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Cristian Rivera Foundation
January 2017 Newsletter

 

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Cristian Rivera Foundation 2017
January Newsletter

January is always an sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG January 21st, 2007 and Lost his Battle to DIPG January 25th 2009. Cristian would have been 14 years old had he’d been alive.

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But this January we have something to be Happy about, it marks 4 years Lisha has had DIPG and is doing GREAT. Just a few weeks ago we learned that her latest MRI showed NO GROWTH. Lisha is living proof that we will find a cure for DIPG. The Cristian Rivera Foundation exists to fight until the day that being Diagnosed with DIPG is just a bump in the road and not a death sentence.

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The Cristian Rivera Foundation is also very excited to announce that we have donated $140,000 Weill Cornell and Duke from the proceeds 8th Annual Celebrity Fundraising Gala which was on November 30th. We were thrilled with the Gala this year and are grateful to all our Board of Directors, Committee Members, Committee Friends, Sponsors, Advertisers and Supporters.  We worked so hard to make this the best event to date. 

If you couldn’t participate at the 8th Annual Celebrity Fundraising Gala, you can still help by making a donation.  All monetary contributions are tax-deductible. All support is appreciated and brings us one step closer to a CURE.

Here are 2 letters the Cristian Rivera Foundation received after this year’s Gala.

We are thrilled to introduce
2 New Committee Members.

Jarrad Seuferling



Jesse Allison

Bio

Vice President of MAS Security Associates, Jarrad Seuferling, has worked in the security and nightlife industry for over 20 years. He has brokered dozens of deals in the entertainment industry and is passionate about helping others. Uniting people to elevate businesses is one of his top priorities. Jarrad Seuferling is a proud husband and father of two.

Bio

Jesse was born and raised in Chicago Illinois and moved to the east coast 5 years ago to take over sales and marketing for Zylo Restaurant in the W hotel. She’s currently the Director of Business Development for Helena Floors, a project she co–developed with her partner Thomas.

Statement

“I’ve known John Rivera for as long as I’ve been in the security business. We’ve worked together on many occasions and always had a mutual respect for one another. I attended The Cristian Rivera Foundation’s Celebrity Fundraising Gala in 2015 & 2016 and saw firsthand, the dedication and amazing work the foundation does. I was amazed by the amount of support and love I felt in the room on both occasions. As a father of two, I cannot imagine the pain of losing a child to DIPG. I feel so compelled to utilize my influence to make a difference.”

Statement

“I wanted to be a part of this organization after attending the fundraising event in November 2016 and seeing how this horrible disease affected the Rivera Family. Having a small daughter, I cannot imagine losing a child to this disease. I applaud John and all his efforts to ensure this disease doesn’t take another little angel from the world. “

Happy Birthday To Our Committee Friends

Steven Rodas
January 13

Mark Rosner
January 15

Paul Pristavec
January 21
Remembering DIPG Angel Birthdays
January
Remembering DIPG Angel Anniversaries
January
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon,
Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier,
Steve Cox, Teddy “DJ Tedsmooth” Mendez, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla

Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
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Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”

Written by Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

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Daily News EXCLUSIVE: Father continues crusade to find cure for rare cancer that killed his son years ago with city fund-raiser

John "Gungie" Rivera's son Cristian died from a rare brain cancer, and the dad turned the tragedy into a crusade for a cure for the fatal disease.
John “Gungie” Rivera’s son Cristian died from a rare brain cancer, and the dad turned the tragedy into a crusade for a cure for the fatal disease.

Nearly a decade ago, John Rivera turned the worst crisis a parent can face — the terminal cancer diagnosis of his young son — into a lifelong quest to help save other children’s lives.

In 2007, Rivera’s 4-year-old son, Cristian, was diagnosed with a very rare form of brain cancer, diffuse intrinsic pontine glioma, or DIPG.

An extremely rare but devastating disease, DIPG affects less than 300 kids each year but has an extremely high mortality rate — less than 1% live five years after being diagnosed.

Cristian died in 2009 at 6, but his brave, two-year battle with the disease spurred Rivera to dedicate his own life to raising money and awareness to fight DIPG.

 

“It’s still very difficult,” Rivera said about losing his son. “But I have to be one of the people — one of the tools — that helps find a cure.”

Rivera, 52, a music producer and promoter known in the industry as “Gungie,” in 2009 created the Cristian Rivera Foundation, a nonprofit that donates all monies raised to hospitals and foundations researching cures for DIPG.

On Wednesday, the foundation will host its eighth annual celebrity fund-raising gala at the Broad Street Ballroom in Manhattan.

The event, hosted by NBC’s Darlene Rodriguez, will honor Dr. Mark Souweidane, director of the Weill Cornell Pediatric Brain and Spine Center and the physician behind a new treatment trial partly funded by the foundation and its supporters.

 

ristian died almost a decade ago, and has since created the Cristian Rovera Foundation that donates all monies raise to research for a cure.
ristian died almost a decade ago, and has since created the Cristian Rovera Foundation that donates all monies raise to research for a cure.

“When my son was diagnosed, there was no hope for a cure and very little information,” Rivera said. “Now almost 10 years later, there has been so much progress.”

DIPG tumors are found in the brainstem, making the cancer incredibly difficult to treat with chemotherapy. Dr. Soudweidane’s new trial uses a technique known as convection-enhanced delivery, or CED.

This method treats the tumor by inserting hairline fibers laced with a chemo agent through the difficult-to-penetrate blood-brain barrier and directly into the tumor on the brainstem.

There are still no confirmed survivors of the disease, but Rivera is hopeful that this new trial is a major step towards a cure.

“We’ve been able to treat approximately 31 children,” Rivera said. “Unfortunately, most of them have passed. But there is one little girl that has tolerated the treatment very well. She’s 11, the oldest child I know with the disease.

“It’s wonderful to see the foundation grow every year,” Rivera adds. “Even if I can’t get everyone to donate, I know that I’ve planted a seed of information and spread awareness about a disease that so few people know about.”

 

To Ready More, visit
nydailynews.com/new-york/manhattan/dad-raises-money-cure-cancer-killed-son-years-article-1.2888392

Cristian Rivera Foundation November 2016 Newsletter

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Cristian Rivera Foundation 2016
November Newsletter

November is always an exciting month for The Cristian Rivera Foundation. First, there is Thanksgiving and who doesn’t love Thanksgiving? We love being able to take the time out of our busy schedules and spend time with our family and friends to reflect on the past year and express gratitude. However, it is around our dining room tables, surrounded by those who love us, we take a moment to remember the unfortunate reality that many families are incomplete at the dinner table. Many families are missing their daughters and sons, they are missing their brothers and sisters. All because of this terrible reality of Diffuse Intrinsic Pontine Giloma (DIPG). The Cristian Rivera Foundation exists to fight so that no more families are incomplete on Thanksgiving-or any other day of the year.

The Cristian Rivera Foundation is also very excited about our 8th Annual Celebrity Fundraising Gala, which is on November 30th! We are thrilled with the Gala this year. We have been working hard to make this the best event to date.  We’re honoring Brandon Stanton of Humans of New York as our 2016 Humanitarian Award winner because of his work on increasing awareness about DIPG. We are so proud to also honor Dr. Mark Souweidane of Weill Cornell Medicine with the Vision of Hope Award for his seemingly endless dedication and hope to finding a cure for DIPG. We are proud to honor Board of Director, Craig Serra with the 2016 Service & Dedication Award for his commitment to the Crisitan Rivera Foundation. We are honored to bestow the 2016 Golden Wings onto Juliana Donnelly; her parents Brian and Doris will be addressing us at the Gala. As you probably already know, the 8th Celebrity Fundraising Gala is SOLD OUT! This is the third year in a row that the Celebrity Fundraising Gala has been sold out and this year- one month before the Gala!  We still have more exciting news to come about this year’s Gala, so stay tuned as we up to date!

Our Platinum Sponsors Our Gold Sponsor Our Silver Sponsors Our Bronze Sponsors

We look forward to seeing you at the 8th Annual Celebrity Fundraising Gala! If you did not get a ticket in time, there are still ways to be involved with the Gala. You can purchase a sponsorship or an ad to be featured in our program. You can make a donation. You can volunteer the night of the Gala. All monetary contributions are tax-deductible. All support is appreciated. We are excited to see our Board of Directors, Committee Members, and Committee Friends at the Gala! We are thrilled to welcome new- and returning- guests to the Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala! See you on November 30th!

We’re proud to feature Committee Member,
Carlos Yepez

Carlos is the November featured Committee Member. Carlos is the Business Relationship Manager and Vice President of PNC Bank in West Windsor, New Jersey and President of the PNC Bank Latino Employee Resource Group in the Central NJ Market. He has two children and is married to Brenda. He has been part of the Cristian Rivera Foundation since 2015. We are glad to have him on our side!

We interviewed Carlos recently and asked him some questions about his involvement with the Cristian Rivera Foundation. Interview below:

1. What does it mean to you to be a part of the Cristian Rivera Foundation? I love being part of a great organization. I love being a soldier in the fight against DIPG. This is an important fight and I’m proud to be a part of this organization to find a cure.

2. What is your favorite part of the Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala?

The part that is my favorite is also really the saddest part of the night, but it is my favorite because it is the most impactful. When the video featuring Cristian and all the other children who suffered from DIPG is played the entire room gets quiet, emotional, and contemplative. The other guests and me sit there and think about what we just watched. It inspires me to work harder and to do everything I can to help find a cure.

3. What do you enjoy the most about the Cristian Rivera Foundation?

I really like that the Cristian Rivera Foundation Board of Directors, Committee Members, and Committee Friends are all volunteers. All the proceeds we raise go to research, which means your donation goes to finding a cure. The people receiving your donations are real people. Dr. Mark Souweidane is a very sincere guy. We have the right people involved in this organization. It is about getting people to understand the cause and to donate. We’ve made huge strides in such a short amount of time-imagine what we can accomplish in the long run!

Happy Birthday To Our Committee Member

Manuel Morán
November 29

Remembering DIPG Angel Birthdays
November
birthdays
Remembering DIPG Angel Anniversaries
November
anniversaries
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez,
Rafael Toro, Ramon E. Javier, Steve Cox, Teddy “DJ Tedsmooth” Mendez,
Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dean Feratovic, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla

Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

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The Cristian Rivera Foundation October 2016 Newsletter

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The Cristian Rivera Foundation October 2016 Newsletter

Cristian Rivera Foundation
October 2016 Newsletter

It has been quite a while since our last newsletter, but we are back and better than ever! We hope everyone had a good October! We are looking forward to the rest of this beautiful fall and to working together in November to pull off the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala. We are working hard to plan a beautiful evening dedicated to the children who suffered and are suffering from DIPG.

There are quite a few updates to give. First, Dr. Mark Souweidane treated his final patient in Phase I clinical trial of convection-enhanced delivery (CED) for DIPG. The trial, which enrolled 31 patients over the last 4 years, was to test the safety of CED as a means to fight the DIPG tumor directly. You can read more from Dr. Souweidane Weill Cornell Brain and Spine blog, here. In more good news, Lisha got her latest MRI results in and her results were excellent: stable with no growth! Lisha is the living proof that the work of the Cristian Rivera Foundation in supporting Dr. Souweidane and his team is valuable and making great strides in finding a cure for DIPG.

Many of you remember Allen. If you don’t, Allen was an 8 year old boy who was diagnosed with DIPG and had one wish-to meet his favorite Power Ranger.  The Cristian Rivera Foundation and The Little Kernel was able to send Allen and his family to California to fulfill his wish of meeting the Blue Power Ranger, his favorite one! But, it is with heavy hearts that we are reminded of the severe reality of DIPG because Allen passed away on October 9th. Our prayers and thoughts are with Allen and his family during this time.

As you know, the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala is Wednesday, November 30th at the Broad Street Ballroom starting at 6 PM. Tickets are almost sold out, but sponsorships and ads to be featured in our program are still available for purchase. We are still seeking live and silent auction items. If you, or someone you know, would like to donate an item or an experience please email info@cristianriverafoundation.org so we can send you the Auction Donation Form.

To date, the Cristian Rivera Foundation has donated more than $700,000 to research of Dr. Mark Souweidane of Memorial Sloan Kettering Cancer Center and the Director of the Weill Cornell Medical College Pediatric Brain and Spine Center and families of children currently fighting DIPG. Our goal is to hit the mark of one million dollars donated in 2017. Consider making a donation today and at the gala. Consider making your donation a monthly donation. All contributions are tax-deductible and fund critical DIPG research and support the children and their families during their fight.

We will start sending updates about the Gala soon. We are so excited to see everyone on Wednesday, November 30th!

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompsona, Luis Guzman,
Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Carlos Nazario, Dean Feratovic, Edward Caban, Funk Flex, Jerry Chaparro,
J.I. Starr, Little Louie Vega, Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec,
Robert Dominguez, Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez,
and William Pla

Follow the Cristian Rivera Foundation:

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Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.


Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Cristian Rivera Foundation’s annual gala to cure rare childhood cancer is set for Nov. 17

dailynews

Follow here to read
The New York Daily News article
published Today Sat 11/14
which highlights The Cristian Rivera Foundation’s
drive and dedication to find a cure for DIPG
and the upcoming Gala Tues Nov 17th
at the Broad Street Ballroom.