Local Charity Aims To Cure Deadly Pediatric Cancer With Star Power




We love great non-for-profit work, for the eighth year in a row, New York City-based not-for-profit 501(c)(3) The Cristian Rivera Foundation is gathering celebrities, supporters and donors to raise money toward a groundbreaking clinical trial aimed at curing Diffuse Intrinsic Pontine Glioma (DIPG).

The eighth annual Cristian Rivera Foundation Celebrity Gala will be held at Broad Street Ballroom in Manhattan on Wednesday, November 30. The foundation namesake Cristian Rivera was only 4 years old when he was diagnosed with the rare pediatric brain stem tumor, which generally affects children between the ages of 1 and 9. Approximately 200 children are diagnosed with DIPG each year in the United States and most only survive for 3 to 18 months after diagnosis.

Through auction items, ticket sales and more, the eighth annual Cristian Rivera Foundation Celebrity Gala will raise money in support of a clinical trial at Memorial Sloan Kettering Cancer Center and Weill Cornell Medical College that officially got underway on May 1, 2012, thanks to the more than $700,000 in donations from the

Cristian Rivera Foundation to date. Spearheaded by Dr. Mark Souweidane, the Director of the Weill Cornell Pediatric Brain and Spine Center, this trial is the first of its kind to use convection-enhanced delivery to administer radio immunotherapy to children with an otherwise incurable tumor.Dr. Souweidane has found a way to operate on a tumor that had, until now, been deemed inoperable. Dr. Souweidane has developed a safe method for drug delivery to these tumors by a highly innovative surgical procedure. Up until this time surgery has played no role in the treatment plan for these children with DIPG. This procedure involves implanting a small hair-like device into the center of the tumor and then using a slow constant flow of drug directly into the involved brain stem. The Cristian Rivera Foundation is proud to support Dr. Souweidane’s important research.

The eighth annual Cristian Rivera Foundation Celebrity Gala will be hosted by Cristian Rivera Foundation Board of Director and Anchor of the award winning NBC’s “Today in New York”, Darlene Rodriguez. The event kicks off at 6pm with red carpet arrivals from esteemed guests and foundation committee members. Tickets are sold out and include passed hors d’oeuvres, five hours of open bar, and dinner provided by Celebrity Chefs Alex Garcia, a committee member of the Cristian Rivera Foundation. There will also be live and silent auctions offering one-of-a-kind items and experiences.

The eighth annual Cristian Rivera Foundation Celebrity Gala will begin at 6 PM and end at 11 PM on Wednesday, November 30th. The Broad Street Ballroom is located at 41 Broad Street in the Financial District. Sponsorship packages and ads to be displayed in the program are still available for purchase. The Cristian Rivera Foundation is accepting donations in the fight against DIPG. All contributions are tax-deductible and critical to finding a cure for this disease and assisting children and families in their ongoing fight against DIPG.

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The Cristian Rivera Foundation October 2016 Newsletter
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The Cristian Rivera Foundation October 2016 Newsletter

Cristian Rivera Foundation
October 2016 Newsletter

It has been quite a while since our last newsletter, but we are back and better than ever! We hope everyone had a good October! We are looking forward to the rest of this beautiful fall and to working together in November to pull off the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala. We are working hard to plan a beautiful evening dedicated to the children who suffered and are suffering from DIPG.

There are quite a few updates to give. First, Dr. Mark Souweidane treated his final patient in Phase I clinical trial of convection-enhanced delivery (CED) for DIPG. The trial, which enrolled 31 patients over the last 4 years, was to test the safety of CED as a means to fight the DIPG tumor directly. You can read more from Dr. Souweidane Weill Cornell Brain and Spine blog, here. In more good news, Lisha got her latest MRI results in and her results were excellent: stable with no growth! Lisha is the living proof that the work of the Cristian Rivera Foundation in supporting Dr. Souweidane and his team is valuable and making great strides in finding a cure for DIPG.

Many of you remember Allen. If you don’t, Allen was an 8 year old boy who was diagnosed with DIPG and had one wish-to meet his favorite Power Ranger.  The Cristian Rivera Foundation and The Little Kernel was able to send Allen and his family to California to fulfill his wish of meeting the Blue Power Ranger, his favorite one! But, it is with heavy hearts that we are reminded of the severe reality of DIPG because Allen passed away on October 9th. Our prayers and thoughts are with Allen and his family during this time.

As you know, the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala is Wednesday, November 30th at the Broad Street Ballroom starting at 6 PM. Tickets are almost sold out, but sponsorships and ads to be featured in our program are still available for purchase. We are still seeking live and silent auction items. If you, or someone you know, would like to donate an item or an experience please email info@cristianriverafoundation.org so we can send you the Auction Donation Form.

To date, the Cristian Rivera Foundation has donated more than $700,000 to research of Dr. Mark Souweidane of Memorial Sloan Kettering Cancer Center and the Director of the Weill Cornell Medical College Pediatric Brain and Spine Center and families of children currently fighting DIPG. Our goal is to hit the mark of one million dollars donated in 2017. Consider making a donation today and at the gala. Consider making your donation a monthly donation. All contributions are tax-deductible and fund critical DIPG research and support the children and their families during their fight.

We will start sending updates about the Gala soon. We are so excited to see everyone on Wednesday, November 30th!

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompsona, Luis Guzman,
Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Carlos Nazario, Dean Feratovic, Edward Caban, Funk Flex, Jerry Chaparro,
J.I. Starr, Little Louie Vega, Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec,
Robert Dominguez, Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez,
and William Pla



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Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.




Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Meet Lisha,
Lisha was diagnosed with D.I.P.G. almost 4 years ago!

LishaMRI

Lisha is a patient of Dr. Mark Souweidane at Cornell Weill Medical Center and currently enrolled in OUR trial to find a treatment and eventual cure for D.I.P.G.

On Wed, September 21st, 2016, we learned that the results from Lisha's last MRI were stable with no growth!

Lisha is living proof that the Cristian Rivera Foundation along with Dr.Mark Souweidane and his team at Cornell Weill are making strides in finding a cure for D.I.P.G.

Please help us cure this disease by making a tax deductible donation and raising awareness about our small foundation that is doing big things in the Cancer Community.

Wishing Lisha a Very Happy Belated Bday.

Lishabday

Her bday was 9/14. Lisha is a Patient on our Trial and is doing AMAZING. We at CRF Love her 10!
#CRF #CristianRiveraFoundation #DIPG #CureDIPG

Remembering Our Little Angel Cristian Rivera´s
14th Birthday

MarkSW

Today, 9/13/16, would've marked Cristian Rivera´s 14th birthday.  The Cristian Rivera honors him by raising awareness to help rid the world of D.I.P.G.  Every child should have an opportunity to grow and leave their mark on the world.  

Please help us by making a tax deductible donation and/or sharing this email with your friends, family & colleagues.  

Due to the tireless efforts of Dr. Mark Souweidane and Dr. Oren Becker and their dedication to the Pediatrics Neurosurgery community, we are close to curing D.I.P.G.  YOU may be the difference we need to change the world!  

Dr. Souweidane Treats Final Patient in
Groundbreaking DIPG Clinical Trial

MarkSW

Dr. Mark Souweidane today treated the final patient in his Phase I clinical trial of convection-enhanced delivery (CED) for diffuse intrinsic pontine glioma (DIPG). The trial, which had enrolled 31 patients over the past four years, was designed to test the safety of CED as a means of delivering a cancer-fighting drug directly to the site of a DIPG tumor. (More about the DIPG trial.)

The trial received FDA approval in late 2011, and the first patient was treated in May 2012. (Read “Cheering for Caitlin,” a profile of the first patient.) Since then, 30 children have received infusions of a therapeutic agent called 124I-8H9, which consists of the 8H9 antibody (produced by mice and effective against many kinds of tumors) combined with the radioactive substance 124I. The dosage of the drug was increased over the course of the trial, also testing safety, but no dose-limiting side effects occurred in any patient. 

The infusions, which were done at Memorial Sloan Kettering Cancer Center, were able to deliver the drug directly to the brain stem tumor and were not blocked by the body’s protective blood-brain barrier, which normally prevents chemotherapy drugs from crossing from the bloodstream into the brain in sufficient concentrations to attack a tumor. In this trial, Dr. Souweidane was able to achieve concentrations of 1,000 times or more than what can be achieved with IV chemotherapy. He was also able to design and test new ways to measure those concentrations at the tumor site and monitor how long the drug stayed in the tumor.

Dr. Souweidane and his team will spend the next several months evaluating the data and preparing the results for publication. In the meantime, researchers in the Children’s Brain Tumor Project laboratory have been working to pave the road for the next stages of the trial. Other drugs and drug combinations are being tested to determine what the best agents are to infuse, and at what dose levels. DIPG cell lines are also being grown in the lab, providing a rich source of information about how the tumor mutates over time and responds to different treatments in vitro as well as in animal models. (More about the Children’s Brain Tumor Project.)

Read the blog post written by Dr. Souweidane after he treated the final patient in the trial, click the link below www.weillcornellbrainandspine.org/dipg-new-beginning

Go Gold in the Month Of September for
Childhood Cancer Awareness Month

Go Gold in the Month Of September for Childhood Cancer Awareness Month

Happy Labor Day
From All Of Us At
The Cristian Rivera Foundation

Happy Labor Day
From All Of Us At
The Cristian Rivera Foundation

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dolores Catania, Dr. Ben Velazquez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, J.I. Starr, John “JellyBean” Benitez, Kenan Thompson, Kim Medina, Little Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Carlos Nazario, Edward Caban, Francisco Companioni, Funkmaster Flex, Jerry Chaparro, Mark Rosner, Modesto Lacen, Odalys Molina, Pablo Diaz, Paul Pristavec, Roberto Clemente Jr., Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez, and William Pla

Andy, Darlene, Craig and Gungie are at it again....

Andy, Darlene, Craig and Gungie are at it again....

Thanks to the Generosity Of the Cristian Rivera Foundation, it´s Board of Directors, Andy Epstein, Darlene Rodriguez and Craig Serra and it's founder John Gungie Rivera, CRF took our Princess Lisha Shopping for her back to school Clothing etc.... For those who don´t know, Lisha is on our Trial and is doing AMAZING for almost 4 Years NOW!!!!!!!!!!!!!!!!!!!!!! It is because of the Generosity of people like YOU that we are a
STEP CLOSER TO A CURE FOR DIPG!!!!!!!!!

Please help by making a TAX DEDUCTIBLE DONATION on cristianriverafoundation.org

Robert Vazquez, a proud committee member of the Cristian Rivera Foundation, authors a children´s book entitled
“Next Stop, Yankee Stadium”.

Robert Vazquez, a proud committee member of the Cristian Rivera Foundation, authors a children's book entitled Next Stop, Yankee Stadium;.

Whether you´re looking forward to or thinking back on your first Yankee game, "Next Stop, Yankee Stadium" captures the legacy and the excitement of attending a game at sports most coveted venue. Travel back in time with four childhood friends on their visit to Yankee Stadium.

You will be transported through the bustling city as the four friends make their way to the historic and impressive landmark. The city and stadium illustrations are brought to life by legendary Bronx Graffiti pioneers, TATS CRU. This book is a true Yankees adventure for all.

Help The Cristian Rivera Foundation
whenever you make a purchase

      1) Visit Smile.Amazon.Com
      2) Create an account and select “The Cristian Rivera Foundation” as the charity you would like to support.
      3) Select your items as you normally would and Amazon will make a small donation on your behalf.
No extra fees! You shop– you help us get closer to a cure for D.I.P.G.

Order Next Stop, Yankee Stadium Now! on

and help The Cristian Rivera Foundation

Minnesota Boy with D.I.P.G. meets his favorite Power Ranger in California thanks to Little Kernel Popcorn Company & Cristian Rivera Foundation
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The Cristain Rivera Foundation & The Little Kernel Popcorn Company The Cristain Rivera Foundation & The Little Kernel Popcorn Company

Minnesota Boy with D.I.P.G. meets his favorite Power Ranger in California thanks to Little Kernel Popcorn Company & Cristian Rivera Foundation

At The Cristian Rivera Foundation, our primary goal is to assist in finding a cure for Diffuse Intrinsic Pontine Glioma. Our Foundation also plays a critical role in supporting families that are impacted by D.I.P.G. By pulling together all of our resources to make dreams come true.

Such is the case when the founder of the Cristian Rivera Foundation,
John Gungie Rivera, learned about Allen Xiong's wish to meet the blue Power Ranger.

Allen is an 8 year old boy who was diagnosed with D.I.P.G. Just like most children his age, he loves The Power Rangers and his dream was to meet his favorite Power Ranger- the Blue Power Ranger. John contacted the CEO of The Little Kernel Popcorn Company, Andy Epstein. He also contacted Craig Serra who also serves as a board of directors for The Cristian Rivera Foundation & "JOINED FORCES" with Robert Vazquez, a Cristian Rivera committee member, and Like the Power Rangers, they all "JUMPED INTO ACTION" and started the process of making Allen's wish come true.

This past weekend The Cristian Rivera Foundation and
The Little Kernel company fulfilled Allen's wish when he came
FACE TO FACE
with "Yoshi", the talented actor who plays the
Blue Power Ranger at the Pasadena Morphicon Power Ranger Convention.

After Allen met his favorite Blue Power Ranger here is what his family said- "Thank you CRF... Allen was sooo happy today when he met with Yoshi the Blue Dino Power Ranger... It made him speechless... He didn´t know how to speak anymore lol he was so shy and nervous that he forgot how to talk or move lol... We saw him yesterday at the Q & A but didn´t meet him yet... I didn´t know who Yoshi is until Allen point him out and say mom he´s the blue Dino power ranger.. I asked him how he know? He´s not him his costume? Allen response was that you got to be a big fan to know lol... This boy is too smart for me... Thank you from the bottom of our heart for making this dream come true.. Love Allen and family ♥♥♥"

We at The Cristain Rivera Foundation & The Little Kernel Popcorn Company are "Full Steam Ahead" in finding a cure and fulfilling dreams! Spread the word, support & help us get closer to a cure.

Learn more at CristianRiveraFoundation.org

Our Mission
The mission of the Cristian Rivera Foundation is to help find the cure for the Pontine Glioma brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?
Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?
The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Duke University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

How Can You Help:

  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.

Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!

PLEASE DONATE
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Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dolores Catania, Dr. Ben Velazquez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, J.I. Starr, John “JellyBean” Benitez, Kenan Thompson, Kim Medina, Little Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Carlos Nazario, Edward Caban, Francisco Companioni, Funkmaster Flex, Jerry Chaparro, Mark Rosner, Modesto Lacen, Odalys Molina, Pablo Diaz, Paul Pristavec, Roberto Clemente Jr., Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez, and William Pla



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The Little Kernel Mini Popcorn & The Cristian Rivera Foundation
to help a minnesota DIPG Boy´s wish come true
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Please Help Allen

Please Help Allen

The Little Kernel Mini Popcorn, owned by Cristian Rivera Foundation Board of Director Andy Epstein and Chris Laurita, and The Cristian Rivera Foundation have teamed up to help a Minnesota DIPG boy´s
wish come true.

Cristian Rivera Foundation Founder John Rivera learned about the boy´s wish through Barbara Anderson, who lost her daughter Lily Larue to DIPG.

John immediately contacted Allen´s mother.

John then called The Cristian Rivera Foundation Board of Directors Andy Epstein, Darlene Rodriguez & Craig Serra and they all agreed
we need to help.

Please help by making a tax deductible donation to the Cristian Rivera Foundation, so we can help Allen and so many children like him.

PLEASE DONATE
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Our Mission
The mission of the Cristian Rivera Foundation is to help find the cure for the Pontine Glioma brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?
Diffuse Intrinsic Pontine Glioma or
DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?
The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Duke University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

PLEASE DONATE
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"Full Steam Ahead"

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dolores Catania, Dr. Ben Velazquez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, J.I. Starr, John “JellyBean” Benitez, Kenan Thompson, Kim Medina, Little Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Carlos Nazario, Edward Caban, Francisco Companioni, Funkmaster Flex, Jerry Chaparro, Mark Rosner, Modesto Lacen, Odalys Molina, Pablo Diaz, Paul Pristavec, Roberto Clemente Jr., Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez, and William Pla



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CBTP ‘Summer Sprint’ Adds Another Researcher,
Thanks to the 2015 Cristian Rivera Foundation Service and Dedication Award Winner, Carlos Colon

CBTP Summer Research
Cristian Rivera Foundation Committee Member
Carlos Colon
CBTP Summer Research
Dr. Mark Souweidane reviews MRI scans of DIPG tumors with Fatima Nathalia Morales.


The Children’s Brain Tumor Project (CBTP) has been given the opportunity to add another researcher to our ambitious “Summer Sprint.” Carlos Colon, a committee member of the Cristian Rivera Foundation, has pledged $5,000 to support this additional summer research position to supplement our already ambitious effort.

Thanks to our generous supporters, the CBTP lab had already hired six summer researchers to work on testing new drugs and drug combinations against DIPG, GC, and other rare brain tumors; using PET imaging to evaluate these drugs; studying the transformation of low-grade gliomas into malignancies; and procuring samples of thalamic gliomas from other labs around the country. (See more about these projects) The seventh researcher, Fatima Nathalia Morales, will be working on the team supporting Dr. Souweidane’s DIPG clinical trial, validating the method for monitoring brain tumor and distribution volumes in patients enrolled in the trial.

Fatima, an undergraduate student at Columbia University majoring in biology with a minor in mathematics, is spending the summer in the CBTP lab as part of the Travelers Summer Research Fellowship Program.  The support from Carlos Colon and the Cristian Rivera Foundation makes it possible for us to provide her with the equipment and supplies she needs to do her work.

We are extremely grateful to Carlos Colon for the gift, and to John Rivera and the Cristian Rivera Foundation for the tireless efforts on our behalf.

Clinical Trial Update: Now treating patients at its seventh and final dose level, the trial of convection-enhanced delivery (CED) should conclude this summer. Fatima will be helping to evaluate data from more than four years of that trial.

Read more at www.weillcornellbrainandspine.org/in-the-news/cbtp-summer-sprint-adds-another-researcher-thanks-carlos-colon

On Fri 7/22/16 CRF Committee Member Dennis Rodriguez did
the Raffle Drawing and here are the Winners

CBTP Summer Research

1st place Winner (IPad)
Guy Sousa
(Raffle Sold By CRF Committee Member JI Starr)

2nd Place Winner
Amelia Salinero
(Raffle Sold By Bee Farina)

3rd Place Winner
Rolly Deleon
(Raffle Sold by CRF Committee Friend Francisco Companioni)

Cristian Rivera Foundation would like to Thank all the people who participated.
“Full Steam Ahead”.

Darlene & David Rodriguez raise $20,000 at their 2nd Annual
Cristian Rivera Foundation Cocktail Party Sat 6/18/16
Catered by Cristian Rivera Foundation Committee Member
Celebrity Chef Alex Garcia

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Darlene and David Rodriguez’ 2nd Annual CRF Cocktail Party Sat, 6/18/16

To view photos from the 2nd Annual
Cristian Rivera Foundation
Cocktail Party Follow Here

Darlene & David Rodriguez
raise $20,000 at their

2nd Annual Cristian Rivera Foundation
Cocktail Party
Sat 6/18/16
Catered by Cristian Rivera Foundation Committee Member
Celebrity Chef Alex Garcia

As always If it’s a Darlene & David Rodriguez’ event,
It is an evening Filled with Great Food, Music and Good Vibes

To view photos from the 2nd Annual
Cristian Rivera Foundation
Cocktail Party Follow Here

Our Mission
The mission of the Cristian Rivera Foundation is to help find the cure for the Pontine Glioma brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?
DIPG is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?
The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works
tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane Ketting Cancer Center and Dr. Oren Becher of Duke University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

How Can You Help:

  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.

Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!

PLEASE DONATE

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Keyes, Carlos Yepez, Dennis Rodriguez, Dolores Catania, Dr. Ben Velazquez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, J.I. Starr, John “JellyBean” Benitez, Kenan Thompson, Kim Medina, Little Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Carlos Nazario, Edward Caban, Francisco Companioni, Funkmaster Flex, Jerry Chaparro, Mark Rosner, Modesto Lacen, Odalys Molina, Pablo Diaz, Paul Pristavec, Roberto Clemente Jr., Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez, and William Pla

The Cristian Rivera Foundation P.O. Box 656 Edgewater, NJ 07020 | cristianriverafoundation.org

The National Coalition of Latino Officers Foundation
New York and New Jersey Invite you to Their
Fundraiser and Awards Dinner
Friday June 10, 2016

CBTP Summer Research

The National Coalition of Latino Officers Foundation
New York and New Jersey
Invite you to Their
Fundraiser and Awards Dinner

two of the honorees this evening will be
Cristian Rivera Foundation Board of Director
Darlene Rodriguez
Anchor of the award winning NBC's "Today In New York"

&
Cristian Rivera Foundation Committee Friend
Eddie Caban
Inspector, New York City Police Department

Friday June 10, 2016
7pm to 11pm


Fiesta Banquets
255 State Highway 17 South
Wood-Ridge, NJ 07075

Tickets $110 p/p Three Course Dinner and Open Bar all night
Please reserve your table early to purchase your ticket please contact:
Information:
Tel: (800) 982-6256
or visit www.latino-officers.org/event-2238481

Cristian Rivera Board Members Darlene Rodriguez, Andy Epstein and Craig Serra to Support CBTP Summer Research

CBTP Summer ResearchCBTP Summer ResearchCBTP Summer Research

Darlene Rodriguez, Anchor of “Today in New York” on WNBC, and Andy Epstein, CEO of B&A Food Brokers, both members of the board of the Cristian Rivera Foundation, have each stepped up to support the summer research initiative at the Children’s Brain Tumor Project. The board members will contribute $5,000 each to the “summer sprint” in the CBTP lab.

For three months this summer, five summer fellows and scholars will test multiple drugs and drug combinations against pediatric brain tumor cell lines growing in our lab and in mouse models. These five researchers have been awarded grants from St. Baldrick’s, Alex’s Lemonade Stand, the AANS/NREF, and the Samuel Jeffers Foundation — but those grants cover only stipends to the researchers, not the significant expenses this work will entail. The researchers will need reagents and other supplies, mice, and tech support, among other things, all of which will be paid for by generous donations from Cristian Rivera Foundation board members.

These new gifts are in addition to the previous summer support from the Cristian Rivera Foundation that was provided thanks to a third board member, Craig Serra. The combined gifts from Craig, Andy, and Darlene make possible the accelerated research this summer will bring. We are so grateful to the Cristian Rivera Foundation and its unfailingly loyal board members for their support.

To read more about CBTP Summer Research, Follow Here

Happy Memorial Day
From All Of Us At
The Cristian Rivera Foundation

Sueno

Our Mission
The mission of the Cristian Rivera Foundation is to help find the cure for the Pontine Glioma brain stem tumor.

What is DIPG (Diffuse Intrinsic Pontine Glioma)?
DIPG is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is The Cristian Rivera Foundation?
The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works
tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane Ketting Cancer Center and Dr. Oren Becher of Duke University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

How Can You Help:

  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.

Thank You again and may this be the year we say goodbye to DIPG, (Diffuse Intrinsic Pontine Glioma), FOREVER!

PLEASE DONATE
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Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera

(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Keyes, Carlos Nazario, Carlos Yepez, Dennis Rodriguez, Dolores Catania, Dr. Ben Velazquez, Dr. Nirav Patel, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, J.I. Starr, John “JellyBean” Benitez, Kenan Thompson, Kim Medina, Little Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Teddy “Tedsmooth” Mendez, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Edward Caban, Francisco Companioni, Funkmaster Flex, Jerry Chaparro, Mark Rosner, Modesto Lacen, Odalys Molina, Pablo Diaz, Paul Pristavec, Roberto Clemente Jr., Victor Martinez, and William Pla



Dr. Mark Souweidane on Humans of NY

Sueno

Humans of NY has been doing a 2–week series on pediatric cancer (patients, families, providers) at Memorial Sloan Kettering. Mark Souweidane was interviewed for the series on Tuesday and his segments were posted on Wednesday. It has been an amazing phenomenon for two straight days now – literally hundreds of thousands of comments, likes, shares, and a veritable outpouring of support and love for Mark and his work. You really have to see it to believe it – and it’s truly amazing to read the comments and see the project through the eyes of people hearing about it for the first time.

To Read About it, click the link below www.humansofnewyork.com/post/144608280536/44-my-childhood-was-building-things-model


Brain Tumor Awareness Month

May is Brain Tumor Awareness Month

Join Us As We Fight to End Brain Cancer
Make a Donation @ cristianriverafoundation.org
Every Donation Big or Small Will Bring Us Closer to a Cure!

The Cristian Rivera Foundation January 2016 Newsletter
The Cristian Rivera Foundation January 2016 Newsletter
Sueño: una versión caribeña de “Sueño de una noche de verano”
de William Shakespeare

Sueno

The Society of the Educational Arts, Inc. (Teatro SEA) and Dr Manuel Moran,  
National Park Service and the Institute of Puerto Rican Culture presented as part of the International Theatre Festival 2015    Sueño: una versión caribeña de “Sueño de una noche de verano” de William Shakespeare.
The event takes place on the  Esplanade of Castillo San Felipe del Morro , Old San Juan and functions will be completely  free  to the public.

Dream, directed by Manuel A. Morán  it features a cast of thirty five actors, singers, musicians, dancers and puppeteers. The piece includes more than fifty carnival puppets, stilts and masks, including "vejigantes and big heads." The piece will be set to music live musicans of the Puerto Rico Philharmonic Orchestra, led by renowned conductor Manuel Calzada Puerto Rican and Colombian Alejandro Zuleta.

All performances are in Spanish. 
The staging has puppeteers, dancers, singers and live music. 
Esplanade Castillo San Felipe del Morro, Old San Juan. 
Friday 11 and Saturday 12 December at 8:00 pm and Sunday 13 at 6:00 pm

Happy Thanksgiving from the Cristian Rivera Foundation

Happy Thanksgiving from the Cristian Rivera Foundation

Cristian Rivera Foundation’s annual gala
to cure rare childhood cancer is set for Nov. 17

Cristian Rivera Foundation’s annual gala to cure rare childhood cancer is set for Nov. 17

Follow here to read
The New York Daily News article
published Today Sat 11/14
which highlights The Cristian Rivera Foundation's
drive and dedication to find a cure for DIPG
and the upcoming Gala Tues Nov 17th
at the Broad Street Ballroom.
The Cristian Rivera Foundation November 2015 Newsletter
The Cristian Rivera Foundation November 2015 Newsletter
The Cristian Rivera Foundation October 2015 Newsletter
The Cristian Rivera Foundation October 2015 Newsletter
NATIONAL MEDAL OF ARTS TO THE PUERTO RICAN MIRIAM COLON
SEPTEMBER 21, 2015
Miriam Colon and President Barak Obama

Young MiriamMiriam Colon has many merits, she has a prolific and a very successful career, and she was the founder and director of the Puerto Rican Traveling Theater in New York City.

Her long career began in 1953 in her native Puerto Rico with the film Los Peloteros. Not already spent a year when the Puerto Rican actress was in the United States seeking for her first opportunity.  Her talent was undeniable.

Shortly after arriving in New York, Miriam was accepted by the founder of the “Actors Studio” Elia Kazan, after a single casting

Miriam became the first Puerto Rican in the studio.


After more than 60 years of career, Miriam is 79-year-old, she has a long list of successes movies in the United States, the country that became her new home. More than 30 films and some 59 appearances in television series are part of her work.

Miriam Close UpHer contributions earned her the 2015 National Medal of Arts which was delivered by the President Barack Obama, thanks to her contributions to the field of art.

The event took place at the White House, where Obama delivered in person medals. Besides the talented Miriam Colón,  Stephen King was recognized, and nine other individuals and institutions in the field of the arts, and ten more in the humanities.

The President opened the ceremony with words of honor for the talented honored
“The men and women whom we honor today are not here only because they shared the truths of their own experiences, but also because they told truths about common experiences we have as Americans and as human beings,” he said.

The Puerto Rican was excited and thanked to represent her country and her culture in such a special place.

“I appreciate this great honor. This recognition makes me feel that you cannot lose hope when things are not right or when there are no positive results. Perseverance and not to give up is fundamental”.

The legendary actress who recognized shed some tears, were the result of great emotion and deep gratitude to the United States, the place that catapulted her as an artist.

“I am an example of a poor woman with a wonderful mother, but did not know how to pursue a career freshened, much less drama. But all through my teachers, my counselors, of the wisest men and the wisest women I could make some achievements ”

The National Medal of Arts was also given to the visual artist John Baldessari, the theater director Ping Chong, the Doris Duke Charitable Foundation, the actress Sally Field, the visual artist Ann Hamilton, the composer Meredith Monk, tenor George Shirley, the University Musical Society and the educator Tobias Wolff.

As for the National Humanities Medal historian Evelyn Brooks Higginbotham, author Annie Dillard, the Clemente Course in the Humanities, the novelist Rebecca Goldstein Newberger, and author Alice Waters were recognized.

Likewise, the novelist Larry McMurtry, the architect Everett L. Fly, the author Jhumpa Lahiri, Professor Fedwa Malti-Douglas and historian Vicki Lynn Ruiz were part of the talented group of Americans and immigrants whose work has provided important contributions to culture, education, humanities and entertainment.

As Miriam Colon, anyone with aspirations in the arts and that has a list of awards and successes can opt for an O1 visa for professionals with extraordinary skills in areas such as the arts, medicine, sports and research, so they can develop professionally in the U.S.

In Beltran Brito LLP have extensive experience guiding immigrants to opt for a work visa or Green Card, in addition to helping them understand variants of the immigration law.

The 7th Annual Cristian Rivera Foundation Celebrity Fundraising Gala
The 7th Annual Cristian Rivera Foundation Celebrity Fundraising Gala
The Cristian Rivera Foundation September 2015 Newsletter
The Cristian Rivera Foundation September 2015 Newsletter
The Cristian Rivera Foundation
is Proud to Introduce One of Our New Committee Members:
Carlos J Yepez
<br />

Bio

Carlos J. Yepez, is a current VP Branch Manager with PNC Bank in West Windsor NJ and President of PNC Bank Latino Employee Resource Group in the Central NJ Market.

With Over 15 years of banking experience, Carlos has managed to make a positive impact on his clients overall financial well-being. He is a strong leader in the community and is always engaged in community events delivering brand awareness for PNC Bank and himself.

He is a father of two wonderful children Angelica and Noah and Husband to an Amazing Wife Brenda. Carlos is a Native New Yorker and currently resides in New Jersey. Being born in “El Barrio” he loved listening to all kinds of Latin Music especially Salsa. Carlos is the Lead Singer for Nelson Toress’ Grupo Decision a Bronx based Salsa Band and loves teaching his kids all about their culture through Latin Music.

Statement

“Being asked to join the Cristian Rivera Foundation is a true honor. I never had the privilege of personally meeting Cristian Rivera but through his foundation I feel as if I already knew him. Through his pictures you can see the innocence and kind heart this young man had. Being a father myself I can’t fathom the thought of losing a child. I have had the pleasure of meeting John “Gungie” Rivera, Cristian’s father who has given me the opportunity to support the foundation as a committee member. The passion and drive that this foundation delivers is contagious. The goal of finding a cure for DIPG, Creating Awareness, and Delivering Support to those affected are impactful.”

“I am excited to become a part of the Cristian Rivera Foundation Family.”

The Cristian Rivera Foundation
is Proud to Introduce One of Our New Committee Members:
Craig Serra
<br />

Bio

Craig A. Serra, MS, MBA, PMP, CCDM
Craig Serra is Senior Director and Business Process Owner of Clinical Data Management in Worldwide Research and Development at Pfizer, Inc. In this role, he is the single point of accountability for oversight of the clinical data management conduct and closeout process area applied across the portfolio of 400+ Pfizer clinical trials, executed by over 10,000 clinical research colleagues, impacting tens of thousands of patients.

Craig rejoined Pfizer in 2013 as Senior Director after serving as Director of Data Management and Director of Clinical and Strategic Operations with DSP Clinical Research. At DSP, Craig led biometrics services and oversight of clinical systems and quickly was promoted to additionally drive their business development and revenue generating activities. His previous experience includes project, program, portfolio, and business leadership roles at Pfizer, Roche, Eisai, and Schering Plough.

Craig has an extensive and diverse educational background, earning a BA in Psychology from Rutgers University and both an MBA in Management and an MS in Information Systems from Fordham University. Additionally, he will earn an MS in Pharmacology and Toxicology in May of 2016.

Craig is a certified Project Management Professional (PMP) from the Project Management Institute (PMI) and Certified Clinical Data Manager (CCDM) from the Society for Clinical Data Management (SCDM). He continually pursues entrepreneurial opportunities and has an active interest in medicine, technology, and innovation in order to improve the delivery of medicine to patients.   

Statement

There are so many reasons why I am honored to be a committee member for the Cristian Rivera Foundation. At the core, it is the ability to join incredibly talented and giving people who are united by the common purpose to serve children and eradicate this terrible disease. DIPG is aggressive and unrelenting, which means achieving the cure is going to require an even more aggressive and unrelenting fight from all of us. More so, we need to fight – endlessly - for those who need us the most.

Coming from clinical research in the pharmaceutical industry, I have a unique perspective in seeing how drugs go from the lab to the medicine cabinet, in an increasingly difficult regulatory, financial, and operational environment. It can be very frustrating trying to bring together novel science with often, a stifling bureaucracy that can be very much at odds with families desperate for answers. Especially challenging is trying to find a cure for a rare disease such as DIPG. Many companies abandon research into rare diseases, knowing they are inherently difficult to treat and without the market to support the development. In working at Pfizer, we actively pursue the most difficult of diseases, including many forms of cancer, with both internal research capabilities and external academic collaborations. It is this mindset – rooting for the underdog and not taking the easy way out – that makes me so excited to support the Cristian Rivera Foundation and the patients it serves, as we continue on a path towards the same goal: a victory over DIPG.

Remembering Cristian Alexander Rivera
Remembering Cristian Alexander Rivera
The Cristian Rivera Foundation attends the Second Annual Children's Brain Tumor Project Family Council Meeting on Tuesday April 28th, 2015
<br />

The Cristian Rivera Foundation who is one of the top donors of The Children’s Brain Tumor Project is proud to attend the Children’s Brain Tumor Project Second Annual Family Council Meeting Today Tuesday April 28th, 2015. It’s an honor to come together with other families and foundations who all share the same passion towards helping fund Dr. Mark Souweidane and all the other Doctors who work tirelessly towards finding a cure for inoperable brain tumors.

Rest in Peace
Cristian Rivera Foundation Committee Member
Anthony Mason
December 14, 1966 – February 28, 2015
<br />

The Cristian Rivera Foundation is very saddened by the passing of one of our esteemed committee members Anthony Mason. Anthony Mason was so dedicated to the foundation and to our mission of never stopping to fight until we find a cure for DIPG. Through much of his hard work and dedication The Cristian Rivera Foundation has been able to make the amazing progress it has. The Cristian Rivera will continue to fight for our DIPG Angels as well as the soldiers who continuously fight for them. Anthony Mason is a legend, and will truly be missed.

Cristian Rivera Foundation January 2015 Newsletter
CRF January 2015 Newsletter
Cristian Rivera Foundation December 2014 Newsletter
CRF December Newsletter
Wishing you Happy Holidays from The Cristian Rivera Foundation
Happy Holidays

The holidays are an important time to spend with the ones you love, and also a sad time for DIPG families all around the world who are either marking these special occasions without their child or preparing for what they know will be the last holiday they spend with them. For this reason, we ask that you consider helping the Cristian Rivera Foundation find a cure for DIPG. We would like to thank everyone who has supported the Cristian Rivera Foundation this year, as well as everyone who has supported us since we were founded in memory of Cristian Rivera five years ago. Your generosity means a lot, not only to us but also to the many DIPG families who have fought so bravely against this deadly, horrific disease. With your continued support, we get closer to a cure every day and together, we can make 2015 the year we say goodbye to DIPG for good.

Have a happy holiday season and a wonderful New Year.

Visit www.cristianriverafoundation.org to make your
tax-deductible donation today.

Cristian Rivera Foundation November 2014 Newsletter
CRF November Newsletter
Cristian Rivera Foundation October 2014 Newsletter
CRF October Newsletter
Cristian Rivera Foundation Founder Interviewed Open with Rhina Valentin

Click Here to view video

Cristian Rivera Foundation September 2014 Newsletter
CRF September Newsletter
The 6th Annual Cristian Rivera Foundation Celebrity Fundraising Gala Sponsorship Opportunities and Program Advertisements

Click Here to purchase or for more information about
Gala Sponosorship Opportunities And Program Advertisements

Cristian Rivera Foundation August 2014 Newsletter
CRF August Newsletter
Alex Garcia on BronxNet

Alex Garcia on BronxNet

Follow Here to View Video
Friday, September 5th, 2014
Cristian Rivera Foundation July 2014 Newsletter
CRF July Newsletter
Cristian Rivera Foundation June 2014 Newsletter
CRF June Newsletter
Cristian Rivera Foundation May 2014 Newsletter
CRF May Newsletter
Actress Abigail Breslin Donates $10,000 to
the Throggs Neck Charity fighting rare form of Cancer

 Oscar-Nominated Actress Abigail Breslin Donates $10,000 to the Cristian Rivera Foundation

Follow Here to Read the Daily News Article Featured
Wednesday, April 30th, 2014
BronxNet will honor TODAY Show contributor, Bronx native & Cristian Rivera Foundation Committee Member - Darlene Rodriguez at its 20th anniversary service and achievement awards luncheon

 Oscar-Nominated Actress Abigail Breslin Donates $10,000 to the Cristian Rivera Foundation

She’s an award-winning journalist who contributes to a morning show viewed by millions.

But “TODAY Show” journalist Darlene Rodriguez is a Bronx gal at heart — who got her start 20 years ago as a cub reporter covering stories uptown for BronxNet, the local public access channel.

The Soundview-born, Morris Park-raised newsreader will join Borough President Ruben Diaz, Jr. and Lehman College President Dr. Ricardo Fernandez as honorees Thursday at the public access channel’s 20-year anniversary.

“They gave me a great opportunity,” Rodriguez told the Daily News Tuesday. “They have hard working, passionate people who are trying to produce good television. I felt that passion from the beginning, and I admired them.”

Rodriguez, a married mom of three now based in Westchester, said she recalled reporting on the closing of iconic department store Alexander’s on Fordham Road — and freezing up and spouting jibberish amid a scrum of reporters with then Bronx Borough President Fernando Ferrer.

“I was terrified,” said Rodriquez, an anchor of Today New York, the local NBC morning show and a contributor to the nationally broadcasted TODAY Show. “And Fernando Ferrer, being as kind as he was, he turned to me and gave me an answer.”

Housed on the Lehman College campus, BronxNet has morphed into a six channel media entity that offers production training in addition to local news, politics and arts programming.

“It’s tremendously exciting to serve the people of the Bronx as we grow,” said Michael Max Knobbe, BronxNet’s executive director. “Darlene is a shining example of how the workforce opportunities that BronxNet provides can result in someone being a media leader and role model."

Follow Here to Read the Daily News Article Featured Wednesday, April 30th, 2014

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