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Cristian Rivera Foundation
January 2017 Newsletter

 

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Cristian Rivera Foundation 2017
January Newsletter

January is always an sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG January 21st, 2007 and Lost his Battle to DIPG January 25th 2009. Cristian would have been 14 years old had he’d been alive.

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But this January we have something to be Happy about, it marks 4 years Lisha has had DIPG and is doing GREAT. Just a few weeks ago we learned that her latest MRI showed NO GROWTH. Lisha is living proof that we will find a cure for DIPG. The Cristian Rivera Foundation exists to fight until the day that being Diagnosed with DIPG is just a bump in the road and not a death sentence.

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The Cristian Rivera Foundation is also very excited to announce that we have donated $140,000 Weill Cornell and Duke from the proceeds 8th Annual Celebrity Fundraising Gala which was on November 30th. We were thrilled with the Gala this year and are grateful to all our Board of Directors, Committee Members, Committee Friends, Sponsors, Advertisers and Supporters.  We worked so hard to make this the best event to date. 

If you couldn’t participate at the 8th Annual Celebrity Fundraising Gala, you can still help by making a donation.  All monetary contributions are tax-deductible. All support is appreciated and brings us one step closer to a CURE.

Here are 2 letters the Cristian Rivera Foundation received after this year’s Gala.

We are thrilled to introduce
2 New Committee Members.

Jarrad Seuferling



Jesse Allison

Bio

Vice President of MAS Security Associates, Jarrad Seuferling, has worked in the security and nightlife industry for over 20 years. He has brokered dozens of deals in the entertainment industry and is passionate about helping others. Uniting people to elevate businesses is one of his top priorities. Jarrad Seuferling is a proud husband and father of two.

Bio

Jesse was born and raised in Chicago Illinois and moved to the east coast 5 years ago to take over sales and marketing for Zylo Restaurant in the W hotel. She’s currently the Director of Business Development for Helena Floors, a project she co–developed with her partner Thomas.

Statement

“I’ve known John Rivera for as long as I’ve been in the security business. We’ve worked together on many occasions and always had a mutual respect for one another. I attended The Cristian Rivera Foundation’s Celebrity Fundraising Gala in 2015 & 2016 and saw firsthand, the dedication and amazing work the foundation does. I was amazed by the amount of support and love I felt in the room on both occasions. As a father of two, I cannot imagine the pain of losing a child to DIPG. I feel so compelled to utilize my influence to make a difference.”

Statement

“I wanted to be a part of this organization after attending the fundraising event in November 2016 and seeing how this horrible disease affected the Rivera Family. Having a small daughter, I cannot imagine losing a child to this disease. I applaud John and all his efforts to ensure this disease doesn’t take another little angel from the world. “

Happy Birthday To Our Committee Friends

Steven Rodas
January 13

Mark Rosner
January 15

Paul Pristavec
January 21
Remembering DIPG Angel Birthdays
January
Remembering DIPG Angel Anniversaries
January
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon,
Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier,
Steve Cox, Teddy “DJ Tedsmooth” Mendez, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla

Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
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Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”

Written by Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

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The Cristian Rivera Foundation October 2016 Newsletter

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The Cristian Rivera Foundation October 2016 Newsletter

Cristian Rivera Foundation
October 2016 Newsletter

It has been quite a while since our last newsletter, but we are back and better than ever! We hope everyone had a good October! We are looking forward to the rest of this beautiful fall and to working together in November to pull off the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala. We are working hard to plan a beautiful evening dedicated to the children who suffered and are suffering from DIPG.

There are quite a few updates to give. First, Dr. Mark Souweidane treated his final patient in Phase I clinical trial of convection-enhanced delivery (CED) for DIPG. The trial, which enrolled 31 patients over the last 4 years, was to test the safety of CED as a means to fight the DIPG tumor directly. You can read more from Dr. Souweidane Weill Cornell Brain and Spine blog, here. In more good news, Lisha got her latest MRI results in and her results were excellent: stable with no growth! Lisha is the living proof that the work of the Cristian Rivera Foundation in supporting Dr. Souweidane and his team is valuable and making great strides in finding a cure for DIPG.

Many of you remember Allen. If you don’t, Allen was an 8 year old boy who was diagnosed with DIPG and had one wish-to meet his favorite Power Ranger.  The Cristian Rivera Foundation and The Little Kernel was able to send Allen and his family to California to fulfill his wish of meeting the Blue Power Ranger, his favorite one! But, it is with heavy hearts that we are reminded of the severe reality of DIPG because Allen passed away on October 9th. Our prayers and thoughts are with Allen and his family during this time.

As you know, the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala is Wednesday, November 30th at the Broad Street Ballroom starting at 6 PM. Tickets are almost sold out, but sponsorships and ads to be featured in our program are still available for purchase. We are still seeking live and silent auction items. If you, or someone you know, would like to donate an item or an experience please email info@cristianriverafoundation.org so we can send you the Auction Donation Form.

To date, the Cristian Rivera Foundation has donated more than $700,000 to research of Dr. Mark Souweidane of Memorial Sloan Kettering Cancer Center and the Director of the Weill Cornell Medical College Pediatric Brain and Spine Center and families of children currently fighting DIPG. Our goal is to hit the mark of one million dollars donated in 2017. Consider making a donation today and at the gala. Consider making your donation a monthly donation. All contributions are tax-deductible and fund critical DIPG research and support the children and their families during their fight.

We will start sending updates about the Gala soon. We are so excited to see everyone on Wednesday, November 30th!

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompsona, Luis Guzman,
Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Carlos Nazario, Dean Feratovic, Edward Caban, Funk Flex, Jerry Chaparro,
J.I. Starr, Little Louie Vega, Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec,
Robert Dominguez, Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez,
and William Pla

Follow the Cristian Rivera Foundation:

facebook youtube twitter youtube

Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.


Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<