News

DAILY NEWS EXCLUSIVE!
Tuesday, November 13, 2018
Cristian Rivera Foundation that battles deadly childhood cancer DIPG marks 10th annual event with a success story

Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)
Kenan Thompson (l.) and Leisha Ayalais. (Courtesy Cristian Rivera Fund)

The Cristian Rivera Foundation will have a reason to celebrate when it holds its 10th annual fundraising gala to fight a rare childhood cancer on Wednesday, Nov. 14.

The foundation has been on a mission over the past decade to find a cure for diffuse intrinsic pontine glioma, or DIPG, a rare form of deadly brain cancer mainly affecting small children. Each year, roughly 200 children are diagnosed with DIPG, and nearly all usually succumb to the aggressive cancer within 18 months.

But the celebrity-studded gala, at Manhattan venue Capitale, will commemorate a rare success story: 13-year-old Lisha Ayalais, who was diagnosed with DIPG six years ago, has defied the odds and continues to show no growth in her tumor.

”Lisha is doing phenomenal. We are going on 6 years and she is still DIPG-free,” said CRF founder John (Gungie) Rivera. “This is evidence that the work that we are doing — the trials that our doctors are working on — are effective.”

Rivera, a local music producer and promoter, started the foundation in honor of his son Cristian, who passed away from the disease at only 4 years old and is the driving force behind the event.

Though Cristian did not win his battle with DIPG, Rivera continues it on his son’s behalf, raising funds annually to help underwrite clinical trials aimed at treating and hopefully one day curing the condition.

Lisha is currently in one of those trials at Weill-Cornell Brain and Spine Center in Manhattan, working with Dr. Mark Souweidane, a pediatric neurosurgeon specializing in DIPG.

Cristian Rivera and John (Gungie) Rivera) (Handout)
Cristian Rivera and John (Gungie) Rivera) (Handout)

This year’s event, hosted by foundation co-chair Darlene Rodriguez of NBC News, will feature such celebrity guests as Kenan Thompson of “Saturday Night Live.”

Honorees include actor Ramon Rodriguez, who will receive a humanitarian award for his recent work in Puerto Rico with the 100Roofs Project that aims to help those on the island still struggling after last year’s devastating storms by providing carpenters and training locals to become professional roofers.

It was inspiring to see his commitment to Puerto Rico,” Rivera said. “It reminds me that I am not alone in my efforts to make a difference, even when facing major challenges.”

For more info on the Cristian Rivera Foundation, buy tickets to the gala or donate to the fight against DIPG, go to cristianriverafoundation.org.

 

Read More, visit nydailynews.com/life-style/health/ny-ent-viva-cristian-rivera-fund-20181113-story.html

Cristian Rivera Foundation
2018 November Newsletter

 

Nov 2018 Newsletter

Cristian Rivera Foundation 2018
November Newsletter
The 10th Annual Cristian Rivera Foundation Celebrity Gala was held on November 14th, 2018, at Capitale in New York City. 

The event was hosted by Cristian Rivera Foundation board members, Andy Epstein and NBC Anchor, Darlene Rodriguez. The gala was special for The Cristian Rivera Foundation, as we celebrated a decade of raising awareness and support for DIPG research. We also highlighted and honored the following on that special evening:

  • The Cristian Rivera Foundation has donated well over $1,000,000 to DIPG research, clinical trials and to support families.
  • We celebrated a 6th year of life with Lisha Ayala, her tumor has shown no growth and she is responding extremely well to the clinical trials.
  • Actress Rosie Perez presented Actor Ramon Rodriguez with the 2018 Cristian Rivera Foundation Humanitarian Award for his efforts to help rebuild Puerto Rico.
  • Guardian Angels Founder, Curtis Sliwa introduced a new award to the Cristian Rivera Foundation, The Guardian Angel Award.  The Award was presented to Sarah Langbert, Keith Lustman and Ginalisa Monterroso for their dedication in protecting children with DIPG.
  • “Cristian’s Journey”, a children’s book about a young boys passion to spread love and happiness in the Big City, despite being told he was sick, was released on the night of the gala.  The book can be purchased on CristianRiveraFoundation.org, and on Amazon and Barnes and Noble respective websites.  Any book purchased through The Cristian Rivera Foundation Website will be autographed by the Authors, Robert Vazquez & John Rivera. 
  • CRF Committee Member & Emmy Award Winning
    Kenan Thompson, of Saturday Night Live, introduced our DIPG survivor Lisha Ayala to the audience. 
  • CRF Committee Member and Editor at the New York Daily News, Robert Dominguez presented Dr Mark Souweidane with the CRF 2018 Vision of Hope Award.

 

The last month of the year is here!  Consider making a charitable contribution to The Cristian Rivera Foundation before the New Year.  Your contribution is tax deductible and will help fund DIPG clinical research and the innovative clinical trials being conducted by Dr. Mark Souweidane. 

We would like to close out 2018 by thanking each and every one of you for supporting The Cristian Rivera Foundation.  It is through your support that we are making monumental strides in DIPG research and giving children, like Lisha Ayala, a chance to fulfill their dreams. 

Help us start 2019 STRONG!  How You Ask?  It’s Simple, take a few moments to do one (or all of the following)

  • Raise Awareness by sending this newsletter to your family, friends and coworkers.
  • Visit our Website CristianRiveraFoundation.org and take a look at all the amazing events that we host throughout the year.
  • While you are on our website, take a moment and make a small donation, purchase a wristband or a copy of “Cristian’s Journey”.  100% of the net proceeds are steered to DIPG research and clinical trial.
  • Contact us at info@cristianriverafoundation.org if you would like to take part in our events, want to Volunteer or become a member of the CRF committee. We host an annual Walk, Boat Ride, Celebrity Gala, Dinners, and plenty of other fun events.  Reserve your space early!
  • Tag us On Social Media with #LoveYou10 or #CristianRiveraFoundation, we will follow you when you do!
Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Available Now
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

Available at smile.amazon.com, Barnes and Nobile and on our website CristianRiveraFoundation.org

Amazon Smile
Barnes & Noble
Cristian Rivera Foundation

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space
Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
and Vito Bruno.

Committee Friends:
Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez,
Vanessa Rodriguez and William Pla.

space

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space

Supporters:
David Rodriguez, Ginalisa Monterroso,
and Karla De Epstein

 

Guidestar Twitter  FacebookInstagramYouTube
Guidestar
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020

Cristian Rivera Foundation Committee Member,
Kenan Thompson wins his 1st Emmy!

 

 

The Cristian Rivera Foundation would like to congratulate long time supporter & committee member, Kenan Thompson on winning his first Emmy! We are extremely proud of all of Kenan’s accomplishments in Entertainment and we are also grateful for his tireless dedication & benevolence to CRF and curing DIPG.

Cristian Rivera Foundation
June/July 2018 Newsletter

June/July 2018 NewsletterJune/July 2018 Newsletter

Cristian Rivera Foundation 2018
June/July Newsletter

Summer is here, and it is hot hot hot! The Cristian Rivera Foundation team has been working extremely hard over these past 2 months to raise awareness for DIPG. As July comes to a close, here’s what the Cristian Rivera Foundation has been up to:

Saturday, June 9th 2018: The 1st Annual Cristian Rivera Foundation “Full Steam Ahead” 5K Walk/Run took place in Van Cortlandt Park in the Bronx and it was a success. Over 100 registered walkers showed up and as a result, we gave Dr. Mark Souweidene and Dr. Jeffrey Greenfield a check to help further their research in neuro-oncology.

You can check out the pictures on our website at: http://cristianriverafoundation.org/crf5kwalkrun/ .

Saturday, July 21st 2018: The 3rd Annual Cristian Rivera Freestyle Flashback Boat Ride took place at Pier 83 and it was a blast. Even though it was raining, we danced the night away and almost reached full capacity. All of the performers were amazing. You can look at the pictures on our website at: http://cristianriverafoundation.org/3rdCRFBoatRide/index.html  

In addition, our first DIPG survivor, Lisha Ayala, has no sign of tumor growth as per the results of her quarterly MRI results. Because of your generosity, Lisha has been able to grow into a young adult and show the world we can beat DIPG. Your continuous support and dedication are paying off as we begin to find a cure for DIPG.

Next month, CRF Founder John “Gungie” Rivera will host his Birthday Bash Boat Ride on Saturday, August 25th. The event starts at 7pm and a portion of the proceeds will benefit the Cristian Rivera Foundation. Join us, hosts Alizay and Speedy, DJ Ted Smooth, DJ Big Paul, DJ Anthony Mangini, DJ Glenn Friscia, and DJ Johnny Famolari for an amazing night. Special performances and more DJs will be announced. Tickets are $25 until August 9th, $30 until August 16th, $35 until August 23rd and $40 until the event. Buy your tickets soon.

We are proud to announce that next month, The Children’s Book, “Cristian’s Journey”, a story inspired by Cristian Rivera will be released. The book will honor Cristian’s legacy and will educate the public about DIPG and our commitment to curing the disease. As always, 100% of the proceeds of the book will be donated to Weill-Cornell Medical Center and their clinical trials.

Mark your calendars for The 10th Annual Cristian Rivera Foundation Celebrity Gala. The event takes place on Wednesday, November 14th.  Join us as we come together to celebrate a decade of work in the DIPG community and honor some very special people.  This event promises to be our biggest gala yet. You can now purchase tickets on our website here: http://cristianriverafoundation.org/events.html .

We are thrilled to announce 2 new Committee Friends.

We are very proud to announce our new Committee Friend Janie Chamberlain. Janie was born in Queens, New York, raised in Somerset County, New Jersey and graduated in 1999 from Rutgers University with a Bachelor of Arts in Art History & Italian Language. Having left a career in financial markets sales at Bloomberg LP to raise her family, she has continuously sought impactful ways to apply her professional strengths. Over the course of the last 16 years as a stay at home parent of three beautiful children, Janie has sought fulfilling ways to collaborate on directives that meaningfully serve, grow and enrich her Westchester County, New York community. As a recently elected Trustee of the Briarcliff Manor Union Free School District in Briarcliff Manor, New York she is honored to have the opportunity to demonstrate how connected, present, passionate and committed she is in advocacy of the youth of her community.

Janie Chamberlain says, “As a tireless advocate for children in my own community, I am honored beyond measure to be a piece of the puzzle that makes the Cristian Rivera Foundation a force to be reckoned with against Diffuse Intrinsic Pontine Glioma (DIPG). The passion that John Gungie Rivera exhibits in honor of his beloved son Cristian is undeniable and infectious. Together the Cristian Rivera Foundation can, and will, accomplish amazing feats. Cristian’s spirit carries on in those of who will continue to challenge each other to meet bigger and better goals every day.”

Our 2nd new Committee Friend Flora Montes is a proud Latina from the South Bronx whose entrepreneurial, philanthropic, and artistic endeavors make her a force to be reckoned with. She is the Founder of Bronx Fashion Week and culinary school graduate. She is also a published poet who has performed and produced shows for the famed Nuyorican Poet’s Café and other NYC venues. Flora serves on the Bronx Museum of The Arts’ Community Advisory Board and the Board of Directors for the American Cancer Society. She uses her artistic abilities to inspire and support vulnerable communities such as homeless children and victims of domestic violence. Her generosity and vibrant spirit have garnered her many awards and commendations. Some of her accolades include being named One of the 25 most influential woman in NYC by the Bronx Times; being hailed as a South Bronx ambassador of culture by the NY Times and a Gamechanger Entrepreneur by Lord & Taylors Wacoal America; as well as recognition from local and city government officials like Councilman Andy King and Mayor Bill de Blasio for her efforts in leading Bronx Fashion Week.

Flora Montes says, “I had the pleasure of meeting John Rivera through a job search on a telephone call which turned into a 2-hour conversation about our lives and the loss of a child since I too had experienced that loss & while it was through different means the pain of losing a child is one and the same. I can honestly say an instant genuine friendship formed, I saw first hand his passion to honor his son’s memory and the determination to find a cure for DIPG and I knew in my heart that I had to help not only because everything happens for a reason but because I believe that our meeting was meant to be for a greater purpose. I also saw first hand when I volunteered at the gala in 2017 the hard work that goes behind the Cristian Rivera Foundation and the love and compassion that goes behind assisting these parents dealing with this deadly disease and in some way, my daughter would be smiling from heaven in complete agreement as it is my mission to honor her also through my actions.”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space
Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez,
Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
Tony Ferrara
and Vito Bruno.

Committee Friends:
Dr. Manuel A. Moran, Dennis Rodriguez,
Edward Caban, Flora Montes, Janie Chamberlain,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez and William Pla.
space
Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space
Supporters:
Ami Ferrara, Ben Velazquez, David Rodriguez,
Ginalisa Monterroso, Teddy Mendez
and Karla De Epstein

 

Guidestar

Guidestar

Follow on Twitter
Friend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Once again No Growth,
No activity on Lisha Ayala’s July 2018 MRI

CRF BREAKING NEWS- The Cristian Rivera Foundation is pleased to announce that Lisha Ayala received her quarterly MRI results and she has shown No sign of Tumor Growth. What does that mean? It means that your generosity has helped us underwrite the clinical trials that she is participating in. It means, that for the last 5 and a half years Lisha Ayala has been able to grow into a young adult and show the world that we can beat DIPG. Your support, your generosity and your dedication to the Cristian Rivera Foundation has made Lisha’s journey possible! We thank you, Lisha Thanks you, and the families impacted by DIPG thank you.

Congratulations Dr. Souweidane

Dr. Mark Souweidane

Congratulations to Dr. Mark Souweidane, whose highly anticipated results of the first-ever dose escalation study using convection-enhanced delivery (CED) in patients with DIPG, were published in Lancet Oncology. Thank you Dr. Souweidane, for continuously working hard towards finding a cure for DIPG. “Full Steam Ahead”

Follow Here to Read the CED Letter

Cristian Rivera Foundation
May 2018 Newsletter

 

May 2018 Newsletter

Walk or Run   Become a Virtual Walker

Create a Team   Join a Team

Sponsor   Volunteer   Donate

May 2018 Newsletter

May 2018 Newsletter

Cristian Rivera Foundation 2018
May Newsletter

April showers bring new Cristian Rivera Foundation events. All the hard work we’ve put into raising DIPG awareness in 2018, is finally starting to blossom. As things start to blossom and the temperature continues to rise, approaching with “Full Steam Ahead” is the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K.

The 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K is making a stop at Van Cortlandt Park in the Bronx on Saturday, June 9th at 9am. We’re looking to fill up the seats in our train so, bring your family, friends and colleagues together and join us while we run/walk for a DIPG cure. Van Cortlandt Park is 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. Entry fee is $25 and includes a 5K t-shirt. We encourage participants to fundraise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. Please help us beat DIPG. To sign up to participate in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Become a Virtual Participant in the 5K. If you live outside the Tristate area or going to be out of town, become a Virtual Participant! The entry fee is $25 and includes a 5K t-shirt. Take a picture with your t-shirt and e-mail it to crf5K@cristianriverafoundation.org and we will post it on our site. We encourage participants to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fund-raise as much as you can! Every dollar you raise will help us sustain and grow our programs. To sign up as a Virtual Participant in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/register/.

  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 5K t-shirt. We encourage each team member to fund-raise a minimum of $250. (This is NOT a Mandatory Amount), but we encourage you to fundraise as much as you can! Every dollar you raise will help us sustain and grow our programs. To create a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/team-registration/.

  • Sponsor the event. To sponsor the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/sponsorship/
  • Become a Volunteer. To become a volunteer for the 5K please visit http://cristianriverafoundation.org/crf5kwalkrun/volunteer/.

  • Donate. Help support raising funds for DIPG by donating. To make donations please visit http://cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference! Hop on board and together we can help the 300 children diagnosed each year.

Our foundation would like to acknowledge Goya Foods for being the Presenting Sponsors for the 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K. Goya is our largest corporate sponsor and are Platinum Sponsors for our Annual CRF Celebrity Gala. Here at the foundation, we appreciate Goya’s dedication to our cause.

We would also like to give a big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health and Patrick B. Jenkins & Associates for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. Want to follow in these sponsor’s footsteps and run/walk for DIPG awareness? Visit cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase tickets to the 3rd Annual Cristian Rivera Foundation Freestyle Flashback Boat Ride on Saturday, July 21, 2018 at 7:00 p.m., featuring a performance by Freestyle Diva Lisette Melendez. Get your ticket $30 ticket today, you don’t want to miss out on this amazing evening or discount deal. After June 1st the tickets will go up to $35 and will increase to $40 after July 1st. Don’t wait and purchase your tickets today here: cristianriverafoundation.org/events.html#3rdboatride.

Whether you are sponsoring, participating, volunteering, or donating, you are helping in making a difference in the lives of the 300 children diagnosed with DIPG every year. Hop on board and help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.
space Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez,
Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison,
Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox,
Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella

Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Flora Montes, Mark Rosner,
Modesto Lacen, Pablo Diaz, Robert Dominguez,
Teddy Mendez and William Pla.

spaHonorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.
space

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on Twitter
Friend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org

Cristian Rivera Foundation
2018 April Newsletter

 

March 2018 Newsletter
Participate   Walk or Run   Become a Virtual WalkerCreate a Team   Join a Team
Sponsor   Volunteer   Donate
March 2018 NewsletterMarch 2018 Newsletter


Cristian Rivera Foundation 2018
April Newsletter

As we enter the season of new growth in nature, we’re also celebrating the growth of our foundation. We’re halfway through April, and busy is the word of the month here at the Cristian Rivera Foundation!  As the warm weather approaches, so does our first ever Cristian Rivera Foundation 5K Walk and Run.

The 1st Annual Cristian Rivera Foundation 5K Walk and Run will be held on Saturday, June 9, 2018, at Van Cortlandt Park in the Bronx, 15 minutes from Manhattan and the George Washington Bridge.  The registration process will begin at 8:30 AM and the Run/Walk will commence at 9:00 AM. This event will raise money to increase public awareness of DIPG, as well as raise funds that will provide financial support to families and medical facilities that conduct innovative research and clinical trials. Take a stand against DIPG with us by sponsoring, participating, volunteering and donating in the 1st Annual CRF “Full Steam Ahead” 5K. You can help us continue our progress and give hope to more children and families affected by DIPG. Take a stand against DIPG with us by getting involved the 1st Annual CRF “Full Steam Ahead” 5K.

How Do I Get Involved?

  • Run or Walk in 5K. The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate in the 5K and take a stand against DIPG. To sign up to participate in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Become a Virtual Participant in the 5K. Want to participate but live outside the Tristate area or going to be out of town? Become a Virtual Participant! The entry fee is $25.00 and will include a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. Our foundation asks for all Virtual Participants to take a picture with their t-shirt and e-mail it to crf5K@cristianriverafoundation.org for display on our website. We also encourage all CRF 5K participants, to fundraise a minimum of $250.00. If you fail to meet the quota, you will still be able to participate as a Virtual Runner/Walker in the 5K and take a stand against DIPG. To sign up as a Virtual Participant in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/register/.
  • Create a Team.  Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To create a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Join a team. You’ll be able to raise funds for DIPG along with your family, friends and colleagues. Each team member is required to pay the $25 entry fee and will receive a 1st Annual Cristian Rivera Foundation Full Steam Ahead 5K Run/Walk t-shirt. We encourage each team member to fundraise a minimum of $250.00. If any team member fails to meet the quota, they will still be able to participate in the 5K and take a stand against DIPG. To join a team and take part in the 5K please visit cristianriverafoundation.org/crf5kwalkrun/team-registration/.
  • Sponsor the event. To sponsor the 5K please visit cristianriverafoundation.org/crf5kwalkrun/sponsorship/.
  • Become a Volunteer. To become a volunteer for the 5K please visit cristianriverafoundation.org/crf5kwalkrun/volunteer/.
  • Donate. Help support raising funds for DIPG by donating. To make donations please visit cristianriverafoundation.org/crf5kwalkrun/donate/.

Just remember that signing up to get involved is just the first step – fundraising is what makes the difference!

Our foundation would like to acknowledge some longtime supporters and the Sponsors for the 1st Annual CRF “Full Steam Ahead” 5K. A big thank you to Rivera Marketing and Media Group for becoming a Platinum Sponsor for the 1st Annual CRF “Full Steam Ahead” 5K. The Little Kernel, Joule Entertainment and Weill Cornell Medical Center for becoming Gold Sponsors. Medicare & Medicaid Advisory Group and Calle Ocho for becoming Silver Sponsors. Lastly, CarePoint Health for becoming Bronze Sponsors. All of these sponsors have continuously supported our foundation and we truly appreciate their efforts. If you are interested in Sponsorship/Advertising opportunities go to cristianriverafoundation.org/crf5kwalkrun/sponsorship for details. Deadline for Sponsorship must be in before Friday, May 25th, 2018 at 5 p.m.

Sponsoring, participating, and volunteering in the 1st Annual CRF “Full Steam Ahead” 5K isn’t the only way you can get involved. You can also purchase silent auction items that are available for bidding on cristianriverafoundation.org/auction. We have a great variety of things such as an NY Yankees on field experience and an autographed Marc Anthony microphone. Also, our past items have included Four (4) Premium Tickets to see Frankie Valle at the Mohegan Sun Arena, plus a meet and greet and a 5 Course Italian Cooking Class at your home for 10 People, with Renown Chef Nick Lucci. These auction items are incredible and one can purchase them in efforts to eradicate DIPG.

As one can see, whether you are sponsoring, participating, volunteering, donating or purchasing auction items, you are helping in making a difference. Help us make 2018 the year we say goodbye to DIPG. We thank you for your continued support and look forward to helping those affected by DIPG with your help.

Stay tuned for updates on our upcoming events by visiting our website at cristianriverafoundation.org. You can also view our gallery and sign our guestbook to let us know you stopped by! “Full Steam Ahead”

Our MissionThe mission of the Cristian Rivera Foundation is to help find the cure for

Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable
and incurable brain stem tumor.

What is DIPG
(Diffuse Intrinsic Pontine Glioma)?

Diffuse Intrinsic Pontine Glioma or DIPG, is a Rare, Inoperable Brain Stem Tumor that predominantly affects children between the ages of 2 and 10. Only 200-300 cases are discovered in the United States each year and because there is no cure, it’s young victims only have an average of 3-18 months to live, after they’ve been diagnosed. There are NO SURVIVORS.

Who is
The Cristian Rivera Foundation?

The Cristian Rivera Foundation is a 501 (c)(3) Non-Profit Organization that works tirelessly, in order to raise awareness and funds to one day put a STOP to this disease. The Cristian Rivera Foundation funds the work of Dr. Mark Souweidane of Weill Cornell Medical Center – Memorial Sloane (Kettering) Cancer Center and Dr. Oren Becher of Ann & Robert H. Lurie Children’s Hospital and the Lurie Cancer center at Northwestern University. Both Doctors are conducting promising research and trials that have shown promising results. We are CLOSE to a CURE!

How Can You Help:
  • Help us by making a Donation.
  • Every Donation Big or Small, will help us achieve our goal.
  • Help spread the word to your family, friends and Colleagues.
Thank You again and may this be the year we say goodbye to DIPG,
(Diffuse Intrinsic Pontine Glioma),
FOREVER!
PLEASE DONATE
Pre-Order
Cristian´s Journey
A Story Inspired by John “Gungie” Rivera, “Forever Cristian´s Daddy”
Cristian's Journey

Written by John “Gungie” Rivera
and Robert Vazquez

>>Follow Here to Pre-Order
your Copy Now<<

$20
$5 for Shipping & Handling

Proceeds from the purchase of
“Cristian´s Journey” will be donated to support
D.I.P.G. research and trials at
Weill Cornell Medical Center. Thank you for bringing us closer to a cure.

Sincerely
The Cristian Rivera Foundation

John “Gungie” Rivera
(Founder of The Cristian Rivera Foundation & “Forever Cristian’s Daddy”)

Board of Directors:
Andy Epstein and Darlene Rodriguez.

Committee Members:
Aldo Marin, Alex Garcia, Carlos Colon,
Carlos Yepez, Ed Martin, Elis Pacheco,
Fernando Ferrer, Jarrad Seuferling,
Jesse Allison, Kenan Thompson, Louie Vega,
Luis Guzman, Meiling Macias Toro, Nirav Patel,
Paul Pristavec, Rafael Toro, Ramon E. Javier,
Robert Vazquez, Steve Cox, Tony Ferrara
and Vito Bruno.

Director:
Vicky Estrella


Committee Friends:

Ben Velazquez, Dr. Manuel A. Moran,
Dennis Rodriguez, Edward Caban,
Mark Rosner, Modesto Lacen, Pablo Diaz,
Robert Dominguez, Teddy “Tedsmooth” Mendez
and William Pla.

Honorary Committee Members:
The Late Anthony Mason
and The Late Miriam Colon.

Supporters:
Ami Ferrara, David Rodriguez,
Ginalisa Monterroso and Karla De Epstein

 

Guidestar

Guidestar

Follow on Twitter
Friend on Facebook

Follow on Instagram
Subscribe to our channel
Forward to Friend
Copyright © 2018 Cristian Rivera Foundation, All rights reserved.

Our mailing address is:
Cristian Rivera Foundation PO Box 656. Edgewater, NJ 07020
cristianriverafoundation.org