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Cristian Rivera Foundation
October 2019 Newsletter

 

Oct 2019 Newsletter


Cristian Rivera Foundation 2019
October Newsletter

As the leaves start to fall, we can’t help but look forward to our 11th Annual Cristian Rivera Foundation Celebrity Gala on Wednesday, November 13th. We are weeks away from the fantastic evening we have planned to help save the lives of beautiful children and cure DIPG. The theme of this year’s gala is STARS which holds a lot of meaning for us because the progress we make towards curing DIPG gives children the opportunity to fulfill their potential and become the stars they were meant to be.

We have an exciting night planned that starts at 6pm with a glowing, star-studded red carpet followed by cocktail hour and a sit-down dinner prepared by a Michelin-star chef. This year we’ve taken the gala to the next level as a black-tie affair with an open bar from 6-11pm. Throughout the evening we’ll be presenting awards, holding a live and a silent auction of rare items, and we’ve saved plenty of time to dance the night away.

We always reflect on the importance of the work we do by honoring the brave children whose lives were senselessly taken by DIPG. At this year’s gala, DIPG Angel Lucas Harashima is the 2019 recipient of the Cristian Rivera Foundation Golden Wings Award. His loving parents, Hide and Sansan, will grace us with their attendance in honor of their beloved son.

This year Dr. Mark Souweidane will be presenting Dr. Kathy Warren with our 2019 Vision & Hope Award for her determination to define new ways to deliver therapy to tumors that are tolerable for pediatric brain cancer patients. Dr. Warren is an internationally recognized expert in pediatric neuro-oncology from the Dana Farber Cancer Institute in Boston, MA.

Last year’s recipient of the Cristian Rivera Foundation Humanitarian Award, actor Ramon Rodriguez, will present this year’s award to Richard “Crazy Legs” Colon for his humanitarian efforts in Puerto Rico after Hurricane Maria. “Crazy Legs” is a hip-hop pioneer, breakdancing legend, and a proud Bronx native. His partnerships with Red Bull and other local organizations have aided him in providing substantial hurricane relief effort.

Finally, last year’s winning committee members, Jesse Allison and Jarrad Seuferling, will present our beloved committee member Aldo Marin with the 2019 Cristian Rivera Foundation Outstanding Service and Dedication Award. Aldo is a respected music producer and former DJ whose phenomenal service to our foundation this year earned him this well-deserved award.

Another exceptional member of our board is our Committee Friend, Maggie Meehan. This month she is The Cristian Rivera Foundation highlighted Member of the Month for her incomparable passion towards our foundation’s mission.

Who is Maggie Meehan?
Maggie Meehan is a hospice social worker who wears many different hats but one of her most unique qualities that makes her shine above the rest is her unrivaled passion to help people and live life to the fullest. Maggie has been living in Belmar, NJ for the past two years since she obtained a job there at the Visiting Nurses Association. She is one of 6 girls in her family and her passion to help others came from the life-altering experience of losing her father at the young age of 16. Since then, Maggie has had a remarkable determination to advocate for those who need help in every way that she can.

What made you decide to get involved with the Cristian Rivera Foundation?
Maggie was inspired to work with CRF 2-3 years ago when she was offered a job with the foundation but pursued another work opportunity. Despite following a different path, Maggie and our founder, John “Gungie” Rivera, immediately developed a strong relationship and she felt motivated by John to help make a difference. “I loved the mission and how passionate John is in everything that he does. I wanted to continue to be involved with something really incredible and so I continued to volunteer and attend fantastic events, eventually I had the pleasure of becoming a Committee Friend,” – said Meehan.

How has the Cristian Rivera Foundation impacted your life?
Maggie said, “Being a part of the Cristian Rivera Foundation has given me many opportunities to meet other dedicated and passionate people with a similar mindset and to attend awe-inspiring events like the gala. The foundation has given me another sense of community with an additional group of fantastic people in my life,”.

How do you feel about the progress we’ve made as a foundation?
“We continue to go above and beyond supporting the children and families affected by DIPG but there’s always room for us to do more and I feel extremely excited for what the future has to hold for all of the incredible events, opportunities, and engagements we have planned for the future,”- said Maggie.

You don’t have to become a committee member to help fight against DIPG. There are so many things you can do that could potentially save lives today:

Become a Sponsor –
There are many different levels of sponsorship in order to match your giving capability. We’re incredibly proud to partner with amazing companies like Goya Foods, B&A Food Brokers, Patrick B Jenkins and Associates, Bronx Dems, PNC Bank, Dr Jacquie Smiles, Supermarket Italy, Joule Ent, Perfect Smile Dental and more. Check out this link to view our sponsorship options. All proceeds go towards research and clinical trials to find a cure for DIPG.
cristianriverafoundation.org/sponsorship.html

Purchase an Ad for the Gala’s Program –
Are you unable to attend this year’s gala but you or your family would like to give a personalized message of hope? Would you like to promote your personal business AND raise money that’s supports our mission at the same time? You can either purchase a half or full page ad that will be displayed in the programs printed for our gala at
cristianriverafoundation.org/programads.html

Purchase Tickets –
There’s still a window of opportunity to purchase tickets to our 11th Annual Cristian Rivera Foundation Celebrity Gala on Wed, November 13th at Capitale in NYC but that window is closing very, very soon. We have a handful of tickets left as the gala is only weeks away. Please purchase tickets at the following link cristianriverafoundation.org/gala-table-tickets.html

Make a Donation –
Every dollar counts when it comes to saving lives! Even donations in small amounts are tax-deductible and can create ripple effects in our groundbreaking research. Visit cristianriverafoundation.org/donation.html and click on the red Donation tab where you can send money via PayPal or make a check payable to the Cristian Rivera Foundation.

Please forward all of our happenings and giving opportunities to your families, friends, and colleagues and we look forward to seeing you at our gala in November! Full steam ahead!

The 11th Annual Cristian Rivera Foundation
Celebrity Gala is sponsored by

Platinum: Platinum
Gold: Gold
Silver: Silver
Silver
Bronze: Bronze
Bronze
In-Kind: Bronze
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available on our website CristianRiveraFoundation.org

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Chairman of the Board:
Andy Epstein

Board of Directors:
Carlos Yepez and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Ed Martin, Elis Pacheco, Fernando Ferrer,
Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, and Vito Bruno.

 Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Edward Caban, Maggie Meehan,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Vanessa Rodriguez
and William Pla.

 Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
David Rodriguez and Karla De Epstein

 

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Copyright © 2019 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
September 2019 Newsletter

 

Sept 2019 Newsletter


Cristian Rivera Foundation 2019
September Newsletter

As summer has drawn to a close, we look back at the fun-filled events we held to continue fueling funds towards our life-saving mission.

This past June we held our 2nd Annual Cristian Rivera Foundation Full Steam Ahead 5K in Van Cortlandt Park in The Bronx where our supporters came out and participated for our cause.  The walk was amazing and introduced our cause to new supporters. 

We also spent a beautiful summer day on the water during our 4th Annual Cristian Rivera Foundation Freestyle Flashback Boat Ride which featured a live performance by Reggae Legend, Red Fox, and was hosted by CRF supporter Che and our very own committee member Carlos Yepez.

Finally, during New York Fashion Week, on September 5th,  Taiwanese designer, Sami Chen of HappyFish Fashion, dedicated her show in honor of the Cristian Rivera Foundation. Also, our founder John Gungie Rivera’s very own daughter, Sophia, had the chance to grace NYC’s runway!

Each September we remember National Childhood Cancer Awareness Month to create a deeper understanding of how cancer affects hundreds of thousands of children every year. DIPG affects 200-300 children per year which is considered “too rare” to receive government funding. The Cristian Rivera Foundation works relentlessly to fill that funding gap for promising research to support families who deserve hope and concrete options to move forward after diagnosis.

On Wednesday, November 13th, our 11th Annual Celebrity Fundraising Gala will be held in efforts to close this funding gap and boost research to the STARS – our theme for this year. It will be a delightful evening filled with prizes, auctions, live painting, performances, and dancing. It’s because of our rock star supporters and committee members that we can celebrate all of the progress we’ve made towards finding a cure. The event will be a black-tie affair held from 6pm – 11pm at Capitale on 130 Bowery, NYC and there’s still time to reserve your seat. https://cristianriverafoundation.org/gala-table-tickets.html

All proceeds from the gala will go directly towards the research of Dr. Souweidane and Dr. Oren Becher, two of the most highly esteemed pediatric oncologists in the nation. Other than attending the gala, here are the best ways you can make a difference:

Become a Sponsor –
There are many different levels of sponsorship in order to match your giving capability. We’re incredibly proud to partner with amazing companies like Goya Foods, B&A Food Brokers, Patrick B Jenkins and Associates, Bronx Dems, PNC Bank, Dr Jacquie Smiles, Supermarket Italy, Joule Ent, Perfect Smile Dental and more. Check out this link to view our sponsorship options.
https://www.cristianriverafoundation.org/sponsorship.html

Purchase an Ad for the Gala’s Program –
Are you unable to attend this year’s gala but you or your family would like to give a personalized message of hope? Would you like to promote your personal business AND raise money that’s supports our mission at the same time? You can either purchase a half or full page ad that will be displayed in the programs printed for our gala at
https://cristianriverafoundation.org/programads.html

Purchase a Table or Tickets to our 11th Annual Celebrity Fundraising Gala –
Even if you can’t attend this year’s gala, consider purchasing a table or a ticket and we will donate the seats to a DIPG family so they can join in on the fun!
Please click the link below to purchase tickets:
https://cristianriverafoundation.org/gala-table-tickets.html

Make a Donation –
Every dollar counts when it comes to saving lives! Even donations in small amounts are tax-deductible and can create ripple effects in our groundbreaking research. Visit https://cristianriverafoundation.org/donation.html and click on the red Donation tab where you can send money via PayPal or make a check payable to the Cristian Rivera Foundation.

Lastly, we commend our all-star board member, Andy Epstein, as he takes on his new position as Chairman of the Board for our foundation. His years of loyal perseverance in raising awareness as well as significant funds for our cause have catapulted him to a very special place on our board. Here is what Andy had to say about his new role: “I’m honored and humbled to have been named the Chairman of the Board of Directors for the Cristian Rivera Foundation. I look forward to this new responsibility and to continue my efforts alongside John Rivera, our founder, to find a cure for Diffuse Intrinsic Pontine Glioma, a deadly cancerous pediatric brain tumor that typically affects children between the ages of 1 & 9. Our foundation continues to raise awareness, support families in need and fund clinical trials. The surgeons and their medical teams that we support have made amazing strides in recent years and we now have three children in remission as a result of their efforts – a feat that was once considered impossible in our lifetime! Together alongside our Board of Directors, committee members, and our generous donors I am hopeful that we will one day find a cure”.

In addition, our dedicated committee member, Carlos Yepez, now sits on the Board of Directors. We honor Carlos for taking up this new responsibility and are excited for the progress we will make with his dynamic presence in this significant role. This is what Carlos had to say about the opportunity: “I am honored to be considered and appointed to the Cristian Rivera Foundations Board of Directors. In my 5 years of being with the organization, I have witnessed firsthand the progress and positive impact this organization has had on children and families affected by DIPG. The determination and passion delivered by the founder John Gungie Rivera and our Chairman of the Board Andy Epstein is contagious. I can honestly say this is one of the organizations that you can measure success and see the progress that the monies raised deliver. My commitment to this organization and those affected by DIPG remains stronger than ever. In this new role I look forward to making a positive impact and deliver on our goal of finding a cure. We have no excuses, no retreat, and no surrender. Let’s make it happen and win big”.

Please forward all of our happenings and giving opportunities to your families, friends, and colleagues and we look forward to seeing you at our gala in November! Full steam ahead!

The 11th Annual Cristian Rivera Foundation
Celebrity Gala is sponsored by

Platinum: Platinum
Gold: Gold
Silver: Silver
Silver
Bronze: Bronze
In-Kind: Bronze
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available on our website CristianRiveraFoundation.org

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Chairman of the Board:
Andy Epstein


Board of Directors:
Carlos Yepez and Darlene Rodriguez.


Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Ed Martin,
Elis Pacheco, Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Michael Flatley, Meiling Macias Toro,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, and Vito Bruno.

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,

Edward Caban, Joseph Balestrine, Maggie Meehan,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Vanessa Rodriguez
and William Pla.

 

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
David Rodriguez, Dennis Rodriguez, Jose Mantilla
and Karla De Epstein

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Some great news leading into our 11th Annual Celebrity Gala. We are honored to receive the highest honor on GuideStar.

The Cristian Rivera Foundation is continuously working hard to create awareness, fund groundbreaking research, and trials, and economically support families impacted by DIPG.

For the 2nd consecutive year, The Cristian Rivera Foundation was awarded the Platinum Seal of Transparency from GuideStar, as a demonstration of our commitment to nonprofit transparency and accountability.

GuideStar is the non-profit industry leader in analysis and public information and issues their rating based on transparency and the positive activity conducted in the non-profit sector.

For over a decade, our foundation has worked hard to showcase our progress towards our mission, and our long-held belief in being transparent about our work. Here at the Cristian Rivera Foundation, we’re proud to have received the prestigious Platinum Seal of Transparency from GuideStar. We know that GuideStar is a useful tool for donors and we will continue to update the profile to make sure it’s an accurate representation of the work we do. As a GuideStar Platinum participant, we will use their platform to share a wealth of up-to-date information about our work to their immense online audience of nonprofits, grant makers, individual donors, the media, and to our supporters.

“I am very happy to see that the Cristian Rivera Foundation has achieved yet again the Platinum Star rating for GuideStar. This is a true indication of the hard work and transparency that the foundation is delivering. As we continue our fight against DIPG it’s important more than ever to show our supporters that we mean business. I am proud to share this accomplishment with the world, but more importantly our donors and future donors. Thank you for all you do Cristian Rivera Foundation and let’s make it Platinum again next year”. said CRF Committee Member Carlos Yepez.

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating. Without you, our foundation wouldn’t have received such a reputable title. Make sure to subscribe to our newsletters to stay updated on our upcoming events.

For the second consecutive year, The Cristian Rivera Foundation is honored to have received the 2019 Top-Rated Great Nonprofits Award from Great Nonprofits.

 

This is all possible because of your support.  We extend a big Thank You to all of our supporters, without you this wouldn’t have been possible. “We are so honored to have received this award for our second consecutive year. Fundraising is very challenging and at times extremely frustrating. This award validates our efforts thus helping to motivate and empower CRF to continue to achieve the goal of our foundation, to save the lives of children affected by DIPG.  We will continue to create awareness and continue to fund the clinical trials that will one day find a cure for this deadly disease” said CRF’s Board of Director’s Member Andy Epstein

We can’t wait to see each and every one of you at our 11th Annual Celebrity Gala on November 13th, 2019 at Capitale in New York City.

Let’s celebrate and help end rare pediatric brain cancer.

Click here to view our page on GreatNonprofits and leave a review.

Once again No Growth,
No activity on Lisha Ayala’s July 2019 MRI

CRF BREAKING NEWS- The Cristian Rivera Foundation is pleased to announce that Lisha Ayala received her MRI results today and she has shown No sign of Tumor Growth. We are grateful to witness firsthand the success of this foundation. Your generosity and support has helped us underwrite the clinical trials that helped Lisha and many more like her, have a fighting chance against DIPG. This also means, that for the last 6 years, Lisha Ayala has been able to grow into a young adult and show the world that we can beat DIPG. Your continuous dedication to the Cristian Rivera Foundation has made Lisha’s journey possible! We thank you, Lisha Thanks you, and the families impacted by DIPG thank you!

“Sound of Fashion” Runway Shows Taiwanese Designer, Sami Chen of HappyFish Fashion along with the beautiful Miss America, Nia Franklin to benefit the Cristian Rivera Foundation.

Miss America, Nia Franklin walks the runway  today, in this weeks opening event for the 2019 NYFW. For the first time, 25-year old, Nia Franklin walks alongside Life Size Robots. This rare found idea was put to life by CRF proud supporter and talented Taiwanese Fashion Designer, Sami Chen of HappyFish Fashion. Todays show is in honour of The Cristian Rivera Foundation and all proceeds will help further our search for a cure for DIPG.

Miss America 2019, Nia Franklin Will Walk Alongside Life-Sized Robots at NYFW Benefiting the Cristian Rivera Foundation.

A New York Fashion Week First

Miss America 2019 Nia Franklin to walk the Runway alongside Life Size Robots from Advanced Robot Solutions when Circuit City joins Monster in presenting the “Sound of Fashion” Runway Show Season 5 Benefitting the Cristian Rivera Foundation featuring Taiwanese Designer Sami Chen of HappyFish Fashion

Thursday February 7, 2019 @ 7pm
122 W 27th Street, NY, NY 10010

History will be made this fashion week in NY when 2019 Miss America Nia Franklin https://missamerica.org/titleholders/2019 -new-york/ will walk the runway alongside life size robots from Advanced Robot Solutions https://getrobotsolutions.com showcasing the 5th Season of Monster’s “Sound of Fashion along with Circuit City https://circuitcity.com/shop to benefit the Cristian Rivera Foundation http://cristianriverafoundation.org. This year Monster https://www.monsterstore.com in celebrating its 40th Anniversary, will feature the designs of Taiwanese designer Sami Chen of HappyFish Fashion showing for her 4th time at NYFW.

Monster Products: For the past 40 years, Monster® has been a catalyst for innovation and big ideas. Discovering that cables in hi-fi systems influenced the sound, Head Monster Noel Lee developed Monster Cable – an immediate hit. Monster® engineered the sound of Beats® headphones, and has since become a leading manufacturer of high-performance headphones, all featuring Pure Monster Sound™ technology. Today, the company offers advanced connectivity solutions for professional musicians, home entertainment and consumers alike and sponsors the Sound of Fashion each season at New York Fashion Week to bring together music and fashion like never before.

Circuit City comes with a long history of tech innovation, dating back to the late 1940’s, and intertwine s this deep rooted knowledge and know-how into the modern shopping experience. We believe in making the first move, encouraging gusto, and disrupting t he way that technology and commerce connect. Their personalized shopping platform is designed to give you the one -on-one customized experience you would get as if you had a personal shopping assistant by your side. Circuit City is extremely proud to have such a reputable brand name to work under and we don’t take this responsibility lightly. And while they are outrageously loyal to the prestige of this strong brand name, they also acknowledge that fun and exploration are essentially to maintaining any long-lasting, modern, and forward-thinking brand identity.

Advanced Robot Solutions is the official master distributor for Future Robot, a South Korean service robotics company. The FURo-D model is currently the most popular robot on the market, with robots located in airports, hospitals, doctor’s offices worldwide.

Cristian Rivera Foundation: Cristian Rivera’s journey and determination inspired his father, John “Gungie” Rivera, to start the Cristian Rivera Foundation, a New York City -based 501(c)(3) not-for-profit organization, that is committed to finding a cure for Diffuse Intrinsic Pontine Glioma (DIPG) (a form of pediatric brain cancer) through education, program funding and family support. The foundation strives to increase public awareness and understanding of Pontine Glioma, as well as raise funds that will support medical facilities and scientific trials whose primary focus is to find a cure for the disease.

Miss America 2019 Nia Franklin: Nia was crowned Miss Five Boroughs at the age of 23, and then went on to win Miss New York 2018. And was awarded the job of Miss America 2019 on September 9, 2018. Nia has been a teacher and music mentor, and has written over 100 songs, including one she began performing at age five. For the Miss America 2019 competition, Franklin sang “ Quando m’en Vo’” from Puccini’s La Boheme and wowed audiences and judges alike. Nia is a native New Yorker and this will be her first time walking at NYFW.

HAPPYFISH FASHION by Sami Chen will show in her 4th season at New York Fashion Week, following her successful two season premiere with Rolls Royce and Monster. Sami’s gowns and dresses have wowed audiences to live music and even dressed two celebrity show dogs and one talented rabbit on a sk ateboard who made their way down the runway. The dresses drew the full attention of the audience as the press could not get enough of her creations staying after the show to catch more. The show came from the creative inspiration of lead designer Sami Chen. Sami who learned her trade at Shih Chien School of Fashion in Taiwan and has been designing womenswear since childhood. In addition to being an internationally recogniz ed fashion designer, Sami is also an accomplished concert pianist and has won many competitions since the age of 5. “Happy Fish by Sami” was inspired by and symbolizes the joy and freedom associated with her designs along with her state of mind. As a bright star of the ne w fashion world, Sami’s smile and uplifting demeanor is not only evident in her creations, but also her personality. See www.HappyFishSami.com.

For Press Inquiries or interviews you can email or call
Simmons.Jon@SanbarPerformance.com or 702-781-1290.

Follow Here To View Full Press Ralease

Cristian Rivera Foundation January 2019 Newsletter

 

Jan 2019 Newsletter
Jan 2019 Newsletter

Cristian Rivera Foundation 2019
January Newsletter

What a year it has been!
2018 was a year of growth, a year of change, and another year closer to finding the cure for DIPG!

Our Founder, John “Gungie” Rivera and committee member,
Robert Vazquez, collaborated to write a Children’s book entitled,
“Cristian’s Journey”.

The foundation’s first publication, “Cristian’s Journey”, was released to help raise awareness and inspire people to become involved with the work taking place globally for pediatric brain cancer research.

This beautiful story depicts Cristian’s journey of love and benevolence throughout the big city. This book is a tale about passion and never giving up despite the odds you may face. 100% of the proceeds of the purchase of this book will be donated to pediatric brain tumor/DIPG research and clinical trials. Have you checked it out? Follow this link to purchase the book cristianriverafoundation.org/cristiansjourney.html

In addition to “Cristian’s Journey”, our 2018 events included the following special events, all designed to raise awareness for pediatric brain cancer research:

We launched our 1st Annual Cristian Rivera Foundation “Full Steam Ahead” 5k Walk/Run.

We hosted our 3rd Annual Cristian Rivera Foundation Freestyle Flashback Benefit Boat Ride.

We hosted our milestone 10th Annual Cristian Rivera Foundation Celebrity Gala and honored a variety of celebrities and doctors for their philanthropy. (Check out the Photos and Video of this amazing event).

Thank you for your continued support by attending, sponsoring, and donating to the Cristian Rivera Foundation.

Hosting these events have brought us to monumental milestone’s within the DIPG and medical community. As of the end of 2018, the Cristian Rivera Foundation has donated well over One Million Dollars ($1,000,000) to help support research and clinical trials for pediatric brain cancer/DIPG, and families who have been affected by this disease. Thank you for your love, passion, and for most importantly keeping these young children and their families in mind.

By your giving efforts, we are now closer than we’ve ever been to finding the cure for DIPG. Be proud- this is all possible because of You!

We would like to take the time to express our gratitude to some key players within our Foundation. Thank you to our Board of Directors, Committee Members, and our Committee Friends. Thank you all for your support, your deep desire to finding a cure for DIPG, and your genuine fellowship at our 2018 events. A very special thank you goes to Dr. Mark Souweidance and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Without you all playing a major role within our foundation, none of these milestone’s and accomplishments would have been possible.

One of our clinical trial patients, Lisha, Ayala, has reached a monumental milestone in her life by reaching a 6 year mark with no growth in her tumor! She is living the life of a normal teenager and continues to give hope to the DIPG and medical community. Lisha Ayala reminds us that with faith, your support, and help from the medical community, nothing is impossible. We remain steadfast in doing all that we can to make sure the DIPG children and their families are diagnosis free and we are believing together that we are a few steps closer than we have ever been before.

As you can see, we left 2018 and started 2019 on a great note but January is always a sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG on January 21st, 2007 and lost his Battle to DIPG just two short years later on, January 25th, 2009. Cristian would have been 16 years old had he’d been alive today. In honor of Cristian, our foundation will continue working the “Full Steam Ahead” mentality until we eradicate this disease from our world and no family has to suffer through the process of dealing with a child with DIPG.

You can be a part of the journey of finding a cure for DIPG, and make 2019 the year we say goodbye to this horrible disease. Simply stay connected with us. Join us at our events, share our journey with your family and friends, and please make efforts to our donation. Follow here to view our video that highlights our mission, vision, and objective of the Cristian Rivera Foundation.

Speaking of great supporters and being part of our journey, The Cristian Rivera Foundation highlighted Member of the Month is Committee Friend, Vanessa Rodriguez. Using her experience and resources, Vanessa has been an incredible addition to our team and made valuable contributions to our goals through her hard work and dedication.

Who is Vanessa Rodriguez?
Vanessa, a native New Yorker, is a real estate sales agent with The Corcoran Group. She advises clients at all price points and stages, from first time home buyers to seasoned international investors. She loves the city and all things cultural. She attended St. Jean Baptiste High School in the Upper East Side and graduated from Columbia University. When she’s not working with her clients selling properties or partaking in community events, Vanessa enjoys the small things in life: exploring new restaurants, Broadway theatre, making dinner with family, and going for walks and runs with her 2 doggies – Remy, the Miniature Pinscher and Jimmy, the Boxer.

What does it mean to you to be a part of
the Cristian Rivera Foundation?

It means a lot! I have learned the importance and power in giving back. I am truly honored by being a part of the Cristian Rivera Foundation, it is truly amazing. With the Cristian Rivera Foundation, I am able to help raise awareness and most importantly, give back to DIPG patients. The DIPG patients are children who are helpless when it comes to their health. The least I can do is give back, raise awareness, and be proactive so people are more aware and knowledgeable about the diagnosis.

What are your proudest moments as a Cristian Rivera Foundation Committee Member?
Some of the many proudest moments I have being a committee member is being able to educate others on DIPG and help advocate to spread awareness. I am proud to share with others how DIPG affects children and how I can help find ways to help raise awareness. I am also proud of the contributions I have made in a short period of time through my donations and raising donations through my network.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

 

To give a donation, please visit cristianriverafoundation.org/donation.html.
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundation and like us on Facebook at facebook.com/crisitanriverafoundation
stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available at smile.amazon.com,
Barnes and Nobile and on our website CristianRiveraFoundation.org

Cristian Rivera Foundation
Amazon Smile
Barnes & Noble

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Michael Flatley, Meiling Macias Toro,
Nirav Patel, Paul Pristavec, Rafael Toro,
Ramon E. Javier, Robert Vazquez, Steve Cox,
and Vito Bruno.

 Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Dorota Wallace, Edward Caban, Maggie Meehan, Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez, Vanessa Rodriguez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon. 

Supporters:
David Rodriguez, Ginalisa Monterroso,
and Karla De Epstein

 

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Copyright © 2019 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

DAILY NEWS EXCLUSIVE!
Tuesday, November 13, 2018
Cristian Rivera Foundation that battles deadly childhood cancer DIPG marks 10th annual event with a success story

Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)
Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)

The Cristian Rivera Foundation will have a reason to celebrate when it holds its 10th annual fundraising gala to fight a rare childhood cancer on Wednesday, Nov. 14.

The foundation has been on a mission over the past decade to find a cure for diffuse intrinsic pontine glioma, or DIPG, a rare form of deadly brain cancer mainly affecting small children. Each year, roughly 200 children are diagnosed with DIPG, and nearly all usually succumb to the aggressive cancer within 18 months.

But the celebrity-studded gala, at Manhattan venue Capitale, will commemorate a rare success story: 13-year-old Lisha Ayalais, who was diagnosed with DIPG six years ago, has defied the odds and continues to show no growth in her tumor.

”Lisha is doing phenomenal. We are going on 6 years and she is still DIPG-free,” said CRF founder John (Gungie) Rivera. “This is evidence that the work that we are doing — the trials that our doctors are working on — are effective.”

Rivera, a local music producer and promoter, started the foundation in honor of his son Cristian, who passed away from the disease at only 4 years old and is the driving force behind the event.

Though Cristian did not win his battle with DIPG, Rivera continues it on his son’s behalf, raising funds annually to help underwrite clinical trials aimed at treating and hopefully one day curing the condition.

Lisha is currently in one of those trials at Weill-Cornell Brain and Spine Center in Manhattan, working with Dr. Mark Souweidane, a pediatric neurosurgeon specializing in DIPG.

Cristian Rivera and John (Gungie) Rivera) (Handout)
Cristian Rivera and John (Gungie) Rivera) (Handout)

This year’s event, hosted by foundation co-chair Darlene Rodriguez of NBC News, will feature such celebrity guests as Kenan Thompson of “Saturday Night Live.”

Honorees include actor Ramon Rodriguez, who will receive a humanitarian award for his recent work in Puerto Rico with the 100Roofs Project that aims to help those on the island still struggling after last year’s devastating storms by providing carpenters and training locals to become professional roofers.

It was inspiring to see his commitment to Puerto Rico,” Rivera said. “It reminds me that I am not alone in my efforts to make a difference, even when facing major challenges.”

For more info on the Cristian Rivera Foundation, buy tickets to the gala or donate to the fight against DIPG, go to cristianriverafoundation.org.

 

Read More, visit nydailynews.com/life-style/health/ny-ent-viva-cristian-rivera-fund-20181113-story.html