
Cristian Rivera Foundation
2020 January Newsletter

 
January 2020 Newsletter

Cristian Rivera Foundation 2020 January Newsletter

Cheers to a new DECADE! Our foundation has been around since 2009 and have been leading the way in supporting DIPG families and finding a cure for this horrific tumor. Every single day for over 11 years, we’ve been creating ripple effects that have revealed more and more about the puzzle that is DIPG. We’re proud of how far we’ve come but hope it won’t take another decade for us to find treatment that would make DIPG curable for children everywhere.  As we look back at our past year, we remember some of the successful events we held to fundraise against DIPG. It all started on the catwalk at New York Fashion Week at a Runway Show by Taiwanese designer Sami Chen where all proceeds for the show went to CRF. Miss America 2019 Nia Franklin walked the runway alongside life-size robots! In June, we held our 2nd Annual CRF Full Steam Ahead 5K Walk/Run with special words from Antoine Mason, the son of our Honorary Committee Member and longtime NBA player, the Late Anthony Mason. A portion of his speech along with other moments from the 5K can be viewed here youtu.be/wQL9ai9HleA . We had our 4th Annual CRF Freestyle Flashback Boat Ride on the Hudson River which was hosted by our very own Carlos Yepez who also became one of our Board of Directors this year! Since Carlos stepped into his new role, he has been doing incredible things for our foundation and we are extremely lucky to have him take on a stronger leadership role on our foundation’s board. You can find video highlights of all the fun at this link youtu.be/dUHorbzVK_E In September, we returned to NYFW with designer Sami Chen for another exciting runway show that benefitted CRF. Our founder’s daughter, Sophia Cristina Rivera, along with Andy Epstein’s (CRF Chairman of the Board) daughter Valentina, rocked some of Sami’s designs on the runway and the crowd absolutely loved it. Finally, we held our 11th Annual Cristian Rivera Foundation Celebrity Gala in November and had an incredible evening underneath the stars remembering our DIPG angels and fundraising for the DIPG children still with us now. The best moments from the 11th annual gala are highlighted in our post gala video youtu.be/N3NoAAyd73w and the story about how we support DIPG families is featured here youtu.be/LqcCwa-ZVxo . As much as we were able to celebrate in 2019, January is always a sad month for the Cristian Rivera Foundation. Cristian was diagnosed with DIPG on January 21st, 2007 and lost his battle to DIPG just two short years later, on January 25th, 2009. Although we approach this month with some sadness, we also take on the new year with courage and determination. In honor of Cristian, we have an exciting year planned with the motivation to grow bigger than ever before and create substantial awareness for DIPG. Our 3rd Annual CRF Full Steam Ahead 5K is coming up in May and it will be our biggest walk yet. We’ll also be continuing our annual Raffle Project which we’ve already started to sell. You can purchase raffle tickets online at the following link cristianriverafoundation.org/Raffles.html. The 1st place raffle winner will receive 2 Premium Tickets to a NY Yankee Game (Valued at $500), 2nd place winner will get a $200 Dinner Gift Card to Calle Ocho, and the 3rd Place Winner will receive a $150 Dinner Gift Card to Thalassa Restaurant. In the Summer we’ll be having our 5th Annual CRF Freestyle Flashback Boat Ride and will also be promoting the sequel to our founder’s children’s book “Cristian’s Journey”. We’re very excited to share it with you. We’ve already booked our date for this year’s 12th Annual CRF Celebrity Gala on November 18th, 2020. Mark your calendars now!!! Most importantly, we are elated to announce that 5 New Members have joined the Cristian Rivera Foundation’s Board. We’re happy to welcome Dr. Jacquie Smiles, Francesco Quattrone, Alberto Torres, Rena Kliot and Alex Arizmendi onto our life-saving team. You can get to know each of our new members by following cristianriverafoundation.org/committee.html and reading their bio by clicking on their headshot. We’d like to personally introduce you to one of our new members, Alex Arizmendi, as the Cristian Rivera Foundation Member of the Month. Alex Arizmendi is a Bronx native, successful entrepreneur, and a Real Estate and Construction professional. He has been managing Real Estate for over 20 years and is well versed in all types of construction. Alex grew up in the Edenwald Projects of the Bronx and has risen to success from his humble roots through many years of hard work. In particular, he was able to start several businesses while maintaining a full-time career. Apart from his career, Alex’s heart and mission is to always help and give back to those in need. He embodies these values as a Master Mason and is also a proud contributor to St Jude’s Children’s Research Hospital, Dare2B, and now the Cristian Rivera Foundation. Alex is a business owner, car enthusiast, music lover and loves to travel the world.  In response to his decision to become a CRF Committee Member, Alex said: “It is an extreme honor to be associated with the Cristian Rivera Foundation. I have been a close friend of Cristian’s father John “Gungie” Rivera for many years and was only aware of DIPG for the years that I’ve seen John fighting for a cure.  Not having children, I can’t imagine the pain of losing a child, so I understand the importance of bringing awareness and finding a cure to this horrible disease. No parent should ever have to bury their child, with that we will continue to fight for a cure.” We are excited to have Alex and our new committee members aboard and cannot wait to see what 2020 has to hold for us. Stay connected with us. Join us at our events, share our journey with your family and friends, and please make efforts to donate at the following link cristianriverafoundation.org/donation.html Happy 2020!

Follow Below to View:

Video Please Support Our Work 2019/20 Video Video Highlights of The 11th Annual Cristian Rivera Foundation Celebrity Gala Video Video Highlights of The 4th Annual Cristian Rivera Foundation Freestyle Flashback Boatride Video Video Highlights of the 2nd Annual Cristian Rivera Foundation Full Steam Ahead 5K Walk/Run
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera Founder of The Cristian Rivera Foundation “Forever Cristian’s Daddy”

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez.

Committee Members: Aldo Marin, Alex Arizmendi, Alex Garcia, Carlos Colon,Dr. Jacqueline Fulop-Goodling, Ed Martin, Elis Pacheco, Fernando Ferrer, Francesco Quattrone, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Rena Kliot, Steve Cox, and Vito Bruno.

 Committee Friends: Alberto Torres, Ben Velazquez, Dr. Manuel A. Moran, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

 Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez and Karla De Epstein

 
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Copyright © 2020 Cristian Rivera Foundation, All rights reserved. Our mailing address is: Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020 cristianriverafoundation.org

Cristian Rivera Foundation
2019 December Newsletter

Dec 2019 Newsletter
Cristian Rivera Foundation 2019 December NewsletterThe 11th Annual Cristian Rivera Foundation Celebrity Gala was a massive success and our proudest event yet. As our founder John “Gungie” Rivera mentioned during his speech, the darkness of DIPG can only be made bright by people who show up and desire to make a difference. We’re grateful to those who attended, sponsored, or made donations in the hopes of illuminating the suffering caused by DIPG. The kindness and generosity of our sponsors pass a light on to our medical partners, so they have the fuel to find a cure. We’d also like to give a big thank you to our foundation’s Chairman of the Board, Board of Directors, Committee Members, and Committee Friends who work throughout the year to shed light on our cause and bring awareness about DIPG to the world. Lastly, a warm thank you to Dr. Mark Souweidane, Dr. Oren Becher, Dr. Kathy Warren, and Dr. Jeffrey Greenfield for being the torchbearers in our fight against DIPG.As the excitement of the holidays quickly approaches, we can’t help but share a deep sadness with DIPG families around the world who may have to celebrate without their child or prepare for what may be their last holiday with them. Our hearts go out to DIPG children especially during this time of year, but we know that there are still ways we can make their holidays bright. When you support the Cristian Rivera Foundation, our funding not only goes towards research, it also goes directly to families affected by DIPG. Giving a donation today could mean helping a DIPG family pay their medical bills or helping them to purchase presents when funds may be tight. It could mean gifting a DIPG family a holiday vacation for what may be their last extended time to spend with their children. Please consider making a tax-deductible donation today at the following link cristianriverafoundation.org/donation.html Another way you can make a positive impact is by becoming a Committee Member of our foundation. As 2019 draws to a close, we are on the look-out for people who are just as inspired to make a difference. Please go on our website and visit our Board Members page cristianriverafoundation.org/committee.html to get to know the heroes who are supporting our mission. Get in touch with us at the following link cristianriverafoundation.org/contact.html to learn more about what it takes to become a Committee Member and send us an email at info@cristianriverafoundation.org to express your interest in joining our mission. Until then, we are incredibly proud of the year that we’ve had and all the progress we’ve made towards fighting DIPG. From the bottom of our hearts, we wish everyone a joyful holiday and a happy new year!
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera Founder of The Cristian Rivera Foundation “Forever Cristian’s Daddy”

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez.

Committee Members: Aldo Marin, Alex Garcia, Carlos Colon, Ed Martin,Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Steve Cox, and Vito Bruno.

Committee Friends: Ben Velazquez, Dr. Manuel A. Moran,

Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez and Karla De Epstein

 
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Copyright © 2019 Cristian Rivera Foundation, All rights reserved. Our mailing address is: Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020 cristianriverafoundation.org

Cristian Rivera Foundation
2019 November Newsletter

Nov 2019 Newsletter

Cristian Rivera Foundation 2019 November Newsletter

On November 13th, 2019 we hosted the 11th Annual Cristian Rivera Foundation Celebrity Gala at Capitale in New York City. Every year, we are extremely grateful for the opportunity to host this magical evening and to remember and share Cristian’s journey with all of you. The Cristian Rivera Foundation has proudly been able to change the fate of victims who suffer from DIPG and make the dream of a cure, achievable. This year’s Gala was hosted by one of our Board of Directors and Anchor of NBC’s “Today in New York”, Darlene Rodriguez, and Cristian Rivera Foundation Chairman of the Board, Andy Epstein. This year’s Gala theme was Stars. Looking to the stars served as a reminder that if we continue to fight DIPG and relentlessly pursue a cure, we can give children the opportunity to become the stars they were meant to be. Through CRF’s efforts of raising awareness and financial support for DIPG research, we come closer every year. We are delighted to highlight some of our favorite moments throughout the evening:
  • We were honored to have several celebrities in attendance who support CRF and our mission, including Committee Members actor-comedian Kenan Thompson and actor Luis Guzman, NBC Anchor and CRF Board of Director Darlene Rodriguez, TV personality AJ Calloway, actor Ramon Rodriguez, actor Vincent Young, founder of the Guardian Angels Curtis Sliwa, NY Yankees and Mets baseball legend Dwight “Doc” Gooden, actress Annabella Sciorra, actor Bo Dietl, Randy Jones of The Village People, actor Joe Donofrio, Hip-Hop Legend Richard “Crazy Legs” Colon, famed journalist Michael Musto, and Associate Editor of Vanity Fair George Wayne.
  • We celebrated and honored DIPG survivor Lisha Ayala, the first patient to show promising results of Dr. Souweidane’s clinical trial. Lisha is now living with DIPG for 7 years with no tumor growth. There are now 2 other survivors showing results similar to Lisha’s.
  • We remembered DIPG Angel Lucas Harashima with the 2019 CRF Golden Wings Honor, which was accepted with moving words from his loving parents Hide and Sansan.
  • Our partner and hero, Dr. Mark Souweidane, presented Dr. Kathy Warren, a respected pediatric neuro-oncologist and DIPG researcher from the Dana Farber Institute, with the 2019 CRF Vision of Hope Award for her audacity and perseverance in the treacherous territory of finding the best ways to treat DIPG patients.
  • Actor and CRF Committee Member Luis Guzman along with actor Ramon Rodriguez presented the 2019 CRF Humanitarian Award to Breakdancing Legend Richard “Crazy Legs” Colon, for assisting victims of Hurricane Maria.
  • Committee Members Jesse Allison and Jarrad Seuferling presented the 2019 CRF Outstanding Service and Dedication Award to our loyal Committee Member Aldo Marin.
  • Dinner was filled with star-studded performances beginning with young Opera Singer Belangel who was introduced by the two “Docs”. One was Dr. Oren Becher, one of our medical partners, and the other was baseball legend Dwight “Doc” Gooden. Next, Grammy Award winning audio engineer and manager James Cruz along with CRF’s proud publicist Lizzie Grubman introduced the talented children of Ballet Hispanico. Finally, an electrifying performance was given by Hip-Hop violinists Svet and Tanya Tingarova who were introduced by Curtis Sliwa and Dr. Jeffrey Greenfield, Dr. Souweidane’s partner and another one of our heroes working to terminate DIPG.
  • An impromptu performance on the dance floor was given by Mad Stuntman of his hit song from Madagascar, “I Like to Move It, Move It”. He was able to get the whole room moving and took the party to another level!
  • The talented Christina Evangeline made our starry night vision come true with elegance and stunning décor. We had our most beautiful centerpieces and floral arrangements yet!
  • Kenan Thompson and John LaBarbera were our two biggest donors. This marks a few consecutive years where Kenan has been one of our biggest contributors. Thanks to their outstanding generosity, we can continue to provide important support to DIPG families.
The bulk of our funding from that evening came from generous donations, silent auction bids, and our thrilling live auction. During the live auction, once-in-a-lifetime opportunities were auctioned off such as dinner with Luis Guzman, SNL tickets, a Yankees on Field Experience, and Dinner Parties with renowned chefs Nick Lucci, Goya’s own Chef Fernando Desa, and Celebrity Chef Alex Garcia. In addition, we auctioned off the ability to sponsor a summer fellow at Weill Cornell Medical Center, the chance to give a DIPG family the trip of their dreams through our Wishes Come True program, and the opportunity for a student to shadow the brilliant Dr. Mark Souweidane for one week. As remarkable and successful as 2019 has been, the year is almost over! Every year we inch closer towards a cure. Perseverance is up to us in sustaining hope for DIPG children. It’s not too late to make a charitable contribution to the Cristian Rivera Foundation before the New Year. Your contribution is tax deductible and will help fund DIPG clinical research and innovative clinical trials conducted by Dr. Mark Souweidane of Memorial Sloan-Kettering Cancer Center and the Weill Cornell Medical Center and Dr. Oren Becher at the Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Please consider making a donation at the following link: cristianriverafoundation.org/donation.html We would like to thank each and every one of you for the support you have offered to the Cristian Rivera Foundation. With all of you behind us, we’ve been able to make a profound difference in the lives of DIPG families and spread necessary awareness for DIPG – all in the hopes of giving children another chance at life. You can relive the 11th Annual Cristian Rivera Foundation Celebrity Gala by checking out our pictures at: cristianriverafoundation.org/gala11/index.html
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera Founder of The Cristian Rivera Foundation “Forever Cristian’s Daddy”

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez.

Committee Members: Aldo Marin, Alex Garcia, Carlos Colon, Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Steve Cox, and Vito Bruno.

Committee Friends: Ben Velazquez, Dr. Manuel A. Moran, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

 Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez and Karla De Epstein

 

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Copyright © 2019 Cristian Rivera Foundation, All rights reserved. Our mailing address is: Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020 cristianriverafoundation.org

Cristian Rivera Foundation
October 2019 Newsletter

 
Oct 2019 Newsletter

Cristian Rivera Foundation 2019 October Newsletter

As the leaves start to fall, we can’t help but look forward to our 11th Annual Cristian Rivera Foundation Celebrity Gala on Wednesday, November 13th. We are weeks away from the fantastic evening we have planned to help save the lives of beautiful children and cure DIPG. The theme of this year’s gala is STARS which holds a lot of meaning for us because the progress we make towards curing DIPG gives children the opportunity to fulfill their potential and become the stars they were meant to be. We have an exciting night planned that starts at 6pm with a glowing, star-studded red carpet followed by cocktail hour and a sit-down dinner prepared by a Michelin-star chef. This year we’ve taken the gala to the next level as a black-tie affair with an open bar from 6-11pm. Throughout the evening we’ll be presenting awards, holding a live and a silent auction of rare items, and we’ve saved plenty of time to dance the night away. We always reflect on the importance of the work we do by honoring the brave children whose lives were senselessly taken by DIPG. At this year’s gala, DIPG Angel Lucas Harashima is the 2019 recipient of the Cristian Rivera Foundation Golden Wings Award. His loving parents, Hide and Sansan, will grace us with their attendance in honor of their beloved son. This year Dr. Mark Souweidane will be presenting Dr. Kathy Warren with our 2019 Vision & Hope Award for her determination to define new ways to deliver therapy to tumors that are tolerable for pediatric brain cancer patients. Dr. Warren is an internationally recognized expert in pediatric neuro-oncology from the Dana Farber Cancer Institute in Boston, MA. Last year’s recipient of the Cristian Rivera Foundation Humanitarian Award, actor Ramon Rodriguez, will present this year’s award to Richard “Crazy Legs” Colon for his humanitarian efforts in Puerto Rico after Hurricane Maria. “Crazy Legs” is a hip-hop pioneer, breakdancing legend, and a proud Bronx native. His partnerships with Red Bull and other local organizations have aided him in providing substantial hurricane relief effort. Finally, last year’s winning committee members, Jesse Allison and Jarrad Seuferling, will present our beloved committee member Aldo Marin with the 2019 Cristian Rivera Foundation Outstanding Service and Dedication Award. Aldo is a respected music producer and former DJ whose phenomenal service to our foundation this year earned him this well-deserved award. Another exceptional member of our board is our Committee Friend, Maggie Meehan. This month she is The Cristian Rivera Foundation highlighted Member of the Month for her incomparable passion towards our foundation’s mission. Who is Maggie Meehan? Maggie Meehan is a hospice social worker who wears many different hats but one of her most unique qualities that makes her shine above the rest is her unrivaled passion to help people and live life to the fullest. Maggie has been living in Belmar, NJ for the past two years since she obtained a job there at the Visiting Nurses Association. She is one of 6 girls in her family and her passion to help others came from the life-altering experience of losing her father at the young age of 16. Since then, Maggie has had a remarkable determination to advocate for those who need help in every way that she can. What made you decide to get involved with the Cristian Rivera Foundation? Maggie was inspired to work with CRF 2-3 years ago when she was offered a job with the foundation but pursued another work opportunity. Despite following a different path, Maggie and our founder, John “Gungie” Rivera, immediately developed a strong relationship and she felt motivated by John to help make a difference. “I loved the mission and how passionate John is in everything that he does. I wanted to continue to be involved with something really incredible and so I continued to volunteer and attend fantastic events, eventually I had the pleasure of becoming a Committee Friend,” – said Meehan. How has the Cristian Rivera Foundation impacted your life? Maggie said, “Being a part of the Cristian Rivera Foundation has given me many opportunities to meet other dedicated and passionate people with a similar mindset and to attend awe-inspiring events like the gala. The foundation has given me another sense of community with an additional group of fantastic people in my life,”. How do you feel about the progress we’ve made as a foundation? “We continue to go above and beyond supporting the children and families affected by DIPG but there’s always room for us to do more and I feel extremely excited for what the future has to hold for all of the incredible events, opportunities, and engagements we have planned for the future,”- said Maggie. You don’t have to become a committee member to help fight against DIPG. There are so many things you can do that could potentially save lives today: Become a Sponsor – There are many different levels of sponsorship in order to match your giving capability. We’re incredibly proud to partner with amazing companies like Goya Foods, B&A Food Brokers, Patrick B Jenkins and Associates, Bronx Dems, PNC Bank, Dr Jacquie Smiles, Supermarket Italy, Joule Ent, Perfect Smile Dental and more. Check out this link to view our sponsorship options. All proceeds go towards research and clinical trials to find a cure for DIPG. cristianriverafoundation.org/sponsorship.html Purchase an Ad for the Gala’s Program – Are you unable to attend this year’s gala but you or your family would like to give a personalized message of hope? Would you like to promote your personal business AND raise money that’s supports our mission at the same time? You can either purchase a half or full page ad that will be displayed in the programs printed for our gala at cristianriverafoundation.org/programads.html Purchase Tickets – There’s still a window of opportunity to purchase tickets to our 11th Annual Cristian Rivera Foundation Celebrity Gala on Wed, November 13th at Capitale in NYC but that window is closing very, very soon. We have a handful of tickets left as the gala is only weeks away. Please purchase tickets at the following link cristianriverafoundation.org/gala-table-tickets.html Make a Donation – Every dollar counts when it comes to saving lives! Even donations in small amounts are tax-deductible and can create ripple effects in our groundbreaking research. Visit cristianriverafoundation.org/donation.html and click on the red Donation tab where you can send money via PayPal or make a check payable to the Cristian Rivera Foundation. Please forward all of our happenings and giving opportunities to your families, friends, and colleagues and we look forward to seeing you at our gala in November! Full steam ahead!
The 11th Annual Cristian Rivera Foundation Celebrity Gala is sponsored by
Platinum: Platinum
Gold: Gold
Silver: Silver
Silver
Bronze: Bronze
Bronze
In-Kind: Bronze
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera and Robert Vazquez

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera (Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez.

Committee Members: Aldo Marin, Alex Garcia, Carlos Colon, Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox, and Vito Bruno.

 Committee Friends: Ben Velazquez, Dr. Manuel A. Moran, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

 Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez and Karla De Epstein

 
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Copyright © 2019 Cristian Rivera Foundation, All rights reserved. Our mailing address is: Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020 cristianriverafoundation.org

Cristian Rivera Foundation
September 2019 Newsletter

 
Sept 2019 Newsletter

Cristian Rivera Foundation 2019 September Newsletter

As summer has drawn to a close, we look back at the fun-filled events we held to continue fueling funds towards our life-saving mission. This past June we held our 2nd Annual Cristian Rivera Foundation Full Steam Ahead 5K in Van Cortlandt Park in The Bronx where our supporters came out and participated for our cause.  The walk was amazing and introduced our cause to new supporters.  We also spent a beautiful summer day on the water during our 4th Annual Cristian Rivera Foundation Freestyle Flashback Boat Ride which featured a live performance by Reggae Legend, Red Fox, and was hosted by CRF supporter Che and our very own committee member Carlos Yepez. Finally, during New York Fashion Week, on September 5th,  Taiwanese designer, Sami Chen of HappyFish Fashion, dedicated her show in honor of the Cristian Rivera Foundation. Also, our founder John Gungie Rivera’s very own daughter, Sophia, had the chance to grace NYC’s runway! Each September we remember National Childhood Cancer Awareness Month to create a deeper understanding of how cancer affects hundreds of thousands of children every year. DIPG affects 200-300 children per year which is considered “too rare” to receive government funding. The Cristian Rivera Foundation works relentlessly to fill that funding gap for promising research to support families who deserve hope and concrete options to move forward after diagnosis. On Wednesday, November 13th, our 11th Annual Celebrity Fundraising Gala will be held in efforts to close this funding gap and boost research to the STARS – our theme for this year. It will be a delightful evening filled with prizes, auctions, live painting, performances, and dancing. It’s because of our rock star supporters and committee members that we can celebrate all of the progress we’ve made towards finding a cure. The event will be a black-tie affair held from 6pm – 11pm at Capitale on 130 Bowery, NYC and there’s still time to reserve your seat. https://cristianriverafoundation.org/gala-table-tickets.html All proceeds from the gala will go directly towards the research of Dr. Souweidane and Dr. Oren Becher, two of the most highly esteemed pediatric oncologists in the nation. Other than attending the gala, here are the best ways you can make a difference: Become a Sponsor – There are many different levels of sponsorship in order to match your giving capability. We’re incredibly proud to partner with amazing companies like Goya Foods, B&A Food Brokers, Patrick B Jenkins and Associates, Bronx Dems, PNC Bank, Dr Jacquie Smiles, Supermarket Italy, Joule Ent, Perfect Smile Dental and more. Check out this link to view our sponsorship options. https://www.cristianriverafoundation.org/sponsorship.html Purchase an Ad for the Gala’s Program – Are you unable to attend this year’s gala but you or your family would like to give a personalized message of hope? Would you like to promote your personal business AND raise money that’s supports our mission at the same time? You can either purchase a half or full page ad that will be displayed in the programs printed for our gala at https://cristianriverafoundation.org/programads.html Purchase a Table or Tickets to our 11th Annual Celebrity Fundraising Gala – Even if you can’t attend this year’s gala, consider purchasing a table or a ticket and we will donate the seats to a DIPG family so they can join in on the fun! Please click the link below to purchase tickets: https://cristianriverafoundation.org/gala-table-tickets.html Make a Donation – Every dollar counts when it comes to saving lives! Even donations in small amounts are tax-deductible and can create ripple effects in our groundbreaking research. Visit https://cristianriverafoundation.org/donation.html and click on the red Donation tab where you can send money via PayPal or make a check payable to the Cristian Rivera Foundation. Lastly, we commend our all-star board member, Andy Epstein, as he takes on his new position as Chairman of the Board for our foundation. His years of loyal perseverance in raising awareness as well as significant funds for our cause have catapulted him to a very special place on our board. Here is what Andy had to say about his new role: “I’m honored and humbled to have been named the Chairman of the Board of Directors for the Cristian Rivera Foundation. I look forward to this new responsibility and to continue my efforts alongside John Rivera, our founder, to find a cure for Diffuse Intrinsic Pontine Glioma, a deadly cancerous pediatric brain tumor that typically affects children between the ages of 1 & 9. Our foundation continues to raise awareness, support families in need and fund clinical trials. The surgeons and their medical teams that we support have made amazing strides in recent years and we now have three children in remission as a result of their efforts – a feat that was once considered impossible in our lifetime! Together alongside our Board of Directors, committee members, and our generous donors I am hopeful that we will one day find a cure”. In addition, our dedicated committee member, Carlos Yepez, now sits on the Board of Directors. We honor Carlos for taking up this new responsibility and are excited for the progress we will make with his dynamic presence in this significant role. This is what Carlos had to say about the opportunity: “I am honored to be considered and appointed to the Cristian Rivera Foundations Board of Directors. In my 5 years of being with the organization, I have witnessed firsthand the progress and positive impact this organization has had on children and families affected by DIPG. The determination and passion delivered by the founder John Gungie Rivera and our Chairman of the Board Andy Epstein is contagious. I can honestly say this is one of the organizations that you can measure success and see the progress that the monies raised deliver. My commitment to this organization and those affected by DIPG remains stronger than ever. In this new role I look forward to making a positive impact and deliver on our goal of finding a cure. We have no excuses, no retreat, and no surrender. Let’s make it happen and win big”. Please forward all of our happenings and giving opportunities to your families, friends, and colleagues and we look forward to seeing you at our gala in November! Full steam ahead!
The 11th Annual Cristian Rivera Foundation Celebrity Gala is sponsored by
Platinum: Platinum
Gold: Gold
Silver: Silver
Silver
Bronze: Bronze
In-Kind: Bronze
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable and incurable brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!
How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!
PLEASE DONATE
Available Now Cristian´s Journey A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera and Robert Vazquez

Available on our website CristianRiveraFoundation.org Proceeds from the purchase of “Cristian´s Journey” will be donated to support D.I.P.G. research and trials at Weill Cornell Medical Center. Thank you for bringing us closer to a cure.
Sincerely The Cristian Rivera Foundation

John “Gungie” Rivera (Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Chairman of the Board: Andy Epstein

Board of Directors: Carlos Yepez and Darlene Rodriguez. Committee Members: Aldo Marin, Alex Garcia, Carlos Colon, Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison, Kenan Thompson, Louie Vega, Luis Guzman, Michael Flatley, Meiling Macias Toro, Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox, and Vito Bruno.

Committee Friends: Ben Velazquez, Dr. Manuel A. Moran,

Edward Caban, Joseph Balestrine, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez and William Pla.

 

Honorary Committee Members: The Late Anthony Mason and The Late Miriam Colon.

Supporters: David Rodriguez, Dennis Rodriguez, Jose Mantilla and Karla De Epstein

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