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Cristian Rivera Foundation
May 2018 Newsletter

 

May 2018 Newsletter

Walk or Run   Become a Virtual Walker

Create a Team   Join a Team

Sponsor   Volunteer   Donate

May 2018 Newsletter

May 2018 Newsletter

Cristian Rivera Foundation 2018
May Newsletter

April showers bring new Cristian Rivera Foundation events. All the hard work we’ve put into raising DIPG awareness in 2018, is finally starting to blossom. As things start to blossom and the temperature continues to rise, approaching with “Full Steam Ahead” is the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K.

The 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K is making a stop at Van Cortlandt Park in the Bronx on Saturday, June 9th at 9am. We’re looking to fill up the seats in our train so, bring your family, friends and colleagues together and join us while we run/walk for a DIPG cure. Van Cortlandt Park is 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. Entry fee is $25 and includes a 5K t-shirt. We encourage participants to fundraise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. Please help us beat DIPG. To sign up to participate in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Become a Virtual Participant in the 5K. If you live outside the Tristate area or going to be out of town, become a Virtual Participant! The entry fee is $25 and includes a 5K t-shirt. Take a picture with your t-shirt and e-mail it to crf5K@cristianriverafoundation.org and we will post it on our site. We encourage participants to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fund-raise as much as you can! Every dollar you raise will help us sustain and grow our programs. To sign up as a Virtual Participant in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 5K t-shirt. We encourage each team member to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. To create a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Sponsor the event. To sponsor the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/sponsorship/
  • Become a Volunteer. To become a volunteer for the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/volunteer/.

  • Donate. Help support raising funds for DIPG by donating. To make donations please visit http://cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference! Hop on board and together we can help the 300 children diagnosed each year.

Our foundation would like to acknowledge Goya Foods for being the Presenting Sponsors for the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K. Goya is our largest corporate sponsor and are Platinum Sponsors for our Annual CRF Celebrity Gala. Here at the foundation, we appreciate Goya’s dedication to our cause.

We would also like to give a big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health and Patrick B. Jenkins & Associates for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. Want to follow in these sponsor’s footsteps and run/walk for DIPG awareness? Visit cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase tickets to the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat Ride on Saturday, July 21, 2018 at 7:00 p.m., featuring a performance by Freestyle Diva Lisette Melendez. Get your ticket $30 ticket today, you don’t want to miss out on this amazing evening or discount deal. After June 1st the tickets will go up to $35 and will increase to $40 after July 1st. Don’t wait and purchase your tickets today here: cristianriverafoundation.org/events.html#3rdboatride.

Whether you are sponsoring, participating, volunteering, or donating, you are helping in making a difference in the lives of the 300 children diagnosed with DIPG every year. Hop on board and help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez,
Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Flora Montes, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy Mendez and William Pla.

spaHonorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 April Newsletter

 

March 2018 Newsletter
Participate   Walk or Run   Become a Virtual WalkerCreate a Team   Join a Team
Sponsor   Volunteer   Donate
March 2018 NewsletterMarch 2018 Newsletter


Cristian Rivera Foundation 2018
April Newsletter

As we enter the season of new growth in nature, we’re also celebrating the growth of our foundation. We’re halfway through April, and busy is the word of the month here at the Cristian Rivera Foundation!  As the warm weather approaches, so does our first ever Cristian Rivera Foundation 5K Walk and Run.

The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate in the 5K and take a stand against DIPG. To sign up to participate in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Become a Virtual Participant in the 5K. Want to participate but live outside the Tristate area or going to be out of town? Become a Virtual Participant! The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. Our foundation asks for all Virtual Participants to take a picture with their t-shirt and e-mail it to crf5K@cristianriverafoundation.org for display on our website. We also encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate as a Virtual Runner/Walker in the 5K and take a stand against DIPG. To sign up as a Virtual Participant in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To create a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Sponsor the event. To sponsor the 5K please visit cristianriverafoundation.org/crf5kwalkrun/sponsorship/.
  • Become a Volunteer. To become a volunteer for the 5K please visit cristianriverafoundation.org/crf5kwalkrun/volunteer/.
  • Donate. Help support raising funds for DIPG by donating. To make donations please visit cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference!

Our foundation would like to acknowledge some longtime supporters and the Sponsors for the 1st Annual CRF “Full Steam Ahead” 5K. A big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. If you are interested in Sponsorship/Advertising opportunities go to cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase silent auction items that are available for bidding on cristianriverafoundation.org/auction. We have a great variety of things such as an NY Yankees on field experience and an autographed Marc Anthony microphone. Also, our past items have included Four (4) Premium Tickets to see Frankie Valle at the Mohegan Sun Arena, plus a meet and greet and a 5 Course Italian Cooking Class at your home for 10 People, with Renown Chef Nick Lucci. These auction items are incredible and one can purchase them in efforts to eradicate DIPG.

As one can see, whether you are sponsoring, participating, volunteering, donating or purchasing auction items, you are helping in making a difference. Help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella


Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on Twitter
Friend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 March Newsletter

 

Cristian Rivera Foundation
March 2018 Newsletter

March 2018 Newsletter


Cristian Rivera Foundation 2018
March Newsletter

 

With the days getting longer and springtime just around the corner, The Cristian Rivera Foundation is leaping into March with a renewed sense of excitement!  As we forge ahead into a season that celebrates life and regrowth, we ask you to join us in working to save the lives of DIPG children around the world.

Our foundation has a variety of events coming up, including our first ever Cristian Rivera Foundation 5K Walk and Run. The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 08:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand with us by taking a walk or run and help give our children an opportunity to fulfill their dreams.  Let’s cure DIPG together.

Another event you should also be excited about is our 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride on Sat. July 21st.  Join us as the New York skyline serves as a backdrop and music is provided by New York’s top DJ’s.  We also have a live performances by Freestyle Diva Lisette Melendez scheduled and surprise celebrity guests.  Party for a cause with us.

We are also preparing for the release of The Children’s Book, “Cristian’s Journey”, a story inspired by Cristian Rivera.  The book will honor Cristian’s legacy and will educate the public about DIPG and our commitment to curing the disease.  As always, 100% of the proceeds of the book will be donated to Weill-Cornell Medical Center and their clinical trials.

We are also pleased to announce that the 10th Annual Cristian Foundation Celebrity Gala which will take place on Wednesday, November 14th.  Join us as we come together to celebrate a decade of work in the DIPG community and honor some very special people.  This event promises to be our biggest gala yet.

Since the year started, our foundation has been working tirelessly to continue giving DIPG the voice it deserves. As a result of our hard work, The Cristian Rivera Foundation was awarded a Platinum Seal on GuideStar.org. GuideStar.org is the non-profit industry leader in analysis and public information and issues their rating based on transparency and the positive activity conducted in the non-profit community. Not only does our foundation have a Platinum Seal on GuideStar.org, The Cristian Rivera is also the recipient of the 2018 Top-Rated Great Nonprofits Award from Great Nonprofits. As you can see, our foundation takes pride in the work we do and we’re honored to have received such prestigious awards for our hard work, commitment and dedication.

A lot going on at the Cristian Rivera Foundation so mark your calendars for the following special events:

Saturday June 9th, 2018 – 1st Annual Cristian Rivera 5K Walk/Run
Saturday July 21st – 3rd Annual Cristian Rivera Foundation Freestyle Boat ride
November 14th – 10th Annual Cristian Rivera Foundation Celebrity Gala
Summer 2018- Release of “Cristian’s Journey” children’s book

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”
Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Friend Modesto Lacen.

Who is Modesto Lacén.
I’m an actor and producer with 25 years of experience in Theater, TV, Film and Radio in Puerto Rico, United States and Colombia. Besides my artistic career I believe in contributing to society through the work I can do as a responsible citizen, I firmly believe that a better world is possible. Is it for that reason that I’m a proud member of the Board of Directors of Taller Salud in my hometown Loiza, PR and the Cristian Rivera Foundation. 

What does it mean to you to be a part of the Cristian Rivera Foundation?
As the son of a successful owner of various Clinical Laboratories in Puerto Rico, I know the importance of living a healthy and productive life. Been a part of the Cristian Rivera Foundation is rewarding for me because in the effort we do as a Foundation, we are making a real difference in children’s life. The support we give to doctors and the families with children with DIPG is invaluable. 

What is your proudest moment as a Cristian Rivera Foundation Committee Friend?
My proudest moment as a Committee Member was when I had the honor of participating in one of our Galas with the son of one of my heroes, Roberto Clemente Walker. Sharing that special moment with Roberto Clemente, Jr was a pivotal moment that reaffirms my mission as part of the Cristian Rivera Foundation. To be of service for the well being of our society.

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
spaceCommittee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.


Director:

Vicky Estrella

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez, Teddy “Tedsmooth” Mendez and William Pla.
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on TwitterFriend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 February Newsletter

Cristian Rivera Foundation
February 2018 Newsletter

February 2018 Newsletter
February 2018 Newsletter


Cristian Rivera Foundation 2018
February Newsletter

February is a special month; A time to display your feelings for your friends and family for their love and support throughout the year. This February has been an amazing month for the Cristian Rivera Foundation, and that’s all because of your love and support of our foundation.

This past week, Lisha Ayala, A DIPG patient who is participating in the clinical trials that the Cristian Rivera Foundation is funding, received her quarterly MRI results.  The tests were stable with no activity or tumor growth!  This is her 5th year living with DIPG, providing the medical community an opportunity to learn more and make monumental strides in research.

Lisha continues to live the life of a normal teenager and has given us hope that we are close to a cure.  This is all possible through your love and support of our mission.

The Cristian Rivera Foundation also hit another milestone this month by receiving a Platinum status on GuideStar.org

GuideStar.org is the non-profit industry leader in analysis and public information.   Guidestar.org issues their rating on transparency and the positive activity conducted in the non-profit community.

The Cristian Rivera Foundation is honored to be awarded a Platinum Status for our efforts, commitment and transparency.

One can only be excited for what’s to come the next couple of months. Our foundation has so many events planned for 2018.  We have our Raffle Project, the 1st Annual Cristian Rivera Foundation “Full Steam Ahead 5K” Sat June 9th, the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride Sat July 21st, The Children’s Book “Cristian’s Journey” will be out in the Spring and the 10th Annual Cristian Foundation Celebrity Gala will take place on Wednesday, November 14th.

Please visit our website at cristianriverafoundation.org and stay connected with all of our events, view our gallery and sign our guestbook to let us know you stopped by!

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating. Lastly, all of us at the Cristian Rivera Foundation wish you a very happy Valentine’s Day! Show love to our foundation with your kind donation today!

Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Member Paul Pristavec. Paul has been an incredible member.

Who is Paul Pristavec?
Paul Pristavec, a Staten Island native father of 6, is a Wealth Management Advisor at Merrill Lynch. He joined Merrill Lynch in 1992 and has been advising high net worth individuals and wealthy families since 1996. He is a parishioner of Our Lady Star of the Sea Roman Catholic Church and is involved in charitable work for the Archdiocese of New York.  Paul Coaches CYO basketball at Our Lady Star of the Sea. Paul loves to take his children to all their sporting events. Paul and his wife Dana reside in the Tottenville section of Staten Island.

What does it mean to you to be a part of the Cristian Rivera Foundation?
Being a part of the Cristian Rivera Foundation is rewarding in so many ways. Being a father of 6, I can’t imagine what it must feel like to lose a child. It means so much to me to be a part of an organization that is giving back and making a difference in the lives of so many children and families.  

What is your proudest moment as a Cristian Rivera Foundation Committee Member?
My proudest moment as a Cristian Rivera Foundation Committee Member was on Wednesday, February 7, 2018, when I learned about Lisha’s progress. Lisha’s MRI results came up favorable and I’m honored to have been a part of that. This is a reminder of why I am involved in the Cristian Rivera Foundation and put in the time that I do. Lisha is proof that we are headed in the right direction and that one day, we will not fear DIPG.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To give a donation, please visit http://cristianriverafoundation.org/donation.html
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundationand like us on Facebook at www.facebook.com/crisitanriverafoundation to stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space
Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

spac Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.
space
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space
Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
January 2018 Newsletter

Cristian Rivera Foundation
January 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 Newsletter

Cristian Rivera Foundation 2018
January Newsletter

2017 was a milestone year for the Cristian Rivera Foundation.
Our 2017 events included the 2nd Annual Cristian Rivera Foundation Freestyle Flashback Benefit Boat ride.   Committee Members, Steve Rodas and Jesse Allison hosted their own cocktail events to support our efforts in curing DIPG.  NBC’s Today in New York co-anchor and Cristian Rivera Board member, Darlene Rodriguez and her husband, David, hosted their 3rd Annual Cocktail Party.  2017 also brought us the Ninth Annual Cristian Rivera Foundation Celebrity Gala at the luxurious Capitale in New York City.

These events and the continued support from our sponsors and people like you, have brought us to a monumental milestone in the DIPG and medical community.  As of 2017, the Cristian Rivera has donated over One Million Dollars ($1,000,000) to help support research and clinical trials for DIPG and families who have been affected by this disease!Your generosity and support has brought us closer than ever to a cure for DIPG!

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating to these events. Also, a big thank you to all our Board of Directors, Committee Members, Committee Friends for their continuous support. Lastly, a special thank you to Dr. Mark Souweidane and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Without any of you, none of these accomplishments would have been possible.  

One of our clinical trial patients, Lisha Ayala, has reached a groundbreaking milestone by reaching a five-year mark with no growth in her tumor.  She is living the life of a normal teenager and has given the DIPG and medical community hope that we are close to a cure. 

Even though we’ve started 2018 on a great note, January is always a sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG on January 21st, 2007 and lost his Battle to DIPG just two short years later on, January 25th, 2009. Cristian would have been 15 years old had he’d been alive today. In honor of Cristian, our foundation will continue working the “Full Steam Ahead” mentality until we eradicate this disease from our world and no family has to suffer through the process of dealing with a child with DIPG.

You can be a part of the journey of finding a cure for DIPG, and make 2018 the year we say goodbye to this horrible disease. 

Simply stay connected with us.  Join us at our events, share our journey with your friends and family and make a donation to our efforts. 

Speaking of great supporters and being part of our journey, The Cristian Rivera Foundation highlighted Member of the Month is Committee Member, Jesse Allison. Using her experience and resources, Jesse has been an incredible addition to our team and made valuable contributions to our goals through her hard work and dedication.

Who is Jesse Allison?
I am a 34-year-old working mother and wife. I have a three-year-old daughter named Addison and a wonderful supportive husband, Thomas. I grew up in the suburbs of Chicago. After spending many years planning events in the hospitality industry, I left to develop a family business of high end flooring. By making this move, my schedule became more flexible. Having a flexible schedule is important to me because I get to spend more time with my family. Probably my greatest passion after spending time with my family is cooking. 

What does it mean to you to be a part of the Cristian Rivera Foundation?
Being a part of the foundation is more rewarding than I could’ve hoped.  I’ve known John since I moved to Hoboken and as the mother of a small child, I cannot begin to fathom what hearing that my daughter had DIPG would be like. I think what Dr. Mark Souweidane and Dr. Oren Becher do is amazing work and I know that the more support we can generate for the doctors, the closer we are to that cure.

What is your proudest moment as a Cristian Rivera Foundation Committee Member?
My proudest moment was at the small cocktail reception we hosted at our showroom Wood Library in Hoboken. I was happy seeing the responses to the information we were presenting. Throughout the reception, the attendees really started to understand a little about this horrible disease which led them to wanting to help. By throwing this event, I was able to raise awareness of DIPG and help the many families affected by this disease. 

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To give a donation, please visit http://cristianriverafoundation.org/donation.html
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundationand like us on Facebook at www.facebook.com/crisitanriverafoundationto stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.
T-shirts and wristbands

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation
space
John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”) space

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein and Darlene Rodriguez.

spaceCommittee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez,
Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox,
Tony Ferrara and Vito Bruno.
space

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dr. Manuel A. Moran, Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy “Tedsmooth” Mendez
and William Pla.

spaceHonorary Committee Members of the Cristian Rivera Foundation:
The Late Anthony Mason and The Late Miriam Colon.

spaceSupporters of the Cristian Rivera Foundation:
Ami Ferrara, David Rodriguez, Ginalisa Monterroso and Karla De Epstein

Follow on TwitterFriend on FacebookFollow on InstagramSubscribe to our channel
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
December 2017 Newsletter

Cristian Rivera Foundation
December 2017 Newsletter


Follow Here to View Pictures of the Ninth Annual
Cristian Rivera Foundation Celebrity Gala




Follow Here to View the Video Highlights of the Ninth Annual Cristian Rivera Foundation Celebrity Gala

December 2017 Newsletter
December 2017 Newsletter
December 2017 Newsletter


Cristian Rivera Foundation 2017
December Newsletter

The Ninth Annual Cristian Rivera Foundation Celebrity Gala was a huge success. It was truly a special night in honor of all our DIPG Angels. We would like to thank everyone who supported us by attending, sponsoring, and donating. Also, a big thank you to all our Board of Directors, Committee Members, Committee Friends, award presenters and award recipients, for their continuous support. Lastly, a special thank you to Dr. Mark Souweidane and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Their dedication is highly appreciated in our journey to find a cure for DIPG

The Cristian Rivera Foundation recently visited the Weill Cornell Medical Center to give a $125,000.00 check to Dr. Mark Souweidane. Within the next few weeks, we will give Dr. Oren Becher a check and that will put the Cristian Rivera Foundation at the One Million Dollar (1,000,000.00) mark in monies donated to research and trials for the cure of DIPG and families who have been affected by this disease. Through the work of these doctors, we are closer than ever to saving the 200 young children who are diagnosed with DIPG every year. This past gala, Dr. Oren Becher stated in his speech, “I am very grateful for the funds that the Cristian Rivera Foundation has given me over the years. Thanks to funding, in the past year we have identified one promising medication that we hope to test on children with DIPG in 2018”. As one can see through Dr. Oren Becher’s statement, we are getting close to finding a cure for DIPG

The holidays are an important time to spend with the ones you love, and also a sad time for DIPG families all around the world. Families that are affected by DIPG are either marking these special occasions without their child or preparing for what they know will be the last holiday to spend with them. Thanks to the countless amount of support we have received, one day families will not have to fear DIPG. Your generosity means a lot to not only us, but also to the many DIPG families who have had to suffer because of this horrific disease. Even though our foundation has great supporters, we could always use more. For this reason, we ask you to hop on board and consider helping our foundation. You can be a part of the journey of finding a cure for DIPG, and we can make 2018 the year we say goodbye to this disease.

Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Member Jarrad Seuferling. Jarrad has been an incredible addition to our team.

Who is Jarrad Seuferling?

I am the Vice President of MAS Security Associates. I have worked in the security and nightlife industry for over 20 years. I have brokered dozens of deals in the entertainment industry and am passionate about helping others. Uniting people to elevate businesses is one of my top priorities. I am a proud husband and father of two and have been a Committee Member for one year.

What does it mean to you to be a part of the Cristian Rivera Foundation?

I love the team work and unity of our foundation. We are like a family. It feels so good when I see the progress that we’re making. When I hear about the progress the two doctors have made, I get happy because I know that one day a cure for DIPG will come. I am inspired by John ‘Gungie’ Rivera and Andy Epstein who are really great leaders.

What is your proudest moment as a Cristian Rivera Foundation Committee Member?

As a Cristian Rivera Foundation Committee Member, my proudest moment was a few days ago when I learned that once we give Dr. Oren Becher his check, we will have reached the One Million Dollar Donated mark.

As Jarrad said, we are so proud of reaching the One Million Dollar Mark and none of this could be possible without your help.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To get your donation in before 2017 is over, visit http://cristianriverafoundation.org/donation.html

All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundation and like us on Facebook at www.facebook.com/crisitanriverafoundation to stay up to date on the latest news and all of our exciting new upcoming events for the New Year!

Have a happy holiday season and a wonderful New Year.

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.
T-shirts and wristbands

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation
space
John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”) space

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein and Darlene Rodriguez.
space
Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez,
Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox,
Tony Ferrara and Vito Bruno.
space

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dr. Manuel A. Moran, Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy “Tedsmooth” Mendez
and William Pla.

spaceHonorary Committee Members of the Cristian Rivera Foundation:
The Late Anthony Mason and The Late Miriam Colon.

space

Supporters of the Cristian Rivera Foundation:
Ami Ferrara, David Rodriguez, Ginalisa Monterroso and Karla De Epstein

Follow on TwitterFriend on FacebookFollow on InstagramSubscribe to our channel
Copyright © 2017 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Daily News EXCLUSIVE:
Cristian Rivera Foundation Boat Ride around NYC on July 15 is child cancer fundraiser

Cristian Rivera

One of New York City’s best-known music promoters of the ‘90s is having a throwback dance party — that doubles as a fundraiser for a cause near and dear to his heart.

Revelers who hop aboard the Circle Line on Saturday, July 15, at 7 p.m. for the second annual Cristian Rivera Foundation Freestyle Flashback Benefit Boatride will be treated to several hours of freestyle dance music courtesy of a live performance by singer Noel, along with DJ Tedsmooth, Big Paul and Rob Lo, with Alizay and Speedy of the Luis Jimenez Show serving as hosts.

But the real purpose of the evening is to raise money for the Cristian Rivera Foundation, a nonprofit that donates all monies raised to hospitals and foundations researching cures for DIPG, a deadly childhood cancer.

The foundation is named for Rivera’s son Cristian, who was diagnosed with DIPG in 2007 and died two years later at age 6. DIPG — diffuse intrinsic pontine glioma — is a rare form of brain cancer that affects less than 300 kids each year but has an extremely high mortality rate. Less than 1% of those diagnosed with the disease live five years after being diagnosed.

“Creating awareness and fundraising is very difficult,” says Rivera, who founded the Cristian Rivera Foundation in 2009 and has dedicated his life to the cause in memory of his son.

The concept of a fun-filled boat ride around Manhattan with live music was “a way to get 600 people to come to an event because of the entertainment,” Rivera adds.

“Once they are at the event I am able to educate them about DIPG while raising funds. By the end of the event a fair percentage of our attendees become supporters of the foundation, so it’s a win-win. Most of the attendees are people who used to attend my events or follow me when I was a DJ.”

Rivera, who every fall also throws a massive fundraiser for the foundation in Manhattan that features celebrity guests from the entertainment and sports worlds, plans to use his connections and experience as a promoter to expand his fundraising efforts beyond the annual boat ride.

“In the spring of 2018 we are going do the first annual walk,” Rivera says. “We also have three concerts in the works as well as various small cocktail receptions that are being produced by our board of directors, committee members, committee friends and our supporters.”

John (Gungie) Rivera (right) with Cristian. (COURTESY OF JOHN RIVERA)

Rivera says the foundation’s efforts to raise money for research are beginning to pay off. “One of the patients in our trials, an 11-year old girl from Connecticut named Lisha Ayala, has had DIPG for almost five years. In the past four years there has been no activity in her tumor,” he says.

“I may be speaking prematurely, but my feeling is that she will be our first survivor. To my knowledge, there has been no one with DIPG that has lived this long.”

The Cristian Rivera Foundation Freestyle Flashback Benefit Boatride on Saturday, July 15, starts at 7 p.m. sharp on the Circle Line at Pier 83, W.42nd St. and Westside Highway. The event is from 8 p.m. to 12 a.m.

To purchase tickets or for more information, go to cristianriverafoundation.org

 

To Ready More, visit
http://www.nydailynews.com/life-style/health/cristian-rivera-foundation-boat-ride-child-cancer-fundraiser-article-1.3328935

Cristian Rivera Foundation
January 2017 Newsletter

 

News and Insight into the Cristian Rivera Foundation

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Cristian Rivera Foundation 2017
January Newsletter

January is always an sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG January 21st, 2007 and Lost his Battle to DIPG January 25th 2009. Cristian would have been 14 years old had he’d been alive.

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But this January we have something to be Happy about, it marks 4 years Lisha has had DIPG and is doing GREAT. Just a few weeks ago we learned that her latest MRI showed NO GROWTH. Lisha is living proof that we will find a cure for DIPG. The Cristian Rivera Foundation exists to fight until the day that being Diagnosed with DIPG is just a bump in the road and not a death sentence.

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The Cristian Rivera Foundation is also very excited to announce that we have donated $140,000 Weill Cornell and Duke from the proceeds 8th Annual Celebrity Fundraising Gala which was on November 30th. We were thrilled with the Gala this year and are grateful to all our Board of Directors, Committee Members, Committee Friends, Sponsors, Advertisers and Supporters.  We worked so hard to make this the best event to date. 

If you couldn’t participate at the 8th Annual Celebrity Fundraising Gala, you can still help by making a donation.  All monetary contributions are tax-deductible. All support is appreciated and brings us one step closer to a CURE.

Here are 2 letters the Cristian Rivera Foundation received after this year’s Gala.

We are thrilled to introduce
2 New Committee Members.

Jarrad Seuferling



Jesse Allison

Bio

Vice President of MAS Security Associates, Jarrad Seuferling, has worked in the security and nightlife industry for over 20 years. He has brokered dozens of deals in the entertainment industry and is passionate about helping others. Uniting people to elevate businesses is one of his top priorities. Jarrad Seuferling is a proud husband and father of two.

Bio

Jesse was born and raised in Chicago Illinois and moved to the east coast 5 years ago to take over sales and marketing for Zylo Restaurant in the W hotel. She’s currently the Director of Business Development for Helena Floors, a project she co–developed with her partner Thomas.

Statement

“I’ve known John Rivera for as long as I’ve been in the security business. We’ve worked together on many occasions and always had a mutual respect for one another. I attended The Cristian Rivera Foundation’s Celebrity Fundraising Gala in 2015 & 2016 and saw firsthand, the dedication and amazing work the foundation does. I was amazed by the amount of support and love I felt in the room on both occasions. As a father of two, I cannot imagine the pain of losing a child to DIPG. I feel so compelled to utilize my influence to make a difference.”

Statement

“I wanted to be a part of this organization after attending the fundraising event in November 2016 and seeing how this horrible disease affected the Rivera Family. Having a small daughter, I cannot imagine losing a child to this disease. I applaud John and all his efforts to ensure this disease doesn’t take another little angel from the world. “

Happy Birthday To Our Committee Friends

Steven Rodas
January 13

Mark Rosner
January 15

Paul Pristavec
January 21
Remembering DIPG Angel Birthdays
January
Remembering DIPG Angel Anniversaries
January
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon,
Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier,
Steve Cox, Teddy “DJ Tedsmooth” Mendez, Tony Ferrara and Vito BrunoCommittee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”

Written by Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Follow Us:
facebook youtube twitter youtube
Copyright © 2017 Cristian Rivera Foundation, All rights reserved.

 

Daily News EXCLUSIVE: Father continues crusade to find cure for rare cancer that killed his son years ago with city fund-raiser

John "Gungie" Rivera's son Cristian died from a rare brain cancer, and the dad turned the tragedy into a crusade for a cure for the fatal disease.
John “Gungie” Rivera’s son Cristian died from a rare brain cancer, and the dad turned the tragedy into a crusade for a cure for the fatal disease.

Nearly a decade ago, John Rivera turned the worst crisis a parent can face — the terminal cancer diagnosis of his young son — into a lifelong quest to help save other children’s lives.

In 2007, Rivera’s 4-year-old son, Cristian, was diagnosed with a very rare form of brain cancer, diffuse intrinsic pontine glioma, or DIPG.

An extremely rare but devastating disease, DIPG affects less than 300 kids each year but has an extremely high mortality rate — less than 1% live five years after being diagnosed.

Cristian died in 2009 at 6, but his brave, two-year battle with the disease spurred Rivera to dedicate his own life to raising money and awareness to fight DIPG.

 

“It’s still very difficult,” Rivera said about losing his son. “But I have to be one of the people — one of the tools — that helps find a cure.”

Rivera, 52, a music producer and promoter known in the industry as “Gungie,” in 2009 created the Cristian Rivera Foundation, a nonprofit that donates all monies raised to hospitals and foundations researching cures for DIPG.

On Wednesday, the foundation will host its eighth annual celebrity fund-raising gala at the Broad Street Ballroom in Manhattan.

The event, hosted by NBC’s Darlene Rodriguez, will honor Dr. Mark Souweidane, director of the Weill Cornell Pediatric Brain and Spine Center and the physician behind a new treatment trial partly funded by the foundation and its supporters.

 

Cristian died almost a decade ago, and has since created the Cristian Rovera Foundation that donates all monies raise to research for a cure.
Cristian died almost a decade ago, and has since created the Cristian Rovera Foundation that donates all monies raise to research for a cure.

“When my son was diagnosed, there was no hope for a cure and very little information,” Rivera said. “Now almost 10 years later, there has been so much progress.”

DIPG tumors are found in the brainstem, making the cancer incredibly difficult to treat with chemotherapy. Dr. Soudweidane’s new trial uses a technique known as convection-enhanced delivery, or CED.

This method treats the tumor by inserting hairline fibers laced with a chemo agent through the difficult-to-penetrate blood-brain barrier and directly into the tumor on the brainstem.

There are still no confirmed survivors of the disease, but Rivera is hopeful that this new trial is a major step towards a cure.

“We’ve been able to treat approximately 31 children,” Rivera said. “Unfortunately, most of them have passed. But there is one little girl that has tolerated the treatment very well. She’s 11, the oldest child I know with the disease.

“It’s wonderful to see the foundation grow every year,” Rivera adds. “Even if I can’t get everyone to donate, I know that I’ve planted a seed of information and spread awareness about a disease that so few people know about.”

 

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