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Cristian Rivera Foundation
2018 February Newsletter

Cristian Rivera Foundation
February 2018 Newsletter

February 2018 Newsletter
February 2018 Newsletter


Cristian Rivera Foundation 2018
February Newsletter

February is a special month; A time to display your feelings for your friends and family for their love and support throughout the year. This February has been an amazing month for the Cristian Rivera Foundation, and that’s all because of your love and support of our foundation.

This past week, Lisha Ayala, A DIPG patient who is participating in the clinical trials that the Cristian Rivera Foundation is funding, received her quarterly MRI results.  The tests were stable with no activity or tumor growth!  This is her 5th year living with DIPG, providing the medical community an opportunity to learn more and make monumental strides in research.

Lisha continues to live the life of a normal teenager and has given us hope that we are close to a cure.  This is all possible through your love and support of our mission.

The Cristian Rivera Foundation also hit another milestone this month by receiving a Platinum status on GuideStar.org

GuideStar.org is the non-profit industry leader in analysis and public information.   Guidestar.org issues their rating on transparency and the positive activity conducted in the non-profit community.

The Cristian Rivera Foundation is honored to be awarded a Platinum Status for our efforts, commitment and transparency.

One can only be excited for what’s to come the next couple of months. Our foundation has so many events planned for 2018.  We have our Raffle Project, the 1st Annual Cristian Rivera Foundation “Full Steam Ahead 5K” Sat June 9th, the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat ride Sat July 21st, The Children’s Book “Cristian’s Journey” will be out in the Spring and the 10th Annual Cristian Foundation Celebrity Gala will take place on Wednesday, November 14th.

Please visit our website at cristianriverafoundation.org and stay connected with all of our events, view our gallery and sign our guestbook to let us know you stopped by!

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating. Lastly, all of us at the Cristian Rivera Foundation wish you a very happy Valentine’s Day! Show love to our foundation with your kind donation today!

Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Member Paul Pristavec. Paul has been an incredible member.

Who is Paul Pristavec?
Paul Pristavec, a Staten Island native father of 6, is a Wealth Management Advisor at Merrill Lynch. He joined Merrill Lynch in 1992 and has been advising high net worth individuals and wealthy families since 1996. He is a parishioner of Our Lady Star of the Sea Roman Catholic Church and is involved in charitable work for the Archdiocese of New York.  Paul Coaches CYO basketball at Our Lady Star of the Sea. Paul loves to take his children to all their sporting events. Paul and his wife Dana reside in the Tottenville section of Staten Island.

What does it mean to you to be a part of the Cristian Rivera Foundation?
Being a part of the Cristian Rivera Foundation is rewarding in so many ways. Being a father of 6, I can’t imagine what it must feel like to lose a child. It means so much to me to be a part of an organization that is giving back and making a difference in the lives of so many children and families.  

What is your proudest moment as a Cristian Rivera Foundation Committee Member?
My proudest moment as a Cristian Rivera Foundation Committee Member was on Wednesday, February 7, 2018, when I learned about Lisha’s progress. Lisha’s MRI results came up favorable and I’m honored to have been a part of that. This is a reminder of why I am involved in the Cristian Rivera Foundation and put in the time that I do. Lisha is proof that we are headed in the right direction and that one day, we will not fear DIPG.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To give a donation, please visit http://cristianriverafoundation.org/donation.html
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundationand like us on Facebook at www.facebook.com/crisitanriverafoundation to stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
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Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

spac Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.
space
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space
Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

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Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
January 2018 Newsletter

Cristian Rivera Foundation
January 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 NewsletterJanuary 2018 Newsletter

Cristian Rivera Foundation 2018
January Newsletter

2017 was a milestone year for the Cristian Rivera Foundation.
Our 2017 events included the 2nd Annual Cristian Rivera Foundation Freestyle Flashback Benefit Boat ride.   Committee Members, Steve Rodas and Jesse Allison hosted their own cocktail events to support our efforts in curing DIPG.  NBC’s Today in New York co-anchor and Cristian Rivera Board member, Darlene Rodriguez and her husband, David, hosted their 3rd Annual Cocktail Party.  2017 also brought us the Ninth Annual Cristian Rivera Foundation Celebrity Gala at the luxurious Capitale in New York City.

These events and the continued support from our sponsors and people like you, have brought us to a monumental milestone in the DIPG and medical community.  As of 2017, the Cristian Rivera has donated over One Million Dollars ($1,000,000) to help support research and clinical trials for DIPG and families who have been affected by this disease!Your generosity and support has brought us closer than ever to a cure for DIPG!

We would like to thank everyone who has supported our foundation by attending, sponsoring, and donating to these events. Also, a big thank you to all our Board of Directors, Committee Members, Committee Friends for their continuous support. Lastly, a special thank you to Dr. Mark Souweidane and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Without any of you, none of these accomplishments would have been possible.  

One of our clinical trial patients, Lisha Ayala, has reached a groundbreaking milestone by reaching a five-year mark with no growth in her tumor.  She is living the life of a normal teenager and has given the DIPG and medical community hope that we are close to a cure. 

Even though we’ve started 2018 on a great note, January is always a sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG on January 21st, 2007 and lost his Battle to DIPG just two short years later on, January 25th, 2009. Cristian would have been 15 years old had he’d been alive today. In honor of Cristian, our foundation will continue working the “Full Steam Ahead” mentality until we eradicate this disease from our world and no family has to suffer through the process of dealing with a child with DIPG.

You can be a part of the journey of finding a cure for DIPG, and make 2018 the year we say goodbye to this horrible disease. 

Simply stay connected with us.  Join us at our events, share our journey with your friends and family and make a donation to our efforts. 

Speaking of great supporters and being part of our journey, The Cristian Rivera Foundation highlighted Member of the Month is Committee Member, Jesse Allison. Using her experience and resources, Jesse has been an incredible addition to our team and made valuable contributions to our goals through her hard work and dedication.

Who is Jesse Allison?
I am a 34-year-old working mother and wife. I have a three-year-old daughter named Addison and a wonderful supportive husband, Thomas. I grew up in the suburbs of Chicago. After spending many years planning events in the hospitality industry, I left to develop a family business of high end flooring. By making this move, my schedule became more flexible. Having a flexible schedule is important to me because I get to spend more time with my family. Probably my greatest passion after spending time with my family is cooking. 

What does it mean to you to be a part of the Cristian Rivera Foundation?
Being a part of the foundation is more rewarding than I could’ve hoped.  I’ve known John since I moved to Hoboken and as the mother of a small child, I cannot begin to fathom what hearing that my daughter had DIPG would be like. I think what Dr. Mark Souweidane and Dr. Oren Becher do is amazing work and I know that the more support we can generate for the doctors, the closer we are to that cure.

What is your proudest moment as a Cristian Rivera Foundation Committee Member?
My proudest moment was at the small cocktail reception we hosted at our showroom Wood Library in Hoboken. I was happy seeing the responses to the information we were presenting. Throughout the reception, the attendees really started to understand a little about this horrible disease which led them to wanting to help. By throwing this event, I was able to raise awareness of DIPG and help the many families affected by this disease. 

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To give a donation, please visit http://cristianriverafoundation.org/donation.html
All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundationand like us on Facebook at www.facebook.com/crisitanriverafoundationto stay up to date on the latest news and all of our exciting new upcoming events for 2018!

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.
T-shirts and wristbands

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation
space
John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”) space

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein and Darlene Rodriguez.

spaceCommittee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez,
Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox,
Tony Ferrara and Vito Bruno.
space

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dr. Manuel A. Moran, Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy “Tedsmooth” Mendez
and William Pla.

spaceHonorary Committee Members of the Cristian Rivera Foundation:
The Late Anthony Mason and The Late Miriam Colon.

spaceSupporters of the Cristian Rivera Foundation:
Ami Ferrara, David Rodriguez, Ginalisa Monterroso and Karla De Epstein

Follow on TwitterFriend on FacebookFollow on InstagramSubscribe to our channel
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
December 2017 Newsletter

Cristian Rivera Foundation
December 2017 Newsletter


Follow Here to View Pictures of the Ninth Annual
Cristian Rivera Foundation Celebrity Gala




Follow Here to View the Video Highlights of the Ninth Annual Cristian Rivera Foundation Celebrity Gala

December 2017 Newsletter
December 2017 Newsletter
December 2017 Newsletter


Cristian Rivera Foundation 2017
December Newsletter

The Ninth Annual Cristian Rivera Foundation Celebrity Gala was a huge success. It was truly a special night in honor of all our DIPG Angels. We would like to thank everyone who supported us by attending, sponsoring, and donating. Also, a big thank you to all our Board of Directors, Committee Members, Committee Friends, award presenters and award recipients, for their continuous support. Lastly, a special thank you to Dr. Mark Souweidane and Dr. Oren Becher for working tirelessly towards finding a cure for DIPG. Their dedication is highly appreciated in our journey to find a cure for DIPG

The Cristian Rivera Foundation recently visited the Weill Cornell Medical Center to give a $125,000.00 check to Dr. Mark Souweidane. Within the next few weeks, we will give Dr. Oren Becher a check and that will put the Cristian Rivera Foundation at the One Million Dollar (1,000,000.00) mark in monies donated to research and trials for the cure of DIPG and families who have been affected by this disease. Through the work of these doctors, we are closer than ever to saving the 200 young children who are diagnosed with DIPG every year. This past gala, Dr. Oren Becher stated in his speech, “I am very grateful for the funds that the Cristian Rivera Foundation has given me over the years. Thanks to funding, in the past year we have identified one promising medication that we hope to test on children with DIPG in 2018”. As one can see through Dr. Oren Becher’s statement, we are getting close to finding a cure for DIPG

The holidays are an important time to spend with the ones you love, and also a sad time for DIPG families all around the world. Families that are affected by DIPG are either marking these special occasions without their child or preparing for what they know will be the last holiday to spend with them. Thanks to the countless amount of support we have received, one day families will not have to fear DIPG. Your generosity means a lot to not only us, but also to the many DIPG families who have had to suffer because of this horrific disease. Even though our foundation has great supporters, we could always use more. For this reason, we ask you to hop on board and consider helping our foundation. You can be a part of the journey of finding a cure for DIPG, and we can make 2018 the year we say goodbye to this disease.

Speaking of great supporters and being part of our journey, CRF’s highlighted Member of the Month is Cristian Rivera Foundation Committee Member Jarrad Seuferling. Jarrad has been an incredible addition to our team.

Who is Jarrad Seuferling?

I am the Vice President of MAS Security Associates. I have worked in the security and nightlife industry for over 20 years. I have brokered dozens of deals in the entertainment industry and am passionate about helping others. Uniting people to elevate businesses is one of my top priorities. I am a proud husband and father of two and have been a Committee Member for one year.

What does it mean to you to be a part of the Cristian Rivera Foundation?

I love the team work and unity of our foundation. We are like a family. It feels so good when I see the progress that we’re making. When I hear about the progress the two doctors have made, I get happy because I know that one day a cure for DIPG will come. I am inspired by John ‘Gungie’ Rivera and Andy Epstein who are really great leaders.

What is your proudest moment as a Cristian Rivera Foundation Committee Member?

As a Cristian Rivera Foundation Committee Member, my proudest moment was a few days ago when I learned that once we give Dr. Oren Becher his check, we will have reached the One Million Dollar Donated mark.

As Jarrad said, we are so proud of reaching the One Million Dollar Mark and none of this could be possible without your help.

All donations to the Cristian Rivera Foundation are tax deductible and money raised by the Cristian Rivera Foundation goes to the suffering families, doctors and hospitals working tirelessly towards finding a find for the deadly pediatric brain tumor known as DIPG.

To get your donation in before 2017 is over, visit http://cristianriverafoundation.org/donation.html

All donations are appreciated and go a long way. Please be sure to follow us on Twitter @TweetCRF, Instagram @cristianriverafoundation and like us on Facebook at www.facebook.com/crisitanriverafoundation to stay up to date on the latest news and all of our exciting new upcoming events for the New Year!

Have a happy holiday season and a wonderful New Year.

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trails that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.
T-shirts and wristbands

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation
space
John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”) space

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein and Darlene Rodriguez.
space
Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez,
Ed Martin, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier, Robert Vazquez, Steve Cox,
Tony Ferrara and Vito Bruno.
space

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dr. Manuel A. Moran, Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy “Tedsmooth” Mendez
and William Pla.

spaceHonorary Committee Members of the Cristian Rivera Foundation:
The Late Anthony Mason and The Late Miriam Colon.

space

Supporters of the Cristian Rivera Foundation:
Ami Ferrara, David Rodriguez, Ginalisa Monterroso and Karla De Epstein

Follow on TwitterFriend on FacebookFollow on InstagramSubscribe to our channel
Copyright © 2017 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
January 2017 Newsletter

 

News and Insight into the Cristian Rivera Foundation

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Cristian Rivera Foundation 2017
January Newsletter

January is always an sad month for The Cristian Rivera Foundation. First, Cristian was Diagnosed with DIPG January 21st, 2007 and Lost his Battle to DIPG January 25th 2009. Cristian would have been 14 years old had he’d been alive.

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But this January we have something to be Happy about, it marks 4 years Lisha has had DIPG and is doing GREAT. Just a few weeks ago we learned that her latest MRI showed NO GROWTH. Lisha is living proof that we will find a cure for DIPG. The Cristian Rivera Foundation exists to fight until the day that being Diagnosed with DIPG is just a bump in the road and not a death sentence.

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The Cristian Rivera Foundation is also very excited to announce that we have donated $140,000 Weill Cornell and Duke from the proceeds 8th Annual Celebrity Fundraising Gala which was on November 30th. We were thrilled with the Gala this year and are grateful to all our Board of Directors, Committee Members, Committee Friends, Sponsors, Advertisers and Supporters.  We worked so hard to make this the best event to date. 

If you couldn’t participate at the 8th Annual Celebrity Fundraising Gala, you can still help by making a donation.  All monetary contributions are tax-deductible. All support is appreciated and brings us one step closer to a CURE.

Here are 2 letters the Cristian Rivera Foundation received after this year’s Gala.

We are thrilled to introduce
2 New Committee Members.

Jarrad Seuferling



Jesse Allison

Bio

Vice President of MAS Security Associates, Jarrad Seuferling, has worked in the security and nightlife industry for over 20 years. He has brokered dozens of deals in the entertainment industry and is passionate about helping others. Uniting people to elevate businesses is one of his top priorities. Jarrad Seuferling is a proud husband and father of two.

Bio

Jesse was born and raised in Chicago Illinois and moved to the east coast 5 years ago to take over sales and marketing for Zylo Restaurant in the W hotel. She’s currently the Director of Business Development for Helena Floors, a project she co–developed with her partner Thomas.

Statement

“I’ve known John Rivera for as long as I’ve been in the security business. We’ve worked together on many occasions and always had a mutual respect for one another. I attended The Cristian Rivera Foundation’s Celebrity Fundraising Gala in 2015 & 2016 and saw firsthand, the dedication and amazing work the foundation does. I was amazed by the amount of support and love I felt in the room on both occasions. As a father of two, I cannot imagine the pain of losing a child to DIPG. I feel so compelled to utilize my influence to make a difference.”

Statement

“I wanted to be a part of this organization after attending the fundraising event in November 2016 and seeing how this horrible disease affected the Rivera Family. Having a small daughter, I cannot imagine losing a child to this disease. I applaud John and all his efforts to ensure this disease doesn’t take another little angel from the world. “

Happy Birthday To Our Committee Friends

Steven Rodas
January 13

Mark Rosner
January 15

Paul Pristavec
January 21
Remembering DIPG Angel Birthdays
January
Remembering DIPG Angel Anniversaries
January
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Jarrad Seuferling, Jesse Allison,
Kenan Thompson, Louie Vega, Luis Guzman, Meiling Macias Toro, Miriam Colon,
Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier,
Steve Cox, Teddy “DJ Tedsmooth” Mendez, Tony Ferrara and Vito BrunoCommittee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla
Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.

Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<

Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”

Written by Robert Vazquez
Edited by Robert Dominguez
Illustrated by Bryan Vallejo
>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

100% of the proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Follow Us:
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Copyright © 2017 Cristian Rivera Foundation, All rights reserved.

 

Cristian Rivera Foundation November 2016 Newsletter

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Cristian Rivera Foundation 2016
November Newsletter

November is always an exciting month for The Cristian Rivera Foundation. First, there is Thanksgiving and who doesn’t love Thanksgiving? We love being able to take the time out of our busy schedules and spend time with our family and friends to reflect on the past year and express gratitude. However, it is around our dining room tables, surrounded by those who love us, we take a moment to remember the unfortunate reality that many families are incomplete at the dinner table. Many families are missing their daughters and sons, they are missing their brothers and sisters. All because of this terrible reality of Diffuse Intrinsic Pontine Giloma (DIPG). The Cristian Rivera Foundation exists to fight so that no more families are incomplete on Thanksgiving-or any other day of the year.

The Cristian Rivera Foundation is also very excited about our 8th Annual Celebrity Fundraising Gala, which is on November 30th! We are thrilled with the Gala this year. We have been working hard to make this the best event to date.  We’re honoring Brandon Stanton of Humans of New York as our 2016 Humanitarian Award winner because of his work on increasing awareness about DIPG. We are so proud to also honor Dr. Mark Souweidane of Weill Cornell Medicine with the Vision of Hope Award for his seemingly endless dedication and hope to finding a cure for DIPG. We are proud to honor Board of Director, Craig Serra with the 2016 Service & Dedication Award for his commitment to the Crisitan Rivera Foundation. We are honored to bestow the 2016 Golden Wings onto Juliana Donnelly; her parents Brian and Doris will be addressing us at the Gala. As you probably already know, the 8th Celebrity Fundraising Gala is SOLD OUT! This is the third year in a row that the Celebrity Fundraising Gala has been sold out and this year- one month before the Gala!  We still have more exciting news to come about this year’s Gala, so stay tuned as we up to date!

Our Platinum Sponsors Our Gold Sponsor Our Silver Sponsors Our Bronze Sponsors

We look forward to seeing you at the 8th Annual Celebrity Fundraising Gala! If you did not get a ticket in time, there are still ways to be involved with the Gala. You can purchase a sponsorship or an ad to be featured in our program. You can make a donation. You can volunteer the night of the Gala. All monetary contributions are tax-deductible. All support is appreciated. We are excited to see our Board of Directors, Committee Members, and Committee Friends at the Gala! We are thrilled to welcome new- and returning- guests to the Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala! See you on November 30th!

We’re proud to feature Committee Member,
Carlos Yepez

Carlos is the November featured Committee Member. Carlos is the Business Relationship Manager and Vice President of PNC Bank in West Windsor, New Jersey and President of the PNC Bank Latino Employee Resource Group in the Central NJ Market. He has two children and is married to Brenda. He has been part of the Cristian Rivera Foundation since 2015. We are glad to have him on our side!

We interviewed Carlos recently and asked him some questions about his involvement with the Cristian Rivera Foundation. Interview below:

1. What does it mean to you to be a part of the Cristian Rivera Foundation? I love being part of a great organization. I love being a soldier in the fight against DIPG. This is an important fight and I’m proud to be a part of this organization to find a cure.

2. What is your favorite part of the Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala?

The part that is my favorite is also really the saddest part of the night, but it is my favorite because it is the most impactful. When the video featuring Cristian and all the other children who suffered from DIPG is played the entire room gets quiet, emotional, and contemplative. The other guests and me sit there and think about what we just watched. It inspires me to work harder and to do everything I can to help find a cure.

3. What do you enjoy the most about the Cristian Rivera Foundation?

I really like that the Cristian Rivera Foundation Board of Directors, Committee Members, and Committee Friends are all volunteers. All the proceeds we raise go to research, which means your donation goes to finding a cure. The people receiving your donations are real people. Dr. Mark Souweidane is a very sincere guy. We have the right people involved in this organization. It is about getting people to understand the cause and to donate. We’ve made huge strides in such a short amount of time-imagine what we can accomplish in the long run!

Happy Birthday To Our Committee Member

Manuel Morán
November 29

Remembering DIPG Angel Birthdays
November
birthdays
Remembering DIPG Angel Anniversaries
November
anniversaries
 


Sincerely
The Cristian Rivera FoundationJohn “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez,
Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez,
Rafael Toro, Ramon E. Javier, Steve Cox, Teddy “DJ Tedsmooth” Mendez,
Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Dean Feratovic, Edward Caban, Jerry Chaparro,
Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec, Robert Dominguez,
Steven Rodas, Victor Martinez, and William Pla

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The Cristian Rivera Foundation October 2016 Newsletter

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The Cristian Rivera Foundation October 2016 Newsletter

Cristian Rivera Foundation
October 2016 Newsletter

It has been quite a while since our last newsletter, but we are back and better than ever! We hope everyone had a good October! We are looking forward to the rest of this beautiful fall and to working together in November to pull off the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala. We are working hard to plan a beautiful evening dedicated to the children who suffered and are suffering from DIPG.

There are quite a few updates to give. First, Dr. Mark Souweidane treated his final patient in Phase I clinical trial of convection-enhanced delivery (CED) for DIPG. The trial, which enrolled 31 patients over the last 4 years, was to test the safety of CED as a means to fight the DIPG tumor directly. You can read more from Dr. Souweidane Weill Cornell Brain and Spine blog, here. In more good news, Lisha got her latest MRI results in and her results were excellent: stable with no growth! Lisha is the living proof that the work of the Cristian Rivera Foundation in supporting Dr. Souweidane and his team is valuable and making great strides in finding a cure for DIPG.

Many of you remember Allen. If you don’t, Allen was an 8 year old boy who was diagnosed with DIPG and had one wish-to meet his favorite Power Ranger.  The Cristian Rivera Foundation and The Little Kernel was able to send Allen and his family to California to fulfill his wish of meeting the Blue Power Ranger, his favorite one! But, it is with heavy hearts that we are reminded of the severe reality of DIPG because Allen passed away on October 9th. Our prayers and thoughts are with Allen and his family during this time.

As you know, the 8th Annual Cristian Rivera Foundation’s Celebrity Fundraising Gala is Wednesday, November 30th at the Broad Street Ballroom starting at 6 PM. Tickets are almost sold out, but sponsorships and ads to be featured in our program are still available for purchase. We are still seeking live and silent auction items. If you, or someone you know, would like to donate an item or an experience please email info@cristianriverafoundation.org so we can send you the Auction Donation Form.

To date, the Cristian Rivera Foundation has donated more than $700,000 to research of Dr. Mark Souweidane of Memorial Sloan Kettering Cancer Center and the Director of the Weill Cornell Medical College Pediatric Brain and Spine Center and families of children currently fighting DIPG. Our goal is to hit the mark of one million dollars donated in 2017. Consider making a donation today and at the gala. Consider making your donation a monthly donation. All contributions are tax-deductible and fund critical DIPG research and support the children and their families during their fight.

We will start sending updates about the Gala soon. We are so excited to see everyone on Wednesday, November 30th!

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors of the Cristian Rivera Foundation:
Andy Epstein, Darlene Rodriguez and Craig Serra.

Committee Members of the Cristian Rivera Foundation:
Aldo Marin, Alex Garcia, Carlos Colon, Carlos Yepez, Dennis Rodriguez, Dr. Manuel A. Moran, Elis Pacheco, Fernando Ferrer, Kenan Thompsona, Luis Guzman,
Meiling Macias Toro, Miriam Colon, Nirav Patel, Robert Vazquez, Rafael Toro, Ramon E. Javier, Steve Cox, Tony Ferrara and Vito Bruno

Committee Friends of the Cristian Rivera Foundation:
Ben Velazquez, Carlos Nazario, Dean Feratovic, Edward Caban, Funk Flex, Jerry Chaparro,
J.I. Starr, Little Louie Vega, Mark Rosner, Modesto Lacen, Pablo Diaz, Paul Pristavec,
Robert Dominguez, Steven Rodas, Teddy “Tedsmooth” Mendez, Victor Martinez,
and William Pla

Follow the Cristian Rivera Foundation:

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Support the Cristian Rivera Foundation
by Purchasing a Cristian Rivera Foundation
Wristband or T–Shirt.


Follow Here to Purchase Your Own CRF Wristband or T–Shirt

Make a Tax Deductible Donation to
The Cristian Rivera Foundation
>>Follow Here<<